Ivacaftor for Cystic Fibrosis User Reviews
Brand names: Kalydeco
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- Drug class: CFTR potentiators
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"My nine-year-old son has G551D/deltaF508 CF. He began taking this at six years old, 2 years after it first became available in the US. He went from being severely underweight to overweight in less than a year. His BMI is over the 95th percentile for age 9. His chronic cough went away within a week. He has not had any respiratory infections since beginning the medication. This medication is just short of a miracle for him. And I'm not exaggerating. I am a physician who has watched kids and young adults die of cystic fibrosis during my training."