User Reviews for Avonex
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care. Learn more about Avonex.
Reviews for Avonex to treat Multiple Sclerosis
"I just started this medication. With each injection the side effects have gotten worse. I did my 3rd dose last night & I'm miserable. The body/muscle aches, headaches etc. are about unbearable. Each time I took two 500 mg Tylenol before my injection as recommended by my training nurse. I was told about the flu like symptoms, read the booklet my Neuro gave me, but I thought the symptoms would subside at least halfway through the next day. I am so pained. I keep taking Tylenol & even my muscle relaxer hoping for relief. But Nothing seems to help. I called into Biogen after my 2nd dose. No help. Copaxone gave me bad brain fog & injection site reactions. Tecfidera kept me in the bathroom in unbelievable pain. Not sure what to do now."
Nhl742 September 13, 2017
1 users found this comment helpful.
"I am almost 68 yo; diagnosed w/LOMS in '15. Immediately went on Avonex (wkly self injectable pen). Symptoms have not progressed and I am stable over the past 2.5 yrs. I do well with the shots; have learned to travel with medication and have taken care of my needs worldwide! I initially had the flu like symptoms post injection but they dissipated over time, but here at 30 months later I had a really bad episode of wracking chills and muscle aches just last pm. Feel worn out and sore this am. Why after all this time did I have this reaction? Have never missed a dose, so it's not like I am reintroducing medication to my system, Anyone else having this problem?"
Msr2323 (taken for 2 to 5 years) August 5, 2017
1 users found this comment helpful.
"I've been on Avonex almost eight months. A little flu like symptoms the following day. It gets worse if I've had too much coffee, less 'achey' if I'm drinking plenty of water the day before. I'm fairly new to MS so don't know if it's stopping the lesions but I feel better than a year ago. ' Fortunately, I am a copay assistance program so it's zero out of pocket. Thank you Biogen."
Teri99687 April 19, 2017
0 users found this comment helpful.
"I am sorry to hear of those of you for whom Avonex hasn't worked. Either I am in a minority or just lucky with how it has helped me, I have been on Avonex for almost nine years and he first month was a challenge....shivers and aches shortly after my injections. Ever since, however, it has only been a minor inconvenience. I take two Advil an hour before my shot and only experience what I call a bit of a "funk" 24 hours later, other than that, it is a breeze, thank goodness! My biggest challenge was the 1-1/ 4 inch needles so I changed to 1 inch. Much less daunting! I have never missed a shot in almost nine years and don't plan to miss one going forward. Best to all of us MSer's!"
Feelinggood! February 11, 2017
8 users found this comment helpful.
"My doctor like so many others I'm reading, left it up to me to decide which drug to try first. I have systemic health issues, MS is just one of them on the list. I tried the Avonex pen Monday 12/5/16, and the side effects sent me to the ER yesterday. 5 days of misery. I'm having trouble urinating, complete body muscle pain when I move, dizzy, and non stop random chills sweats. Its intolerable. Here's what you need to know that the drug companies and doctors aren't telling us. There's no drug to counteract the side effects from this drug and it will be in your system for 30days. To hear this from the ER doctor sent me over the edge. I would've NEVER tried this drug had I'd known this. Not to mention the non stop calls from Bio wallgreens."
fed up with avonex+drug cmpny December 9, 2016
3 users found this comment helpful.
"My body couldn't tolerate this medication."
AnttiKokko August 19, 2016
4 users found this comment helpful.
"I have been taking Avonex for over ten years now. I always take it at room temperature, one hour before bed and on Saturday nights so I can relax the next day. I only had flu like symptoms when I first started taking it or if I missed a couple weeks. I take two Motrin when going to bed and never have any issues sleeping. I have had MS for over 20 years now and have found Avonex to work best for me. I have one or two pseudo exacerbations each year but have had no major flares for years now, knocking on wood..."
YoudNeverKnow (taken for 10 years or more) January 21, 2016
10 users found this comment helpful.
"I have been on Avenox for about 2 years now and had no relapses. When I started the medication I had horrible side effects. I almost changed the medication, but thank god it got better with time. What I like about Avenox is that it is only once a week, because I'm afraid of needles."
safy4236 April 26, 2015
13 users found this comment helpful.
"I was initially terrified about the injections, but from my first onwards they have proved to be no trial at all. The delivery method is amazing. I never thought I'd say this, but I even look forward to them, knowing that I'm doing something to help myself. I now truly believe that Avonex is helping. My symptoms have lessened since starting it only three months ago. I hope things continue this way and also hope everyone out there with Multiple Sclerosis finds a similarly effective treatment."
Sweetcorn (taken for 1 to 6 months) May 30, 2014
29 users found this comment helpful.
"I have been on Avonex for about 5 years and have had no relapses. Have had Multiple Sclerosis for 14 years. Great to have 1 injection a week rather than 3 with Rebif, which I was on before or Copaxone everyday. The only drawback is the headache & tiredness felt the day after. These symptoms have not improved at all for 5 years. Starting having spasm attacks at night recently so might change to another medicine. Very effective medicine though, never had any relapses and that's the most important thing!"
Nury (taken for 5 to 10 years) March 29, 2014
25 users found this comment helpful.
"I had my first shot yesterday at 15:00 and had body pain and shivers at 19:00, but no side effects at all this morning. I've been diagnosed in 2007 and dreaded interferon side effects and now, to my great surprise none whatsoever! In South Africa Avonex give great support, they have Avonex MS nurses who assist with the first 3 shots so no worries on the injection either. Overall I am elated this morning!"
Cilna February 7, 2014
20 users found this comment helpful.
"I HAVE FOUND THE INPUT YOU GUYS HAVE GIVEN TO BE EXTREMELY HELPFUL! I was diagnosed Dec of 2012. I have been on this medicine for about 10 months. I have had symptoms for years before seeing a neurologist. Aside from the side effects that everyone has mentioned, I have been doing great! Now 24, I am in the free medication program, which is a blessing! Hopefully it works as well for me as it had for all of you that has shared. Stay strong in your journey!"
Franfletch13 (taken for 6 months to 1 year) January 6, 2014
19 users found this comment helpful.
"Avonex has been a God send to me. I was diagnosed in 95 after experiencing several bad attacks one of which required hospitalization. Started Avonex in June 96 one month after it came to market. Got some side effects early on (mainly fatigue) but they soon went away. I no longer have any side effects, don't even premedicate. The injections are little more than a minor inconvenience . More importantly I have remained stable with no attacks. I did experience some fatigue when starting to use the the prefilled syringe. I quickly went back to original powdered form and remain on it to this day. I probably could have adjusted to the prefilled syringe but choose not do do so. I expect to continue with the Avonex injections unless it stops working, I develop bad side effects, or a cure is found. All unlikely scenarios at this point. I expect to be on it for life."
Avonexveteran (taken for 10 years or more) April 17, 2013
32 users found this comment helpful.
"I was on it for 18 months. It was like taking a shot of the flu every week. The side effects never got better. After massive amounts of research, I finally went to supplements, healthy eating, mindfulness, taking toxins out of my daily life, exercise and of course prayer. I still live with my MS symptoms, but, I will work out at the gym, I will ride my bike 100 miles this week and continue working productively. Don't ever give up!"
joesal6 (taken for 1 to 2 years) December 21, 2012
37 users found this comment helpful.
"I started Avonex about 6 months after diagnosis. I got terribly sick after injecting. It was like coming down with the flu once a week. I felt feverish and painfully achy. I took naproxen and that helped. Later on I asked my neurologist for Vicodin to help out with the achy pain. Together the medicines helped the side effects. I never miss a week and as I injected more and more, the side effects have lessened to the point that with Vicodin I can work well on my injection days. I cannot sleep thru the night on an injection. I sleep poorly and wake up in pain several times. I have not had a relapse in five years on Avonex though my balance and leg have slowly worsened somewhat. I still work my feet full time."
Eugene Orygun (taken for 5 to 10 years) December 17, 2012
23 users found this comment helpful.
"The flu like symptoms are horrible. I was told to take Tylenol night time before I took the shot. I did and it seems to help with the effects of the shot."
Anonymous October 14, 2012
13 users found this comment helpful.
"I was responsible for my insurance deductible, but the insurance covered the rest. This once a week medication is very convenient, and I would recommend it. After the first few injections I had the chills and flu like symptoms, and the symptoms decreased as time went on. After the initial few issues, I injected weekly without symptoms. "
Anonymous (taken for 5 to 10 years) August 7, 2012
15 users found this comment helpful.
"I have been taking Avonex for close to 16 years and my biggest fear in the world is losing access to it. I started on Betaseron but had to stop because of injection site reactions and severe flu symptoms. I had been through everything. Complete invalidity, lying in a hospital bed to basically healthy with no noticeable symptoms at all. But since being on the Avonex, I have only very minor exacerbations , less than one per year. In the last 10+ years, I have not missed any work or cancelled any vacations for MS issues. My only problem is the cost."
Anonymous (taken for 10 years or more) July 11, 2012
31 users found this comment helpful.
"I've only been on Avonex for 2 weeks, but I have not experienced any of the bad side effects that others have mentioned. Had just a slight headache the first time, and nothing today. I do take 2 ibuprofen twice on injection day, along with an Aleve and perhaps 2 liters of water. Despite my initial fears, the injection is painless."
NC Swim February 2, 2012
16 users found this comment helpful.
"I was diagnosed with Multiple Sclerosis 6 years ago. I had/have mild symptoms. I began taking Avonex immediately and have had no significant change in symptoms. I take 1 Aleve an hour before my injection. I chose the last night of my work week so I can't dread "the day." I rotate my injection-left thigh, left hip, right hip, right thigh. I think this will help avoid irritation, though I've never had a problem anyway. My husband gives me my shot so I don't have to look at the needle. I also cough because someone told me you can't tense other muscles during a cough. I relax, and he injects the needle on my second cough. Many times I don't feel a thing. When I do it's minimal. Hip shots are the easiest. I always make sure the Avonex is at room temperature."
Poor seed January 30, 2012
18 users found this comment helpful.
"I recommend Avonex 100%. I have had MS 8 yrs and since have had no new lesions or episodes. The flu-like symptoms were bad for the first 3 or 4 years but have since basically disappeared. Occasionally, I will have headaches the morning after the shot. Hope this helps you in your decision to choose Avonex."
Pammert925 October 26, 2011
24 users found this comment helpful.
"I took Avonez for 3 1/2 years. I experienced the flu-like reaction about 70% of the time. I fell frequently and was extremely depressed. I did the injections in late afternoon (Friday) and was down for 24 -48 hours. My recent MRI showed more MS activity. I am now trying a different medication."
mrsjannie October 23, 2011
17 users found this comment helpful.
"I have been an MS patient since I was 17, I am 29 now, I have been using Avonex for 10 years now and am so happy with the results. I take it before I go to bed at night on a weekend, I also take a couple of Tylenol with codeine (#1) and usually only have a slight headache when I wake up in the morning. I do get a lot of migraines, but who knows if that has anything to do with the medication or the fact that I have Multiple Sclerosis. Avonex has worked wonders for me, I usually only have an MS attack on average every 3 to 4 years and they aren't usually that severe. I have relapsing and remitting MS. I would recommend Avonex to anyone who is newly diagnosed. It has changed my life."
Anonymous June 28, 2011
30 users found this comment helpful.
"I have been on Avonex for 1 month. I chose it due to the injections once a week. I do not even feel the needle or medication go in. I do ice the area well for 3 minutes and make sure the alcohol dries completely before injecting with the smaller needle. Each week the side effects have been easier but they are still quite strong. I do sleep 8 hours after the injection but wake feeling like I did not sleep at all and like I was run over by a truck until about 20 hours after the injection. It has taken 3 days to get my energy back so far. However I do notice that my Multiple Sclerosis symptoms have improved and I have had feeling in my left foot for the first time since my first attack 3 months ago so that makes it worth sticking with for now."
MaryMichigan June 17, 2011
14 users found this comment helpful.
"While the Avonex was extremely effective on the lesions (they became smaller and some actually disappeared!). However, the side effects were severe. It literally took me out for 3 days (totally) it took about 2 more days to do anything above the bare minimum i.e. go to work, come home, eat and sleep, and I had about a day and a half to get everything else done such as grocery shopping and mowing the yard and taking out the garbage. Let alone housekeeping. I finally just switched to Copaxone due to anxiety over injecting the drug with such a large needle and to counteract the side effects of Avonex."
RodneyPotter August 7, 2010
12 users found this comment helpful.
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- Drug class: interferons