Eculizumab User Reviews & Ratings
Brand names: Soliris, Epysqli, Bkemv
Eculizumab has an average rating of 7.8 out of 10 from a total of 8 reviews on Drugs.com. 63% of reviewers reported a positive experience, while 13% reported a negative experience.
| Condition | Avg. Rating | Reviews | Compare |
|---|---|---|---|
| Myasthenia Gravis | 4 reviews for Myasthenia Gravis | 15 medications | |
| Paroxysmal Nocturnal Hemoglobinuria | 3 reviews for Paroxysmal Nocturnal Hemoglobinuria | 8 medications |
- rwm...
- Taken for 1 to 6 months
- December 31, 2024
Eculizumab for Paroxysmal Nocturnal Hemoglobinuria "Immediate improvement after 2 infusions, with an increase in hemoglobin / hematocrit. After vaccines for HepA and HepB 2 weeks prior to receiving treatment, I was given 4 weekly infusions, then 4 bi-weekly infusions which brought all my numbers into normal range. I was moved to treatments every 8 weeks, which continue. First 4 infusions were 600 mg. Infusions following have been 900 mg. I have experienced face flushing and increased energy with some agitation for 1 to 2 days following each infusion. I am retired and treatments are covered by Medicare and my supplemental Blue Cross / Blue Shield policy."
- Tat...
- Taken for 2 to 5 years
- January 7, 2025
For Paroxysmal Nocturnal Hemoglobinuria "I have been taking the medication for 5 years (3 years participated in the study and 2 years on a continuous basis 1/14). I feel good, I can say excellent compared to my condition before taking the medication, blood transfusions for more than 10 years with constant crises and various additional diseases."
Frequently asked questions
- Ano...
- Taken for 5 to 10 years
- July 7, 2025
Eculizumab for Myasthenia Gravis "Soliris has kept me stable for several years. My insurance has been messed up for a couple of months, and I can sure tell I have not had Soliris. I have started having problems with droopy eyes and vision, with my tongue in talking, food swallowing, and balance. Soliris may be a problem getting insurance to pay and going back and forth for treatment, but it is well worth it in results."
- Anonymous
- Taken for 2 to 5 years
- May 23, 2024
Eculizumab for Myasthenia Gravis "I have been taking Soliris for about 5 years. It has been great. I have only had to have pheresis and IVIGs a couple of times since I started it. I have the side effects though. I have a new symptom, which is burning feet. I don't know if it's from the drug or not?"
- Nic...
- Taken for 1 to 6 months
- July 10, 2019
Eculizumab for Myasthenia Gravis "I started taking Soliris in January 2019, and by July 2019, I had throat cancer, which was undetectable by CT scan but was confirmed by tissue biopsy."
- Ano...
- Taken for 1 to 2 years
- April 17, 2025
Eculizumab "Was on clinical trial, improved partially on half dose in the blinded part. Resolved completely during the open label full dosing part. No side effects that I knew about."
- Ano...
- Taken for 1 to 6 months
- May 26, 2025
Eculizumab for Myasthenia Gravis "28 yrs after being diagnosed with MG, Soliris is working better than anything I’ve been on. Double vision is mostly cleared up, and overall weakness is greatly improved. Highly recommend."
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- Drug class: selective immunosuppressants
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Eculizumab for Paroxysmal Nocturnal Hemoglobinuria "This drug is for paroxysmal nocturnal hemoglobinuria (PNH), but the disease is heterogeneous. I feel worse being on it. Doctors push it, patients just do it. It is too much work. I never should have started."