Eculizumab for Paroxysmal Nocturnal Hemoglobinuria User Reviews
Brand names: Soliris, Epysqli, Bkemv
- rwm...
- Taken for 1 to 6 months
- December 31, 2024
Eculizumab "Immediate improvement after 2 infusions, with an increase in hemoglobin / hematocrit. After vaccines for HepA and HepB 2 weeks prior to receiving treatment, I was given 4 weekly infusions, then 4 bi-weekly infusions which brought all my numbers into normal range. I was moved to treatments every 8 weeks, which continue. First 4 infusions were 600 mg. Infusions following have been 900 mg. I have experienced face flushing and increased energy with some agitation for 1 to 2 days following each infusion. I am retired and treatments are covered by Medicare and my supplemental Blue Cross / Blue Shield policy."
- Tat...
- Taken for 2 to 5 years
- January 7, 2025
"I have been taking the medication for 5 years (3 years participated in the study and 2 years on a continuous basis 1/14). I feel good, I can say excellent compared to my condition before taking the medication, blood transfusions for more than 10 years with constant crises and various additional diseases."
Frequently asked questions
See also:
More about eculizumab
- Check interactions
- Compare alternatives
- Reviews (8)
- Side effects
- Dosage information
- During pregnancy
- Drug class: selective immunosuppressants
- Breastfeeding
- En español
Eculizumab "This drug is for paroxysmal nocturnal hemoglobinuria (PNH), but the disease is heterogeneous. I feel worse being on it. Doctors push it, patients just do it. It is too much work. I never should have started."