Eculizumab for Myasthenia Gravis User Reviews
Brand names: Soliris, Epysqli, Bkemv
- Anonymous
- Taken for 2 to 5 years
- May 23, 2024
"I have been taking Soliris for about 5 years. It has been great. I have only had to have pheresis and IVIGs a couple of times since I started it. I have the side effects though. I have a new symptom, which is burning feet. I don't know if it's from the drug or not?"
- Nic...
- Taken for 1 to 6 months
- July 10, 2019
"I started taking Soliris in January 2019, and by July 2019, I had throat cancer, which was undetectable by CT scan but was confirmed by tissue biopsy."
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- Ano...
- Taken for 1 to 6 months
- May 26, 2025
"28 yrs after being diagnosed with MG, Soliris is working better than anything I’ve been on. Double vision is mostly cleared up, and overall weakness is greatly improved. Highly recommend."
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"Soliris has kept me stable for several years. My insurance has been messed up for a couple of months, and I can sure tell I have not had Soliris. I have started having problems with droopy eyes and vision, with my tongue in talking, food swallowing, and balance. Soliris may be a problem getting insurance to pay and going back and forth for treatment, but it is well worth it in results."