Carbamazepine for Epilepsy User Reviews (Page 3)
Brand names: Tegretol, Tegretol XR, Carbatrol, Equetro, Epitol
Reviews for Carbamazepine
- mid...
- September 23, 2015
Carbamazepine "A pharmacy replaced Carbamazepine with Epitol, it did NOT control my seizures. I was fearful of going out, for my seizures were not controlled. I got my Carbamazepine back, and my seizures are totally controlled. It is an ineffective drug."
- Ayl...
- Taken for 2 to 5 years
- August 13, 2025
Carbamazepine "Epilepsy is genetic in my family, and I first started having tonic-clonic seizures when I was around 12. I'm 15 now, and am on a 400 mg dose twice a day to control them. It's been working very well and controls the seizures completely. If I forget to take my pills, sometimes I will have breakthrough seizures. They are similar to tonic-clonic ones, except I remain conscious. The main side effects I get from Tegretol are vertigo, nausea, a feeling of unreality/not feeling real, and headaches. These symptoms don't massively impact my day-to-day life though, and overall Tegretol is very effective and works well for me."
- Anonymous
- July 20, 2023
"I was told at 21 years of age, that I would need a seizure med for the rest of my life. Allergic to Dilantin, took phenobarbital for a few years but it depressed me. I have been taking carbamazepine since. I haven't had a seizure in 25+ years. I'm sticking to what works. Don't take it away!"
- Wil...
- February 13, 2013
Carbamazepine "Have been taking for 13 years. Have been seizure-free. It has changed my life. Only side effect I've noticed is a little more tired than normal. Only sometimes. Other than that, good to go!"
- mcl...
- February 6, 2012
"I have been taking this for over 20 years, and I can't remember the last time I wasn't sleepy. This medicine causes extreme fatigue that never goes away."
- Che...
- Taken for 1 to 6 months
- February 5, 2015
Carbamazepine "Been on Tegretol 200 mg twice a day for partial seizures. It's wonderful, it's really helped. I'm down from 10 seizures a day to 8. Have tried everything else, hopefully getting there."
- Anonymous
- December 17, 2010
Carbamazepine "Have been seizure-free for 10 years now, and the feeling is wonderful."
- Anonymous
- Taken for 1 to 6 months
- October 19, 2013
Carbamazepine "This medicine has given nothing but trouble. Headache, feeling sick, and worse of all, I now have a very itchy rash all over my body, which is driving me round the bend."
- xxm...
- May 19, 2008
Carbamazepine "I found ever since I've been on Tegretol, my seizures have stopped."
- vit...
- Taken for 5 to 10 years
- June 2, 2024
Carbamazepine "It's very effective for controlling epilepsy. Have been using it for 9 years."
- cwb...
- May 17, 2009
Carbamazepine "I've been using this for 5 years now, no side effects."
- kay...
- January 27, 2009
Carbamazepine "Tegretol gave me my life back - gave me freedom from tremors and seizures. I am a brain tumor patient."
- gab...
- February 2, 2009
Carbamazepine "I had my last seizure 6 years ago. I take Tegretol and Topamax 100."
- Cha...
- Taken for 10 years or more
- October 2, 2012
Carbamazepine "Carbatrol has helped me tremendously. I have been taking it for about 12 years. All I can say is thanks, Carbatrol!"
- Anonymous
- August 23, 2011
"Had no energy and a lot of side effects listed. My neurologist started taking me off this medicine."
- Ste...
- January 22, 2009
Carbamazepine "I have been on Tegretol for 20 years. I was switched to the Tegretol XR a few years back. I noticed no difference with the medication. Very good medicine with no significant side effects."
- Anonymous
- March 20, 2014
Carbamazepine "It sent my seizures through the roof."
- SUS...
- June 6, 2009
Carbamazepine "Epitol is an okay drug, but like any drug, it has its problems, like no sex drive, aggressive behavior, and mood swings. But if I don't have another seizure, it is worth it, and so far, so good."
- Nam...
- April 6, 2014
Carbamazepine "This is the only medicine I am allergic to. Extreme itching! I couldn't stop taking it too fast. Luckily, it doesn't have a very long half-life."
- Dha...
- Taken for less than 1 month
- May 7, 2017
Carbamazepine "Was only on this 3 weeks. Didn't help much and made me nasty. I would go from normal to telling people off. Even family. For no reason at all."
- Mar...
- Taken for 10 years or more
- July 19, 2024
"I have been on it for 35 years and it works well. I have had epilepsy since I was 12 years old."
- Mom...
- Taken for less than 1 month
- November 9, 2017
Carbamazepine "loss of epilepsy control"
- Deb...
- August 19, 2009
"I took this medicine for twenty-three years. It was great for me. As long as I took it on time, I had no seizures. I have tonic-clonic epilepsy."
- Anonymous
- December 9, 2008
"I have been taking carbamazepine for about 5 years, and it has helped a lot. I didn't have any side effects after the first month of starting it, and it has stopped my seizures."
See also:
Learn more about Epilepsy
Care guides
Symptoms and treatments
More about carbamazepine
- Check interactions
- Compare alternatives
- Pricing & coupons
- Reviews (356)
- Drug images
- Side effects
- Dosage information
- Patient tips
- During pregnancy
- Drug class: dibenzazepine anticonvulsants
- Breastfeeding
- En español
Patient resources
Other brands
Tegretol, Tegretol XR, Carbatrol, Equetro, ... +2 more
Professional resources
- Carbamazepine monograph
- Carbamazepine (FDA)
- Carbamazepine Capsules (FDA)
- Carbamazepine Chewable (FDA)
- Carbamazepine ER (FDA)
- Carbamazepine Oral Suspension (FDA)
Other brands
Tegretol, Carbatrol, Equetro, Epitol, Carnexiv
"I have been epileptic since 18, am now 33. I have been having convulsions and memory loss together with unconsciousness so much that my doctor prescribed lamotrigine 2×100 mg and carbamazepine 200 mg×2. It's not controlling much. I have had tests, but I am unhappy. What do I do?"