Skip to main content

Carbamazepine for Epilepsy User Reviews (Page 3)

Brand names: Tegretol, Tegretol XR, Carbatrol, Equetro, Epitol

Reviews for Carbamazepine

Commonly mentioned side effects
  • Fai...
  • Taken for 10 years or more
  • March 11, 2022

"I have been epileptic since 18, am now 33. I have been having convulsions and memory loss together with unconsciousness so much that my doctor prescribed lamotrigine 2×100 mg and carbamazepine 200 mg×2. It's not controlling much. I have had tests, but I am unhappy. What do I do?"

6 / 10
Was this helpful?YesNo
1 Report
  • mid...
  • September 23, 2015

Carbamazepine "A pharmacy replaced Carbamazepine with Epitol, it did NOT control my seizures. I was fearful of going out, for my seizures were not controlled. I got my Carbamazepine back, and my seizures are totally controlled. It is an ineffective drug."

2 / 10
Was this helpful?YesNo
4 Report
  • Anonymous
  • July 20, 2023

"I was told at 21 years of age, that I would need a seizure med for the rest of my life. Allergic to Dilantin, took phenobarbital for a few years but it depressed me. I have been taking carbamazepine since. I haven't had a seizure in 25+ years. I'm sticking to what works. Don't take it away!"

10 / 10
Was this helpful?YesNo
1 Report
  • Wil...
  • February 13, 2013

Carbamazepine "Have been taking for 13 years. Have been seizure-free. It has changed my life. Only side effect I've noticed is a little more tired than normal. Only sometimes. Other than that, good to go!"

9 / 10
Was this helpful?YesNo
50 Report
  • mcl...
  • February 6, 2012

"I have been taking this for over 20 years, and I can't remember the last time I wasn't sleepy. This medicine causes extreme fatigue that never goes away."

2 / 10
Was this helpful?YesNo
26 Report

Are you taking this medicine?

Your review helps others make informed decisions.
Write a review
  • Che...
  • Taken for 1 to 6 months
  • February 5, 2015

Carbamazepine "Been on Tegretol 200 mg twice a day for partial seizures. It's wonderful, it's really helped. I'm down from 10 seizures a day to 8. Have tried everything else, hopefully getting there."

10 / 10
Was this helpful?YesNo
21 Report
  • Anonymous
  • December 17, 2010

Carbamazepine "Have been seizure-free for 10 years now, and the feeling is wonderful."

9 / 10
Was this helpful?YesNo
25 Report
  • Anonymous
  • Taken for 1 to 6 months
  • October 19, 2013

Carbamazepine "This medicine has given nothing but trouble. Headache, feeling sick, and worse of all, I now have a very itchy rash all over my body, which is driving me round the bend."

1 / 10
Was this helpful?YesNo
20 Report
  • vit...
  • Taken for 5 to 10 years
  • June 2, 2024

Carbamazepine "It's very effective for controlling epilepsy. Have been using it for 9 years."

7 / 10
Was this helpful?YesNo
2 Report
  • xxm...
  • May 19, 2008

Carbamazepine "I found ever since I've been on Tegretol, my seizures have stopped."

10 / 10
Was this helpful?YesNo
20 Report
  • cwb...
  • May 17, 2009

Carbamazepine "I've been using this for 5 years now, no side effects."

9 / 10
Was this helpful?YesNo
14 Report
  • kay...
  • January 27, 2009

Carbamazepine "Tegretol gave me my life back - gave me freedom from tremors and seizures. I am a brain tumor patient."

10 / 10
Was this helpful?YesNo
14 Report
  • gab...
  • February 2, 2009

Carbamazepine "I had my last seizure 6 years ago. I take Tegretol and Topamax 100."

10 / 10
Was this helpful?YesNo
16 Report
  • Cha...
  • Taken for 10 years or more
  • October 2, 2012

Carbamazepine "Carbatrol has helped me tremendously. I have been taking it for about 12 years. All I can say is thanks, Carbatrol!"

10 / 10
Was this helpful?YesNo
11 Report
  • Anonymous
  • August 23, 2011

"Had no energy and a lot of side effects listed. My neurologist started taking me off this medicine."

1 / 10
Was this helpful?YesNo
11 Report
  • Ste...
  • January 22, 2009

Carbamazepine "I have been on Tegretol for 20 years. I was switched to the Tegretol XR a few years back. I noticed no difference with the medication. Very good medicine with no significant side effects."

10 / 10
Was this helpful?YesNo
11 Report
  • Anonymous
  • March 20, 2014

Carbamazepine "It sent my seizures through the roof."

1 / 10
Was this helpful?YesNo
12 Report
  • Mar...
  • Taken for 10 years or more
  • July 19, 2024

"I have been on it for 35 years and it works well. I have had epilepsy since I was 12 years old."

10 / 10
Was this helpful?YesNo
1 Report
  • SUS...
  • June 6, 2009

Carbamazepine "Epitol is an okay drug, but like any drug, it has its problems, like no sex drive, aggressive behavior, and mood swings. But if I don't have another seizure, it is worth it, and so far, so good."

8 / 10
Was this helpful?YesNo
10 Report
  • Nam...
  • April 6, 2014

Carbamazepine "This is the only medicine I am allergic to. Extreme itching! I couldn't stop taking it too fast. Luckily, it doesn't have a very long half-life."

2 / 10
Was this helpful?YesNo
10 Report
  • Dha...
  • Taken for less than 1 month
  • May 7, 2017

Carbamazepine "Was only on this 3 weeks. Didn't help much and made me nasty. I would go from normal to telling people off. Even family. For no reason at all."

1 / 10
Was this helpful?YesNo
7 Report
  • Deb...
  • August 19, 2009

"I took this medicine for twenty-three years. It was great for me. As long as I took it on time, I had no seizures. I have tonic-clonic epilepsy."

10 / 10
Was this helpful?YesNo
4 Report
  • Mom...
  • Taken for less than 1 month
  • November 9, 2017

Carbamazepine "loss of epilepsy control"

1 / 10
Was this helpful?YesNo
3 Report
  • Anonymous
  • December 9, 2008

"I have been taking carbamazepine for about 5 years, and it has helped a lot. I didn't have any side effects after the first month of starting it, and it has stopped my seizures."

10 / 10
Was this helpful?YesNo
4 Report
  • goo...
  • Taken for 10 years or more
  • January 12, 2022

"Put on Tegretol in 1973. Now I can't afford it, and the neuro said just quit taking it from 800 mgs a day to nothing. That doesn't sound right to me."

8 / 10
Was this helpful?YesNo
1 Report

Are you taking this medicine?

Your review helps others make informed decisions.
Write a review
Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.

Learn more about Epilepsy

Care guides

Symptoms and treatments