User Reviews for Capecitabine
Brand names: Xeloda
Capecitabine has an average rating of 6.4 out of 10 from a total of 50 reviews on Drugs.com. 56% of reviewers reported a positive experience, while 31% reported a negative experience.
|Breast Cancer, Metastatic||23 reviews||38 medications|
|Colorectal Cancer||14 reviews||25 medications|
|Breast Cancer||10 reviews||76 medications|
|Pancreatic Cancer Off-label||2 reviews||11 medications|
|Stomach Cancer Off-label||1 reviews||8 medications|
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Reviews for Capecitabine
Xeloda (capecitabine) for Breast Cancer, Metastatic "I have been taking Xeloda 500mg. for approximately 5 months with only a few side effects I am on one week and off the next. I am tired during the week I am on with occasional diarrhea. I have noticed my hair thinning more but not too extreme. I don't have any hand or foot peeling as others do. I sleep really good and my appetite has not been affected. On occasion my gums feel a little tender. The best part is my tumor markers continue to drop in number! This is working for me."
Xeloda (capecitabine) for Breast Cancer, Metastatic "I have advanced breast cancer in treatment. Xeloda has been better than being stuck in the chemo suite at my oncologist's office all the time. I just take the pills and they are pretty easy to take, compared to the infusions. Now I just have to go once a month to get my Taxotere. My nurse also has me putting lots of lotion on my hands and feet to prevent side effects, so far my hands are just dry sometimes. The best part is my hair is coming back. If I'd known this drug was available earlier, I'd have asked for it."
Frequently asked questions
Xeloda (capecitabine) for Colorectal Cancer "Found out I had colon cancer and thought that was the end of me. Xeloda was very easy to take, twice daily for two weeks. One week off with testing. A small amount of tenderness in the mouth was the only problem, and that was minor. Only noticed it when I decided to try one of my diet favorites which is hot sauce."
Xeloda (capecitabine) for Breast Cancer, Metastatic "I will be starting my 4th round next week of Xeloda (generic). I have stage 4 breast cancer that I have been battling for over 6 years. Tumor spread to the liver, some sort of tumors near my kidney pressing my urethra, and pleurisy. I was losing 1 to 2 lbs a day. This is only my third therapy in all those years. My first round was 4,000 mg per day for 14 days. We had to adjust as the pain in my feet became horrific after a week. I am now taking 3,000 mg per day for 7 days on; 7 days off. I am no longer losing weight so we know the xeloda is probably working on the liver. The pleural area is not refilling (had surgery); kidney was saved with stents. Please do not be quick to jump to another drug (only when they stop working)."
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For Breast Cancer, Metastatic "I was diagnosed with liver mets in May this year also have had bone Mets for 5 years all from my breast cancer. So far Capecitbine has worked fantastically I have had 2 scans since starting and both very positive as tumors are shrinking. I feel great. Any side affects are very easy treated."
For Colorectal Cancer "They found a fairly good size tumor in my colon in Dec. 2020. Had it removed on Jan. 26. 2021. All other CT scans, blood checks and urine tests returned negative as did the pathology on the lymph nodes that they sent out after the operation. They have me on Capecitabine for six months as a precautionary measure, the choice to take it was mine. I am on the three week schedule - take medicine for two weeks, off for 1 week. I take 2000 mg with my morning meal and 2000 mg with my evening meal. I am in my second session and have had little or no side effects as of yet. Some upset stomachs and tiredness, thats about it. Just wondering if anyone else is taking this much without having problems? Stay safe and be careful and don' get lax about the covid situation. I just had my first vaccine two weeks ago."
Xeloda (capecitabine) for Colorectal Cancer "My father was diagnosed with stage four colo-rectal cancer one year ago. I'm thankful for Xeloda it has worked in shrinking the tumor on his colon, he has not lost hair, does not vomit or have constant diarrhea, is eating well and can still taste flavors of the food he eats, I thank the God for this. But he does have other symptoms like pain and peeling on his hands and feet, blackness on his hands and bottom of his feet. I do notice he has chills, feels week and disoriented at times, body aches and his hearing is not as good as it was before."
Xeloda (capecitabine) for Breast Cancer, Metastatic "Chemo pill that is so awful!!!! I didn’t have as many side effects taking AC (Adriamycina & Cyclophosphamide) chemo. I do have so many side effects with these awful pills. The thought of enduring 5 more extremely awful months is almost unimaginable."
Xeloda (capecitabine) for Colorectal Cancer "I have been on Xeloda since October 2011 and haven't had any of the side effects listed. I have been able to maintain my appetite and haven't lost my hair. Actually, my hair has thinned just a little, gained a little bit more body and is getting lighter. This has been a very positive experience as far as chemo goes. I definitely will do Xeloda again (If I have to). There is a questionable mass on my lung...surgeon says cancer....oncologist no sure...and it is shrinking. I'm unsure if it is related to the combination medication I was on or Xeloda. I will hopefully determine that with this cycle of Xeloda on its own. "
Xeloda (capecitabine) for Colorectal Cancer "This drug saved my life. It eradicated my tumor and made it possible for me to have a much less extensive surgery than anticipated. I had very few side effects and the ones I did have were easily managed with medicine."
Xeloda (capecitabine) for Breast Cancer "I took it the during the 3rd year after my diagnosis. It worked great for about 11 months and then it didn't. But I was struggling with extreme fatigue before I started taking it and within the first week I felt so much better. Other than fatigue i didn't have any side effects. It was great"
For Breast Cancer, Metastatic "I have been on Capecitabine (Xeloda) for 11 months with minor side effects in the beginning when on higher dose (hand and foot syndrome, rash on chest & back) and really minor now since 1500 MG 2x/day, 1 week on and 1 off (minor cramps, diarrhea). I still put lotion on feet once a day. It took away 2 tumors in my chest (hila) but sadly, I now have a small mass on breast. Triple Neg. is the worst! It will be removed in a week and I am still positive and Oncol. is keeping me on same dose. Don't give up and try to be thankful for the good days and enjoy life, like I am, till the good Lord takes me home."
For Breast Cancer, Metastatic "I have been taking these pills for the past two months...one week on one week off. 500mg per pill. 8 pills per day, four in the morning and four at night and so far this has been a god sent. I have MBC stage 4 as of today I have had no side effects no hair thinning, no diarrhea, no peeling of the hands or feet. I was given the option of chemo infusion but declined as after reading all the side effects I decided not to go that route. I just left my doctors office this afternoon and the news was good. The swelling and open wounds on the breast that had been bleeding profusely has stopped. wounds are healing and some shrinkage of the tumor was seen. I can only tell you that it seems to be working for me."
Xeloda (capecitabine) for Colorectal Cancer "Vietnam combat veteran exposed to Agent Orange - began treatment for large tumor colorectal cancer while undergoing 9 weeks of radiation treatments ( took Xeloda for the 9 week period - eight 500 mg tablets daily). This was followed by 4 months of recovery from radiation. Then 11 hours of surgery during pandemic lockdown in April 2020, followed by an additional 10 months of chemo/infusion treatments (took Xeloda during this 10 month period - same daily dosage). I am now recovering from surgery and treatments and consider myself very fortunate. Thanks to my oncologist, my surgical team and Xeloda!!!!"
For Breast Cancer "I take capecitabine for 14 days with 7 days off. My dosage is 3000mg per day (3 pills in the AM with food, 3 pills in PM with food). Side effects in cycle 1 were very minimal; mild fatigue and nausea that began toward the end of the cycle. Hand/Foot syndrome developed in cycle 2: blistering on fingers, toes, discoloration on fingers, pain on bottom of foot that limited my walking. Side effects in cycle 3 were severe diarrhea and abdominal cramping, in addition to worsening of hand/foot. I am taking a 3 week break from the drug and the dosage will be adjusted in cycle 4."
For Breast Cancer, Metastatic "I began this drug when diagnosed 9 months ago with Stage IV Metastatic CA. I take 4 pills in the a.m. and 3 in the p.m. I began on the 14 days on and 7 days off regime. Went ok with only a little nausea at first, but a few cycles in had severe diarrhea and stomach pain to the point of passing out on the toilet. The next day diarrhea with bloody stools. My oncologist changed the cycle to 1 week on and 1 week off and I have had much less severe side effects. I do get a day or two with a bout of diarrhea and sometimes a day or 2 of foot redness even with using creams faithfully. However, my CT scan confirms my cancer liver spots have decreased and shrunk. My bone spots are healing in places and there are no new areas seen...so far, so good."
For Breast Cancer "I am about to start breast cancer treatment #5 out of 6.. Hooray!!! So far side effects have been very minimal. A very low grade 1 on the hand and foot syndrome (but also contribute that to the job I do, on my feet 8 hours a day, I am a Cashier) no blisters. Digestive the only thing, a bit of stomach cramping. Minimal fatigue, but still able to work 40 hours a week and hike twice a week (on my days off to make sure I don’t over do it on my feet) I am a faithful drinker of water and lotion on my hands and feet. I’m 2 weeks on / one week off 3000mg 3 pills morning 3 pills night.. Hasn’t affect my blood work.. THANKFUL for that.. It pays off that I went into this journey very healthy and young (46) with no other health conditions"
Xeloda (capecitabine) for Colorectal Cancer "I am in my 2nd month of taking xeloda after going through 36 rounds of chemotherapy since 2013. My intake of xeloda is 3 pills every twelve hours for 7 days and off 7 days. The side effect I am experiencing is the discoloration of the inside of my hands and the bottom of my feet, they also tingle and are painful at times. I am often tired and have also had pain in my shoulder and chest. I don't know if this medicine will keep the cancer from coming back, but I'd rather deal with these side effects than the chemo."
Xeloda (capecitabine) for Breast Cancer, Metastatic "I am thankful this drug didn't kill me! After taking this drug for 8 days the side effects started and went from bad to worse...blisters on hands, and hands and feet as well as every fold in my skin turned black and I had severe diahrea, that ended up putting me in the hospital for 6 days. The medicine reacted to my colon and it was wide open, couldn't hold anything down, lost 17 pounds is 7 days, although the weight loss was welcomed, I wouldn't suggest going about it this way. I stuck it out for the full 14 day regime and my doctor believes that with taking the drug for the first cycle hopefully it shrunk some of the tumors which are in my jaw, spine, collar bone and left femur. New treatmen coming after I recover from Xeloda!"
Xeloda (capecitabine) "Very expensive, but worth it! Saved me! 7 pills a day for 14 days, 7 days off, start again. In 2008 I was informed of stage 4 and to get my affairs in order. Radiation, Chemotherapy, PET, MRI’s, X-Ray’s, Blood work, without xeloda I wouldn’t be writing this. Side effects yes but cancer free since November 17, 2008. 1/7/2021"
Xeloda (capecitabine) for Stomach Cancer "My father suffered from CA esophagus stage II A. it was very difficult situation he suffered from..had 13 cm of length in esophagus and after 3 chemotherapy of epirubicin, oxaloplatin and with Xeloda tabs ..it was amazing reduction in size up to 2 cm only..then we had operation and again same back up plan with 3 chemo and xeloda....its almost 3 years and he is safe i m happy ..thank god"
For Colorectal Cancer "Only on my 3rd week of this medicine but finding it far less intrusive than the Folfox (5FU) treatment I had 4 years ago via drip and permanent line, with a pump for 48 hours each treatment. Some thinning of hair, not really noticeable, and lots of my friends have less hair than me anyway! I'm a keen runner and cyclist, and do find that I can't push myself as hard anymore, get very short of breath on up-hills. But at least I'm still able to lead an active lifestyle, hill walking causes no trouble at all. Feel slightly nauseous quite frequently, but not been sick yet, and brush my teeth half a dozen times a day to ensure no soreness (which I had with 5FU). Slight soreness on soles of feet, particularly after long runs or walks."
Xeloda (capecitabine) for Breast Cancer "Xeloda has brought my tm's down slowly but consistently. However, when I changed to the Mylan brand ( insurance made me switch to the Accredo mail order)I had a horrible experience after one cycle. The other products/binders in this brand included lactose and a combination similar to Miralax. I became lactose intolerant and dehydrated due to severe diarrhea. Also had severe myalgia and arthralgia.I am now back on the Teva brand and seem to be doing well."
Xeloda (capecitabine) for Breast Cancer "I have HER2 neu positive and BRCA gene mutation associated with triple breast cancer diagnosis. I’ve been on capecitabine for several months. First series of treatments lasted 2 months before neuropathy and skin peeling began on hands and feet. Mouth sores and acne around mouth area was pretty severe. Stopped treatment for 4 weeks and skin fluffing subsided. Adjusted a different medication I was taking with the capecitabine and started back on treatment. Within 4 weeks hand and feet issues started again. May need to decrease dosage."
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Xeloda (capecitabine) for Colorectal Cancer "I was diagnosed with stage 3 colorectal cancer in January 2020. I under went 6 weeks of Xeloda along with 6 weeks targeted radiation. The combination shrunk my tumour 1.5 inches which was considered a great success for when I had surgery in July of 2020. I had a bit of nausea and was very exhausted. Some tingling in my thumb and fingers. Also had some diarrhea occasionally. My hair has never been healthier .... zero hair loss. At one point I had some mouth tenderness but never open sores. I have recently just finished 4 months of follow up chemo (xeloda)and currently recovering from side effects such as extreme fatigue , muscle aches ,limited nausea and diarrhea. Also I’ve had split and peeling skin on thumbs and fingers all in all my experience with Xeloda has been good. I’ve been told that there is zero sign of any cancer left , CT scan last week will tell the tale. Will know more early January but feeling very optimistic."