Amifampridine for Lambert-Eaton Myasthenic Syndrome User Reviews

Brand names: Firdapse, Ruzurgi

Amifampridine has an average rating of 4.7 out of 10 from a total of 6 reviews for the treatment of Lambert-Eaton Myasthenic Syndrome. 33% of reviewers reported a positive experience, while 50% reported a negative experience.

Amifampridine rating summary

4.7/10 average rating

6 ratings from 6 user reviews.

Compare all 3 medications used in the treatment of Lambert-Eaton Myasthenic Syndrome.

10		33%
9		0%
8		0%
7		0%
6		0%
5		17%
4		0%
3		0%
2		0%
1		50%

Ann
Taken for 6 months to 1 year
March 30, 2020

Firdapse (amifampridine) "I took firdapse for about 9 months and I had so many side effects. I had a pain in my lower back that went from one hip to the other hip. When I got up in the morning, I could barely walk. It took until afternoon for it to go away, if it did then. I had pains in my thighs and upper arms. After I took the medication, it would take 2 hours for it to work and then it would only last an hour. My previous medicine it took 20 minutes for it to take effect and lasted for 4 hours. I would never recommend this medicine. There are other ones out there that are better. My insurance covered it while on it with help from a foundation but when I stopped using it, they no longer covered it."

1 / 10

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4 Report

Sue
Taken for 5 to 10 years
March 30, 2020

Ruzurgi (amifampridine) "I have been on ruzurgi (which use to be called 3,4 DAP) since 2014 and it is a miracle drug. I could barely walk and when I took this drug I was walking nearly normal after 20 minutes. In 2018, Catalyst patented firdapse and we were forced to go on it in Jan 2019. I had so many side effects from firdapse that I never had on ruzurgi. Luckily for me, ruzurgi got approved for children from ages 6-17 and my doctor can now prescribe it off-label. I was never so happy in my life to get back the ruzurgi."

10 / 10

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3 Report

Lois
April 2, 2023

Firdapse (amifampridine) "Much worse side effects than 3,4-diaminopyridine. In addition, it dramatically exacerbated a kidney problem. Plus it does not last the 4 hours 3,4-diaminopyridine and or Ruzurgi lasted. The FDA did monumental damage to the LEMS patients, and the company which produced Firdapse should be sued and the FDA Approval stripped."

1 / 10

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0 Report

Frequently asked questions

Liz
Taken for less than 1 month
August 8, 2019

Firdapse (amifampridine) "Allergic. Definitely not the same as 3,4, DAP\Ruzurgi (which I am not allergic to)."

1 / 10

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6 Report

Sue
Taken for 2 to 5 years
April 29, 2020

Ruzurgi (amifampridine) "For me this drug was like a miracle drug. I could barely walk and after a short time after taking the medicine I walked just about normal."

10 / 10

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3 Report

Lizab
September 30, 2019

"Is Ruzurgi okay to use when pregnant?"

5 / 10

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0 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.