Amifampridine User Reviews & Ratings
Brand names: Firdapse, Ruzurgi
Amifampridine has an average rating of 4.7 out of 10 from a total of 6 reviews on Drugs.com. 33% of reviewers reported a positive experience, while 50% reported a negative experience.
| Condition | Avg. Rating | Reviews | Compare |
|---|---|---|---|
| Lambert-Eaton Myasthenic Syndrome | 6 reviews for Lambert-Eaton Myasthenic Syndrome | 2 medications |
- Sue...
- Taken for 5 to 10 years
- March 30, 2020
Amifampridine for Lambert-Eaton Myasthenic Syndrome "I have been on Ruzurgi (which used to be called 3,4 DAP) since 2014, and it is a miracle drug. I could barely walk, and when I took this drug, I was walking nearly normal after 20 minutes. In 2018, Catalyst patented Firdapse, and we were forced to go on it in January 2019. I had so many side effects from Firdapse that I never had on Ruzurgi. Luckily for me, Ruzurgi got approved for children from ages 6-17, and my doctor can now prescribe it off-label. I was never so happy in my life to get back the Ruzurgi."
- Ann...
- Taken for 6 months to 1 year
- March 30, 2020
Amifampridine for Lambert-Eaton Myasthenic Syndrome "I took Firdapse for about 9 months, and I had so many side effects. I had a pain in my lower back that went from one hip to the other hip. When I got up in the morning, I could barely walk. It took until afternoon for it to go away, if it did then. I had pains in my thighs and upper arms. After I took the medication, it would take 2 hours for it to work, and then it would only last an hour. My previous medicine took 20 minutes for it to take effect and lasted for 4 hours. I would never recommend this medicine. There are other ones out there that are better. My insurance covered it while on it with help from a foundation, but when I stopped using it, they no longer covered it."
See also:
Firdapse
Firdapse (amifampridine phosphate) is an oral, nonspecific, voltage-dependent, potassium (K+) ...
Ozempic
Learn about Ozempic (semaglutide) for type 2 diabetes treatment, weight management, cardiovascular ...
Bloxiverz
Bloxiverz is used for reversal of neuromuscular blockade, urinary retention
Mestinon
Mestinon (pyridostigmine) is used to increase muscle strength in conditions such as myasthenia ...
Regonol
Regonol is used for dysautonomia, myasthenia gravis, nerve agent pretreatment, reversal of ...
Pyridostigmine
Pyridostigmine systemic is used for dysautonomia, myasthenia gravis, nerve agent pretreatment ...
Neostigmine
Neostigmine systemic is used for myasthenia gravis, reversal of neuromuscular blockade, reversal of ...
Frequently asked questions
- What is the difference between Ruzurgi and Firdapse?
- What is Firdapse (amifampridine) used to treat?
- Liz...
- Taken for less than 1 month
- August 8, 2019
Amifampridine for Lambert-Eaton Myasthenic Syndrome "Allergic. Definitely not the same as 3,4-DAP Ruzurgi (which I am not allergic to)."
- Sue...
- Taken for 2 to 5 years
- April 29, 2020
Amifampridine for Lambert-Eaton Myasthenic Syndrome "For me, this drug was like a miracle drug. I could barely walk, and after a short time after taking the medicine, I walked just about normal."
- Liz...
- September 30, 2019
For Lambert-Eaton Myasthenic Syndrome "Is Ruzurgi okay to use when pregnant?"
Are you taking this medicine?
Your review helps others make informed decisions.More about amifampridine
- Check interactions
- Compare alternatives
- Reviews (6)
- Latest FDA alerts (1)
- Side effects
- Dosage information
- During pregnancy
- Drug class: cholinergic muscle stimulants
- Breastfeeding
- En español
Amifampridine for Lambert-Eaton Myasthenic Syndrome "Much worse side effects than 3,4-diaminopyridine. In addition, it dramatically exacerbated a kidney problem. Plus it does not last the 4 hours 3,4-diaminopyridine and/or Ruzurgi lasted. The FDA did monumental damage to the LEMS patients, and the company that produced Firdapse should be sued and the FDA approval stripped."