Skip to main content

Diamox for Hydrocephalus User Reviews

Rating: 5.7

Diamox has an average rating of 5.7 out of 10 from a total of 3 reviews for the treatment of hydrocephalus. 33% of reviewers reported a positive experience, while 33% reported a negative experience.

10
33%
9
0%
8
0%
7
0%
6
0%
5
0%
4
33%
3
33%
2
0%
1
0%
  • Mon...
  • Taken for 1 to 6 months
  • February 12, 2020

"I had to take this medication due to having fluid around the brain. The doctors stated I had swelling behind my eyes, which caused headaches and loss of vision. This medicine was disgusting, to say the least. When I started this medicine, I was 177 lb, I weighed 155 by the time I finished the bottle. I had no appetite, no sex drive, dry mouth, and could only drink water or a juice I found that I liked and could actually taste! Soda tasted like metal. I took this medicine for 4 weeks. In August, I had shunt surgery! That was one of the best decisions of my life. My vision is a lot better, and I’m free to wear whatever I like! Hope you all get better soon! If you have other options other than taking this medicine, by all means, do so! You will be a lot happier and not miserable!!!!"

3 / 10
Was this helpful?YesNo
30 Report
  • Cic...
  • Taken for less than 1 month
  • July 15, 2022

"Suddenly, 2 months ago, I fell down and couldn't move. The day after, I fell down again, went to the emergency with magnetic walking, then couldn't walk at all. I went to another hospital where they prescribed me Diamox 250 for 20 days, magnetic resonance and TAC, and after that, I came to see the doctor again. After the third day of taking Diamox, I could walk again."

10 / 10
Was this helpful?YesNo
1 Report
  • Coy...
  • Taken for 5 to 10 years
  • March 20, 2021

"At first, I was diagnosed with idiopathic intracranial hypotension (IIH) by some neuro. But I was on mega doses at that time. Lost all muscles and any weight that I had. I was 24. Weighed in at 190, male, 6 foot 1. So good build and a good weight. Not no fat like they say that it always causes or vice versa. Or etc. Never had a seizure until that med. I had other problems when I was 16 years old, etc. But I was a lot better from 18 on up. But the only reason to go was a headache, it was a crippling headache that kept me in bed almost all the time, and I saw a neurosurgeon. Went from IIH to constructed hydrocephalus. To the next shunt, I lost 5 to 10 years I don't remember at all. Went crossed-eyed with just one eye. When I was 24-27. Had 20/20. That happened. I couldn't see anything. Everything was seeing 2 or 3 of something. Went on for a year. Ok. I'm done. Have had 7 or 8 surgeries in 4 years, etc. Not counting eye."

4 / 10
Was this helpful?YesNo
1 Report

Are you taking this medicine?

Your review helps others make informed decisions.
Write a review
Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.

Learn more about Hydrocephalus

Care guides

Symptoms and treatments