I just had my second shot and my hands feel like they are going to explode. They are not swollen at all but the pain is unbearable. I don't remember having this bad of a reaction with the first shot. Is this stuff accumlative? Has anyone completed the 2 years of injections and if so, was there a signficant change in bone density? I am lucky since they caught my breast cancer early (I hope) but this pain is unbelievable.
If you haven't already, call your doc and let him know of the reaction you are having to the medication. He/she needs to know of the side effect and your unbearable pain.
Good luck to you,
I agree with Laura about this answer. I tke Forteo shots which are daily not every six months like prolia. It sounds like it could be an allergic reaction of some sort. Forteo is a 26 month program, & I have completed 20 months. After the first 12, they did another DEXA scan, & I had all kinds of new bone bulding. I haven't had a fracture since I started this drug which in itself is a miracle. You may be able to better handle this drug as compared to the prolia. Just a thought... (please read the side effects listed below in this link.)
I only had one shot,and it was exactly 6 months ago. I am about 80% back to myself. I still have some knee pain and occasionally some bone pain. I'm so sorry you are feeling this bad. I went to a pain management doctor who prescribed Garapentin which helped some. I also saw my physical therapist. The bottom line for me is time! I hope you feel better soon.
To be quite honest, after reading about all the side effects in various forums, information leaflets, info I received from my doctor etc. I decided against having the injections. My gastroenterologist also advised me against having them. For me, I drink more milk and have been eating very good healthy bone building veggies and products. No Prolia for me thank you. The best advise I can give to everyone, change your eating habits and excercise, especially the weight bearing ones, walk everyday and stay happy WITHOUT PROLIA.
Good luck everyone.
I got my first Prolia shot in May of this year. About two weeks later, I got pain behind my right knee that hurt so bad I thought I had a blood clot, however, there were no blood clot signs or symptoms. After a week or so, the pain subsided and I thought it was over. Not. My buttocks, my right leg, and my knee hurt so bad I can't stand, I can't sit, I can't lay down. The pain is never ending and nothing seems to help it. I've been awake for days due to this pain. One of my doctors tried acupuncture for the pain but it didn't work, either. This stuff better work. If I don't break a hip and fall in the next few years due to Prolia, then it will all have been worth it.
I got my 1 and only injection in April 2017. I honestly thought I was dying. Head to toe pain, joints, bones and muscle, 2 ear infections and sinus infection. Freezing cold in 90+ degree weather in winter pj's and 2 blankets outside in the heat. Took me at least 20 min to get in & out of my suv. Felt like my hips were dislocating. Ff to March 2018. Still feel like hell. Mostly muscles, elbows, wrists & fingers. I have maybe 2 good days a week. My dr has no answers, loaded me upon vitamins and antidepressants. Says none of her patients have complained of side effects. All I can say is I SHOULD HAVE DONE MY HOMEWORK. God only knows how long I (we) will live with this. I immediately notified dr, manufacturer, & fda. Not that it will do any good. Best of luck to you all.
I have only had the one and only Prolia injection a few years ago my main side effect was sinus problems so no second one for me.
I had to stop the drug. My hair started to grow back and my nails are normal now. It took a year post med. so as long as you are taking the drug, I can’t say when since I had to stop it.
My Dr did not mention side effects. My rash has never completely gone away.
The medication might cause a antigen antibody reaction, which is why I had the rash and itching.
Dr wanted me to try reclast, when I looked up the side effects I was not happy with patient reactions. Many had terrible bone pain. Once this is in your system I doubt you can reverse it but I’m not sure. Not taking the chance
I just read a question a woman asked her doctor as to how long the side effects of her Prolia would last. The answer was “after about 6 months after your last injection, these effects may GRADUALLY decrease over several weeks OR MONTHS”! My doctor tried talking me into Prolia after I refused to take Fosamax!
What happened to “First Do No Harm”? I think I’m going to call my doctor and ask that same question!
I just had my 2nd shot(a few mo ago) after a back sprain. The sprain has not healed & moves down the muscle wall. It has gotten to the point that on some days the muscle locks constricting diaphragm movement resulting in diffulty breathing. I’ve been told that I will need to wait out the six months for the medicine to hopefully purge from my system.
I would strongly encourage women to NOT take the Injections but use an alternative. Also if you have experienced side effects, please let the FDA know. This site provides the link to submit a complaint.
I had three but didn’t have hand pain. Started to lose my hair and my nails became deformed and some fell off. Don’t take it again and call your Dr.
I had plenty of joint pain but not sure if it was drug or arthritis.
Have had three injections... have had the most side effects with the third. I will not be getting anymore! Intestinal problems, worsening Fibromyalgia, increasing blood pressure, muscle and nerve pain, back pain, neck pain ... No MORE!
I'm hoping someone can answer this for me. My Mom, who is pretty healthy, had her first Prolia shot in January. I noticed a hand tremor in February and by April it was worse. Long story short, she was just diagnosed with Parkinson's. She hasn't had another shot (because I told her tremors were a side effect) but a neurologist seems sure it's PD. We have no family history of PD. Has anyone else experienced this? Was it really PD? Did the tremor ever go away? I'm pretty upset so any guidance etc would be so appreciated. Thank you.
Any advice or words of wisdom are welcomed! My mom was recommended Prolia after her breast cancer diagnosis. She took it in August and after a month, she started to feel pain in her neck and upper back. Over the last 2 months it has spread to all her back and legs. Now it is hit to an unbearable level of pain.
Has anyone experienced this level of pain and has it gotten better? If it has, how long did it take and what did you do?
Her medical team is giving her the run around so I am trying to find answers elsewhere. Any input is greatly appreciated!!
- Prolia Information for Consumers
- Prolia Information for Healthcare Professionals (includes dosage details)
- Side Effects of Prolia (detailed)
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