Anyone tried Prolia for osteoporosis? If so, did you have any side effects from it?

I had Prolia injections for 1 year for osteoporosis.
I had no improvement in my Dexa scan numbers.

Both my husband & I are taking Prolia. Both of us having osteoporosis. I have had 6 injections and him 4. Other than having joint pain a few weeks, didn’t really have any other problems. We both are having some back issues not knowing if it is from the injections or just getting older. We have been both active in the past like walking 4 miles a day down to a few miles at best. Can’t help but wonder if our back issues are because of the Prolia. Have a bone density in November should be interesting to see if there is an improvement in the results.

I convinced my doc to take me off Prolia , put me on Actonel. Its a pill , so if you have a reaction , you can stop, not like Prolia. Taking Prolia is scary. You can't just stop Prolia without immediately going on another med. Prolia causes spinal fractures if you just quit it.
I'm back on the Actonel, I'm trying for 6 months, if the bone density get worse , I'll try something else I really don't like injectables.
Good luck
I ended up with severe bone pain, but it looks like it may not be the Prolia that caused it.
Could be reaction to medications I've been on for 20 years. Anticonvulsants , not stopping those.
It seems like lots of arguing to get what you want from docs, but who knows your body better and who has to live in it. So I guess sometimes we just have to research our drugs and be a b*tch when we want different meds

Yes- I can’t walk without the support of a walker because of this drug - I have no thyroid but this was not discussed when Prolia was prescribed - I don’t think I should have been injected with Prolia if I had no thyroid ? I also have ongoing rashes - I’ve never had any rashes my whole life until Prolia - I stopped taking Prolia five years ago and I’m still suffering from side effects - I’ve been told by support groups not to stop taking Prolia otherwise I could have a fracture - luckily for me that hasn’t happened but I’m very careful with everything I do -

I have had 3 injections with no side effects.

I am intrigued with the prenatal vitamins also. Going to check the label. Someone said they were taking 10,000 IU vitamin D. I was told to take 800 IU along with 1200 mg Calcium. 10,000 is a lot. I take Citracal+D3 every day which actually has 1000 IU Vitamin D in two caplets. I only take one because I try to get the other half from food. I'm trying to find good exercises other than walking. I just recently found out I have Osteoporosis in my hips.

For the person who would love to hear the positive results, I have not had any positive results. Bone density increased only a fraction after 4 shots. Side effects are all horrible and after one year since stopping the shot, I still have a few of those horrible side effects. I'm better off with added potassium and prenatal vitamins.

It is frustrating trying to decide whether to risk the side effects. I am also still undecided. I took Prolia in Jan 2024 and am refusing the 2nd shot that is due.I'm not sure if it's the Prolia but I have severe neuropathy from chemo and the muscle spasms were more frequent and intense and unbearable. Like you, the other meds, we don't qualify for because of other health issues.

I recently decided to do the following: I am trying to move slower, daily exercise for osteoporosis, making sure I get enough calcium and other minerals and vitamins needed. I will re-evaluate in 6 months. It's all a risk, whatever we do! Hope you find this forum helpful and wishing you healing.

I bought my prenatals on Amazon. Nature Made, with folic acid and DHA. I take one Sunday, Tuesday, and Thursday. And i still take a reg vitamin daily. I also bought Choline Bitartrate, amazon, and take 1 M, W, F. Also 2 caltrate 600 ea and 1 vitamin D3 10,00 IU daily. I feel 10 to 12 yrs younger.
I now exercise more, stretches (VERY IMPORTANT), and I'm stronger and toned. But yes, I still walk like Frankenstien's monster when I first get out of bed.

hornswoggle, my doctor and I did not know that in 2012! It was NOT in their literature then. In 2019 they were sued and made to place a black box warning on the label stating all the bad side effects.
And to be honest, the two injections I received did not improve my bone density numbers.

Boat load of side effects. Blisters and sores inside my mouth, that didnt go away until 6 mos after stopping the shots. . Raw tongue. No taste buds. Bone pain and cramps. There are more, but you get the idea. I had a total of 4 shots. When it came time for the 5th, i said no more. My dr said she only had 2 patients who had reactions and encouraged me to continue. I said now you have 3 and no more shots. She refused to give me the patch, which worked for many. After my 4 shots, my bone density only improved by 0.04. I started taking prenatal vitamins, and in 6 months my bone density improved by 3.6. Prenatal vitamins are made for the mom and fetus. Lots of everything. There are no children in my future, but this stuff works for me. I have more stamina. I work out and have muscles. Before I could barely move. I'm enjoying my life again. Oh, it took about a year before most of my taste came back. I will never take a shot like that and I recommend to everyone, do not take it! The only end result is big pharma gets wealthier.

It is an injection every six months. With no complications for me