I've had problems with Fosamax and can't take Boniva due to kidney failure. But the Prolia is a 6 month injection or infusion, so I'm concerned about side effects.
Thanks for any input.
Anyone tried Prolia for osteoporosis? If so, did you have any side effects from it?
Question posted by sara12345 on 18 July 2012
Last updated on 25 March 2025
The information on this page reflects personal experiences shared by our community members. It is not reviewed for medical accuracy and should not replace professional medical advice.
100 Answers Page 7
sara12345
6 Oct 2012
Now I am just over 3 weeks after my Prolia injection. NEVER AGAIN. I have jaw pain for the last week, which I initially thought was caused by my CPAP mask, but it doesn't fit tightly at all since I'm using a cloth one. Prolia can cause necrosis of the jaw, meaning dying of the jaw bone which the instructions say can happen spontaneously.
That's on top of my face skin irritation, sores on the outside and inside of my mouth, and big red welts under my two different medical patches when I take them off. These patches are critical to my medical care. Also the tiniest nick of my skin has a strong red ring around it. My skin is just on fire. The difficulty getting urine out is not as big a deal, but means I have to pee a lot more often.
anderpreson
6 Oct 2012
After 3 weeks, I am now having more itching and sores in my mouth along with the joint and bone pain. The digestive problems have increased. I have many long term headaches. When I ask others about reactions, I found one elderly person who is suffering adverse reactions and another who is not. If anyone has found anything that helps alleviate the symptoms, let me know. I am using peroxide and a mouth wash for the mouth sores. I prefer not to take anything for the pain, because it may only make digestive problems worse. I WILL NEVER TAKE ANY MEDICATION AGAIN UNLESS I HAVE RESEARCHED IT. Can you believe the Prolia drug rep actually admitted not knowing about the adverse and long term side effects.
fpp2011
8 Oct 2012
My mother had a parathyroidectomy a few months ago.That tumor was in her body for quite a few years,so she has problems with osteoporosis.Her endocrinologist has told us to take Prolia(because it is tested(!) and effective).
I told my family that we have to wait,first of all because the levels of calcium after the parathyroidectomy have not been stabilιzed yet(that could lead to hypocalcaemia after the first dose,even with an additional dose of calcium)and secondly,because after the removal of such a tumor,her bones will gain 6-7%of their density a year.Moreover she takes calcium and vitamin D.I suggested to wait a few months and then examine the density of her bones.
This has caused major fights with my brothers.They consider that i am talking nonsense and if they tell the doctor such a thing,that would make him nervous and won't take care of our mum anymore.
How is it possible to accept giving her a medicine that was approved two years ago,after a three year experiments and not knowing still yet what are the results
in a long term basis?It's the first medicine of its category that was approved and affects the immune system.That means it opens roads that we are not sure where they are leading to.
I'm trying to gain time.I don't want her to have it... Am I a stubborn who needs to go back and let the endocrinologist give her whatever he thinks right?(By the way we did not ask him to cure her osteoporosis,she was just checking for parathyroids).
Any thought would help.
Thank you in advance.
sara12345
8 Oct 2012
To fpp,
Prolia should be a last resort after first trying other meds on the market far longer, such as Fosamax. Yes, it is important to treat osteoporosis, but don't start with Prolia.
sara12345
9 Oct 2012
To Ander,
When I complained about the mouth sores to my doctor, she suggested gargling with salt water. I took a tiny amount of tea tree oil on a Q-tip to treat sores on both sides of my mouth. It healed them both overnight. Now a few days later, I need to use it again. This amount of sores never happened to me before Prolia.
A friend of mine said that she gargled with a tiny amount of tea tree oil in some water which cleared inside her mouth of sores, but don't know how safe it is. But if you're really suffering, you may want to try it. Just use a tiny amount the first time. I would say to dip the Q-tip into the tea tree oil, then dip the Q-tip into an amount of water. Good luck.
Jo1952
18 Feb 2022
I just got the shot yesterday and my lower jaw muscles pain my body feels so sore and painful. What can we take to help the pain?
TruthSeeker50
17 March 2022
I’m very new to Prolia and aim having some very severe issues. I did not do my research, and I will never make that mistake again.
I got my first injection last April. I started having really bad foot pain, and pain in my ankle. MRI determined there was swelling around the tendons in my right foot. I had injured the foot so I thought that made sense. Then by May it had started in the left foot. I took them at their word that I merely had tendinitis, and if I did everything they told me to do it would get better. By July I had burning behind both knees and in my calves. Still thinking it was tendinitis, I worked harder to rest and continue with wraps, rubs and elevation. By August it did seem to be a bit better so I just went on about my life. In October I got the second shot and suffered bad lower leg pain, but this felt more like bone pain. I called her office and she said it was normal, and to take Tylenol for about a week.
In November I got a UTI, and two strong antibiotics later it was gone. Then a few days later I experienced pain similar to that of a UTI and it traveled to both sides of my lower back. It was intense! From there I had an MRI done and it showed two herniated discs which isn’t uncommon for me as I have degenerative disc disease. By Thanksgiving day I had pain so severe in my upper inner thigh that it physically hurt to walk, and my right leg had gone numb. I was having problems urinating, it just wouldn’t come out. My doctor sent me to my spine surgeon thinking the discs were causing the leg issues and the bladder issue, my spine surgeon didn’t think so and he sent me to the neurologist, the neurologist sent me back to the spine doctor with the results of the nerve muscle conduction test done on my lower legs, feet and lower back. From there I had my gabapentin upped from 900 mg a day to 1,800 mg a day (just in case) and then went in for a lumbar epidural. It did nothing for the legs, and I’m waiting to go for another one. So here I sit, still in agonizing pain, have been on a strong prescription medication since November, and still no answers. My next Prolia injection is April 2022. It’s NOT HAPPENING! I finally started researching when I realized that all the things we thought it could be, wasn’t.
Other things I’ve experienced since the first injection have been a severe rash. The problem with that is that I have Lupus, so that for me isn’t uncommon. It wasn’t like my normal rash and would go away with steroids and then reappear as soon as I was done. This led to four months of steroids.
Sores on my hands
Constant cold/flu like symptoms
Nail beds splitting
Headaches
Hip pain
I’m probably forgetting something, but there’s a lot going on.
Inactive
3 Oct 2012
If anyone is having responses not listed in the side effects you should report them to the FDA hotline at 1-800-332-1088. This is very important for them to keep track of this & put it in the literature for others to know about... Mary32009
sara12345
2 Oct 2012
If you want to give a review of this medication, you can go to drugs A-Z, then go to Prolia, click on one of them, then see on the right side of the page, 2 Reviews or however many. When you click on the reviews, then you can leave your own review. There may an easier way to do this, but I don't know it.
sara12345
2 Oct 2012
To Ander,,, I got a large sheet of paper in fine print which included all the adverse reactions that you are talking about, so I don't understand why the doctors are in denial. It even includes hospitalization. You should be able to get the adverse reactions on-line to show them.
I am putting part of your response (above) in the main answers so that others are more likely to see it. "If anyone has found anything to relieve the reactions, please let me know. Instead of reaching out, the pharmaceutical company and doctor and hospital that administered the shot are in denial and are no help." See below for her reactions.
"It is has been two weeks since the Prolia shot. The itching that was relieved temporarily by steroids is returning. The ribs hurt to touch. The interior of my lower lip has a few sores. The pain in my body is similar to being in a car accident. ... I then deal with extreme exhaustion and increased bone pain in feet and ribs... "
I too was told that none of their patients had had any side effects, but if you're part of the small percentage that do have the side effect, it can be severe. It makes me think that I will NOT chance a second injection of the Prolia which I got 2.5 weeks ago. I wasn't aware that the reactions could be so severe.
My main problem is extreme irritation on my face which is a major problem to wear my CPAP mask which is very important since I have not only obstructive sleep apnea, but central brain sleep apnea where the brain does not tell the muscles to breath--caused by my stroke.
sara12345
2 Oct 2012
To carmen and anderpres,
So sorry to hear about your problems. It may help you to know that the Prolia has a half life of 4 weeks which means that every 4 weeks the side effects are supposed to be cut in half. Of course that wouldn't necessarily correct any problems that have been created. What horror stories from you.
I looked very carefully at the actual users vs. placebo users and there was only a slight increase in the side effects. E.g for musculoskeletal pain, a 0.1% increase with Prolia. And for pain in extremity it is 0.6% higher. And rashes are 0.5% higher.
Your extreme reactions are worrisome. I had my injection finally about 2 weeks ago. I felt an illness all over which was different than anything I could remember in the past which lasted a few days. My urination is extremely slow. My skin is very irritated on my face which is a problem since I'm just starting on a CPAP machine. Otherwise can't really tell anything else yet. May see an even higher cholesterol level compared to my already high level.
Please let me know how your side effects progress. I hope that they can be relieved soon!
Sara
sara12345
2 Oct 2012
P.S. I also just read "Serious infections including skin infections: May occur, included those leading to hospitalization... "
anderpreson
2 Oct 2012
It is has been two weeks since the Prolia shot. The itching that was relieved temporarily by steroids is returning. The ribs hurt to touch. The interior of my lower lip has a few sores. The pain in my body is similar to being in a car accident. It is not evident if staying in bed helps; however, I make myself go to church and participate in some events hoping this will help pass time and keep me preoccupied; however, I then deal with extreme exhaustion and increased bone pain in feet and ribs.
If anyone has found anything to relieve the reactions, please let me know. Instead of reaching out, the pharmaceutical company and doctor and hospital that administered the shot are in denial and are no help.
This is something I have never experienced. Just when you think you are better, you are hit with exhaustion or pain in a new muscle or bone area. I still find it hard to believe that folks in the placebo group had nearly the same symptoms. Maybe the studies did not include enough people. Maybe they excluded people with certain symptoms. And then maybe, some of the participants were excluded or ignored when they reported extreme reactions.
sara12345
2 Oct 2012
I put your response below to highlight it for others. I think that the study may well have been accurate, with only a small percentage having reactions. And it does say that the reactions can be so severe that people need to be hospitalized.
solitude66
27 April 2015
Each of those shots are about $1200... or more... Doctors are about making money... very few are about our health... they are the modern drug pushers for the pharmaceutical companies... We need to read and research and ask questions and debate with our doctors...
marilynannn
3 June 2015
I got my bone density test and had great outcome from prolia 6%and7% improvement in my bones .I just took a shot today and my neck is killing me also my head is aching. I have had acne also and I'm 57 joint hurt mostly In my elbows my skin is never clear but using acnes perscription med that helps that also very tired all the time.hope this help someone.
anderpreson
24 July 2015
I read the research. It is evident that people who have the Prolia injection and report severe and similar side effects were excluded from that study. When drug companies conduct or pay for the research, you can predict the research results. What needs to happen is for the medical profession to NOT receive any compensation/reimbursement for prescribing these drugs. I had a specialist who insisted I have an injection similar to Prolia even after I told him about my long list of allergic and severe reactions. I walked out the door of his office and never went back. It seems no one is listening and those who create and prescribe these drugs get richer off destruction of the health of those who seek help and trust them. Too many doctors are intimidated by patients becoming more informed about reactions/side effects.
sara12345
25 July 2015
I wasn't aware of an injection similar to Prolia. Can you tell what it was? My doctor and a doctor for a friend of mine told us that they hadn't had complaints from anyone else. And probably they didn't. But if we're even 1 in 50, then that's a lot of people having horrible effects. Just reading through these Q and A on Prolia, it's clear that a LOT of people are having bad effects. My bad effects appear to be permanent since it has been 3 years after just one injection.
Adul57
15 Oct 2016
I had my first injection of prolia on October 12, 2016
Few days later I have terrible headache, swollen face , trembling in my body . hope it will go away, otherwise it's just not good at all
Adul57
15 Oct 2016
I had my first injection of prolia on October 12, 2016
Few days later I have terrible headache, swollen face , trembling in my body . hope it will go away, otherwise it's just not good at all
sara12345
18 March 2022
I had terrible side effects that lasted 9 years!!! When you see all the complaints about it on this question and many other questions, you take a big chance with Prolia. Instead I have estrogen patches which stop further bone loss. And the bone built back by Prolia is not like your own. It has problems.
anderpreson
1 Oct 2012
My health care professional prescribed the shot and scheduled it at a hospital. It happened so fast, I did not research side effects. When, I awoke the next day, I did not know what was wrong. Since then I have experienced bone, joint and muscle pain, vertigo, sores in my mouth, weakness and dead feeling in my legs, and exhaustion. The itching all over my body came within 48 hours. The hospital and doctor's office told me no one had any reaction. I went to a different doctor and found others have had reactions similar. Both parties knew I have HIGH cholesterol, had diabetes Type II, thyroiditis and thyroid surgery and a poor immune system. The literature states these are reasons NOT to get the shot. Please do your research. I do not want anyone to suffer as I have. I have been told the effects will take 6 months to wear off. It is a long-lasting shot. If anyone knows of anything that will help, let me know. I was given steroids to help with the itching.
aln
29 March 2015
i was fine after my fist 2 shots of Prolia but after the 3rd shot I developed pain in my hips if i walked too far or if i sat in the car for too long when i got up i felt like an old lady ( I'm 49 yrs old ) X Rays showed no arthritis.Then i started getting flu like pains in my hands and my fingers have lost sensation in them and feeling lift headed at times. Sometimes at night my legs and feet tingle. Ive been to the doctor and they've ruled out everything with blood tests and x rays so I can only presume its the Prolia doing this to me. I feel unwell because I'm always in pain. If i take neurofen or panadol it helps and its not bad enough that i can't go to work etc but it is frustrating not knowing if its the Prolia or not so its really good to hear that I'm not the only one with these symptoms.
solitude66
27 April 2015
Doctors are prescribing this medication without informing the patients. of the severe side effects... I personally feel that they are guinea pigging women... I too was prescribed prolia even though I am not a good candidate for it... as I was waiting for my Labs this morning a woman walked in my doctors office who was infused with Prolia a week ago... she was experiencing severe bone pain... She did not do her research and obviously was not informed about the side effects... This is so sad...
sara12345
4 June 2015
I did do my research, and I did experience severe side effects. I could even have managed a hospital stay. But I didn't read the side effects that I've had for almost 3 years after just one injection of Prolia.. I've had skin inflammation and bone pain. Cannot wear a CPAP mask which I need. Cannot pet my cats or it's like they've been in fiberglass, etc. etc.
Joey V
3 Aug 2015
I have found nothing that has help me with the horrible side effects, still suffering and it will 6 mounts on August 23, 2015. My general practitioner suggested that I double up on calcium and vitamin D and to drink shakes high in protein, I started on these supplements about 3 weeks ago. I think they may be helping some, but I am still hurting. Hope this info helps you.
Sandra Maria
9 Jan 2016
I have a friend who was given a Prolia injection a year ago and has been going through hell ever since with awful side effects such as osteonecrosis of the jaw, dead feeling in her legs, pain in arms and legs, loss of hearing, throwing up blood,,, but no one seems able to help her. I'm hoping you feel better now and can let me know what has happened since you wrote this answer in 2012.
sara12345
30 April 2016
To Sandra Marie, I don’t know if you’re directing this to me who has had severe problems since 2012. My problems are exactly as bad as they were back in 2012. They have never gotten any better.
CathOct2966
30 Aug 2023
Thank you so much for this information. I’ve had osteoarthritis for years, but the pain has gotten so bad… now, after a 2 year span, I also have osteoporosis. I take Lyrica, injections via my PM dr., which have helped, but it seems like I have terrible pain every minute. I’m going through permanent disability for this and other serious conditions that make it very difficult to work. I have to wait until JANUARY to see my rheumatologist, who accepts my new heath insurance. My prior rheumatologist wanted to speak to me about the results of the dexascan compared with the one I had 2 years ago. Because my old insurance was no longer valid the office would NO LONGER speak to me. Unbelievable!!! Anyway, thank you for your email. I know what not to take
CathOct2966
30 Aug 2023
Thank you so much for this information. I’ve had osteoarthritis for years, but the pain has gotten so bad… now, after a 2 year span, I also have osteoporosis. I take Lyrica, injections via my PM dr., which have helped, but it seems like I have terrible pain every minute. I’m going through permanent disability for this and other serious conditions that make it very difficult to work. I have to wait until JANUARY to see my rheumatologist, who accepts my new heath insurance. My prior rheumatologist wanted to speak to me about the results of the dexascan compared with the one I had 2 years ago. Because my old insurance was no longer valid the office would NO LONGER speak to me. Unbelievable!!! Anyway, thank you for your email. I know what not to take
carmenmkilleen
27 Sep 2012
I had prolia shot July 20th 2012, everyone is different and will have some effects. In my case, one week later I had to call 911 with chest pains, urination, and rash. Was at the hospital 2 days and they did not know what was wrong with me. That same week the rash had covered my whole body..
Now for 35 days I am in pain in my lower back, bladder, and had urinary infection- I had antibiotics for 30 days 3x different ones. now the infection is not there, but the frequent urination at night wont let me sleep, and when thedy did the urinalisys 3 days ago, the infection was gone, but found traces of blood, now I will have a cytoscopy, never never had infection before the prolia, I am scare because my bladder feels heavy and the pain still there and doctors can not find the cause.. I h ad so many bad things happening to me after prolia, I just want it out of my system now!, it is hard. I am a Real estate broker and I cant even go to the office.
Feel miserable with a lot of changes in my body that I can not deal with.. Please think before getting it. I will keep you informed. God bless all.
MsCarol
5 Aug 2015
Prolia has been recommended for me. But I refused to take it. After reading your article I'm really glad. I feel I made the right decision.
sara12345
6 Aug 2015
Yes, I believe that you did make the right decision. I'm still having significant problems 3 years after I had just one Prolia injection. I wish so much that I never got the injection.
Carolminton
29 Feb 2016
Thank God in Heaven you didn't get the Prolia injection! Wish I had NOT TAKEN Prolia. I had one shot in Dec., 2015. One week later, I had severe pain in my left jaw, neck, shoulders, arms, back, and both legs. Also, have trouble walking, getting in or out of bed or a chair. My hands go numb and tingly a lot, especially when I use them. I can hardly comb my hair or put face makeup on because my hands are so numb. I pray I don't get the jawbone disease that Prolia can cause! This is an AWFUL DRUG! I believe, IT SHOULD BE TAKEN OFF THE MARKET!!
yvonne1123
29 April 2016
After reading so many horrible stories about Prolia I am really scared as I am scheduled to have my 1st shot Tuesday 5-3-2016! I have taken Reclast infusions for the past 7 year's and only had flu type symptoms for a week after my yearly injection. Prior to the Reclast I took Forteo injections daily for 2 year's, I have severe Osteoporosis due to cervical cancer at the age of 35 with a radical hysterectomy, everytime I took calcium supplements I developed kidney stones, stone's were tested at the lab and it seems my body cannot absorb calcium in any form. I was having multiple fractures before treatment. My main concern now is I have Crohn's disease and am immunodeficient, have had 2 colon resections, I weigh only 82 pounds and am under Doctors care monthly. I live alone now and have bone pain now as my last infusion was a year ago March. I have relocated from Connecticut to Florida and I really don't know what to do? :(
sara12345
30 April 2016
To Yvonne,
I don’t know what to tell you. I know that multiple fractures is a big problem for you. Except that you could feel far worse with Prolia. And Prolia will only give you a modest improvement with your bones. Another comment said that she had immune problems and had terrible effects from Prolia. I wish you well with your decision and would like to know what you decide.
Sara
endlessPred
30 July 2012
Sara, when was your last bone density test done? What was the outcome? I am taking continuous prednisone which steals calcium from bones. Also a history of osteoporosis in my family. My teeth are demineralizing and that's not helping either. Starting to crack and break.
This all sounds like a long talk with the nephrologist. That specialist ought to know the road well with what you are dealing with. Hang in there. The process is slow and waiting a bit longer isn't a big difference. I suggest you hold off deciding until you get that opinion. In the mean time be sure you are taking at least 1200 mg calcium with Vit. D3 daily. Chewable is best as pills don't tend to dissolve. Unless you are prohibited from this because of some complication, it does help. So does 1000 or so unit of Vit D daily. Again, if this is ok. Check with your doc office or pharmacy to be sure. if you already are then hang in there a bit longer. Let me know how things are going for you. Karen
sara12345
30 July 2012
Karen,
Thanks for your responses. My last bone density test was last Fall and it wasn't good, but can't tell you the exact results. I've been taking 1000 mg of Vitamin D for the last year and a half and blood tests show both my calcium and Vitamin D are good. I stopped taking calcium because my nephrologist said it was a bit too high. I eat enough calcium to keep it at the right level.
I forgot that my nephrologist had said that Prolia doesn't show a problem to the kidneys right now, but there isn't much of a history with Prolia. I have so much wrong with me and so many doctor appointments that it skipped my mind. I usually see at least two different specialists every week.
I'm more concerned about other side effects with the Prolia which could possibly last a long time since it is a 6 month injection or infusion.
sara12345
30 July 2012
P.S. Are you considering something other than Fosamax since you are having trouble with it? Especially with you needing to be on steroids as well. My gynecologist was in favor of me taking estrogen to help with my bones. Would you consider that? I'm 60 years old myself. So sorry to hear about your bone loss.
Sara
endlessPred
30 July 2012
My rheumy is in charge of this. I only recently connected how I feel with the med. Was on monthly but she switched me to weekly. Definitely does not want long term. I have a ton of stuff going on as well. We watch liver and kidney functions every two or four weeks depending on how I am doing. Liver is stressed and kidneys tend to start to close down when am in a large flareup of the muscle disease. Am doing ok, mostly. Will be talking to her on Tuesday.
Thanks for your kind thoughts. We all have our tough situations here. Helping each other is comforting. Some good friends evolve. I am 62. Dealing with a very crummy disease. Glad to help when I can. Will be interested in what you do. Karen
sara12345
30 July 2012
Karen,
Thanks so much for your thoughts. I would like to keep in touch with how you are doing as well.
I suffer from a full stroke four years ago which caused 24/7 migraines, need 12 hours of sleep since stroke or migraines get terrible, kidney failure, myoclonus, lack of appetite, right sided weakness and other disabilities. Plus have osteroporosis, acid reflux, asthma, fibromyalgia, depression, brain aneurysm, high blood pressure, bletharitis, rosacea and hypothyroidism. Almost all need daily treatments and all need periodic testing. So they keep me busy. Hard to have much of a life.
I do care about what you are going through.
Sara
endlessPred
30 July 2012
I will send you a friend request. Forgive my typos as my hands shake and I am on an iPad to make easier.
Don't you feel sometimes that all you do is take meds all day? Between naps, I mean. lol. You have scary stuff to deal with too. I respect the work you have done to get back from the stroke. Keep on going. It is all we can do. Wishing you a good Sara day! Karen
sara12345
30 July 2012
Thanks so much Karen. You are so understanding. I would love to have you be a friend.
Sara
Trishyme
26 April 2015
At age 65 I had a bone density scan and was diagnosed Smith osteoporosis/ given a prescription for Fosamax. Since I was having dental implants I didn't begin taking Fosamax until Feb. Two days after my second (weekly) dose I had muscle pain on both sides of my neck and my abdominal wall, also both sides. A month later after dose number 6, I had relatively severe muscle pain. Since I could not identify any other cause, I stopped taking Fosamax 3 weeks ago until I see my doctor in May. Sara since your post nearly 3 years ago, how are you doing? I would like to hear from anyone with personal recommendations before I see my doctor in 2 weeks. I am taking calcium and vit D. Recently my calcium lab test was normal and my doctor told me to continue what I am doing. So far I have had no broken bones, but I am concerned about spine and hip fractures. My colo-rectal surgeon told me to just lift weights. He did a total colectomy for ulcerative colitis in 2004 and 2005. So I have an autoimmune disorder. Trish M
sara12345
28 April 2015
It would be my recommendation that you not take any more Fosamax. It can cause serious side effects which can stay with you indefinitely. I think that Consumers Reports got it right that with the minimal benefit from taking it and other medications in the same class as Fosamax, it is not worth the hazards from it. I was fortunate to not have any bad side effects from the Fosamax that I took for 5 years and look what it did for me? I now have osteoporosis--a lot of good it did for me.
Also I would recommend against the Prolia. As you can see a number of women have had terrible side effects from it. It will be 3 years since my one injection in September 2012. And yes, I still have all over skin inflammation which is especially bad on my face and hands. I still cannot pet my cats without feeling like my hands have been in fiberglass. I still am having trouble wearing my CPAP mask because my face reddens from the mask and hurts.
And my bones still hurt from sitting on soft chairs, plus I need padding elsewhere. And there are problems with all of the medications.
My mother had bad osteoporosis and never broke or fractured anything. She died at age 89 from heart disease and strokes. So I'm not going to take any bone medication and will be careful like my mother was. You should find out if it's safe for you to lift weights from a doctor who is familiar with osteoporosis. I see an endocrinologist who pushes the medications, but I won't be swayed. But an internal medicine doctor might also be good, but not a colo-rectal surgeon. Sorry to hear that you have an autoimmune disorder. What does that mean for you?
I'll be interested to hear what you decide to do. Whatever it is, I support your decision even if it's not what I would have done. We all have to listen to ourselves above all else. I am just 2 years younger than you are. So we are about the same age. You take care.
endlessPred
29 July 2012
I hear you loud and clear. I find the weekly alendronate a problem to take as I take it, wait half hour, take thyroid, wait half hour. Gotta sit up when I am tired. I am off and on with it. Just for curiosity I was wondering what you experience. I seem to be knocked out the next day after taking it. Nothing else noticed.
sara12345
30 July 2012
I took the Fosamax for many years (about 7-8 years) and most of the years at the 70mg dose. After my stroke which caused my kidney failure, I had to decrease to 35 mg. For some reason, I only managed to take it about a third of the time after my stroke. I think it was because so often I needed migraine medication before getting up in the morning.
But I never noticed anything wrong from taking it either that day or the next, but you must have a problem with it. Plus, you don't want to take Fosamax more than 5 years due to the slight chance of breaking of the Femur bone I believe. But again, my doctors were so concerned about me breaking my back that they thought that I should keep taking it.
endlessPred
28 July 2012
Sorry no one has answered you. My rheumatologist says she refrains from using the long actting drugs because if there is any negative response or if organs are already challenged, there is no way to counteract it.
Since you are already in that criteria, I would suggest you do not use it. Check with your rheumy and get a better idea. General docs are not as aware.
sara12345
28 July 2012
Thanks for your response. I'm not scheduled until September and need to check with my Nephrologist before doing so. I also hate to have my back bones breaking as the doctors say is likely in my case. I had an endocrinologist recommend it to me. And my internal medicine doctor concurred with the decision. But still thinking about it.
judyhall1227
6 Aug 2015
I have also been on Fosamax and had terrible hip pain with it. I have had three prolia injections so far and my T scores have increased for my back up 10% and my hips 2.3% on each side. I have had no apparent side effects although I will occasionally break out in a small patch of hives which subside within 3 days of outbreak. I recommend you do the shot. I went from osteoporosis to osteopenia so far.
Related topics
boniva, fosamax, osteoporosis, renal failure, side effect, injection, prolia
Further information
Similar questions
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.