I'm diagnosed with bipolar and ptsd - got on Lithium over a month ago and so far so good - however, the dr. added 300 mg of Seroquel xr and I'm having a terrible time with the side effects and I want to stop immediately. Can I just stop taking?
How do I get off Seroquel xr - can't stand side effects?
Question posted by akworley1 on 5 Jan 2012
Last updated on 1 February 2022
The information on this page reflects personal experiences shared by our community members. It is not reviewed for medical accuracy and should not replace professional medical advice.
48 Answers Page 3
Yes wean, but don't cut the dose too quick and too much at a time. Id find a proper wean schedule from your dr.
I was just put on seroquel 150 and lithium 300 four times a day. I was already taking fluoxadine (prozac) to treat mania, anxiety, PTSD. Its super strong and my first morning I was holding onto whatever I could grab from lack of coordination. I'm on day 4 and although not recommended, I take half the setoquel when I get home from work and the other half at bedtime. My mouth is EXTREMELY dry most of the time and I feel vertigo too. I drink tons of water and put table salt directly on my tongue to ease the thirst. I stopped the prozac immediately (20mg pediatric dose) because I read about a severe reaction report between prozac and lithium. I see a noticable drop in manic behavior. Im relaxed most of the time which is unbelievably new to me. Little things that used to race through my mind insecantly have ceased. So I know this works but the lithium and seroquel doses I have are probably too strong.
I'll be calling my psychiatrist tomorrow to ask to have both medications reduced to half. My pharmacist says dry mouth could be dangerous and may be an indicator of overdose so, we will see. Overall, if the results are good, I will continue to treat. I guess I got lucky.
I've been on Seroquel 600mg for 2 years. After gained 50 pounds, lost my confidence, my memory is gone, always tired, sleepy, shaking, pain and even worse, this drug also affects your body so bad that is almost impossible to get pregnant while on it. Asked my doctors if I can get off it and they just keep saying I have to keep on it. Had enough with it and Just suddenly stopped it 5 days ago and so far it has being good. Withdraws are the worse thou. just taking valerian and chamomile tea instead and the difference it makes is unbelievable. I know maybe this was not the right way to do it. But we have to do what we think is best for ourselves.
I keep seeing " seek your doctors help" well in my case I asked to get off and he said you don't need to your doing good. Hell no!! 10 years later I'm on disability due to this drugs damage. If you want to get off seraquel or any psychotropic go on line and find support groups ( not this one! ) drs are terrible at taking people off drugs they always go too fast!!!
You refer to doctors in the plural and use the word always. A few bad doctors shouldn't reflect on the entire medical community. Discouraging a patient from seeing a doctor is unethical and could be extremely dangerous.
I made a big mistake reducing Seroquel without medical supervision it was a disaster; you would think
I'm on seroquel 200mg and seroquel 400mg xr. I feel like a zombie. I take it at night and I just get drowsy and I can't sleep. I want to quit.
From the literature:
"You should not stop using Seroquel suddenly. Stopping suddenly may make your condition worse."
Get a tapering reduction schedule from your health care provider first.
Yes mine did it to me. She said 75-50-25 then off I went off had terrible anxiety and restlessness couldn’t sleep.
Do it very slowly , down to the point of 12.5 mg unit . I did it and was.on it for 10 years .
Has to be a less.dangerous sleep aid.out there .
What dose were you on before the taper? Were you on the XR tablets or the regular release tablets.
I was put on Seroquel for major depression and it caused a psychotic episode and then I was admitted into the hospital for 6 months until they found that Manerix along with Lithium helped me finally.
Get off with the doctors help. Never by yourself! You do not want worse side effects but do call the doctor and tell him you need off it ASAP
This is my first psychotropic and I'm at 100 mg a night, it's only been a week but if I'm not heading right to bed I sleepwalk(actually I do chores and wake up downstairs doing laundry at 2am) I'm way over tired in the mornings and could sleep all day if I let myself and where in the world did this appetite come from!? Gonna call the behavioral health clinic today, best to communicate first with the prescriber and not let it get out of hand. Wish you all the best, I was going to post this as a question but yours is bringing in the same responses I assume I'd get. Thanks.
I am also diagnosed w/ bipolar and have taken Seroquel I also had a bad time w/ the side effects, I just stopped taking and had no problems w/ withdrawals, but everyone is different. How is lithium they wanted to put me on it but I said no way, are there serious side effects?
I was put on ambien for sleep when I was in Rehab 6 months ago. I went to Rehab to get off Benzo's that my Doc prescribed.
I almost died in Rehab and had two seizures because they brought me down too quickly. When I got out I kept taking Ambien until I woke up in the ER as I was found sleep walking naked around my neighborhood.
You would think after all this ENTERTAINMENT that I would not trust my Doctor... not me!!! I gave him another shot. Take this, it works really well, great for sleep.
ENTER SEROQUEL, that was 4 months ago. I have been taking 50-100mg at night. What a horrible drug, I have put on 40 lbs. I feel like the walking dead, I have no desire to do anything. It has become an effort to move, my muscles and bones ache and I shuffle around. I took 50 mg last night, I am stopping today, I just can't live like this.
All of this is Doctor Prescribed. I will never trust a Doctor as long as I live. They just dismiss side effects like your crazy. Wish me luck, I'm going to use the Sauna and light swimming, to come off this crap. God Bless to everyone trying to get off this crap, it's a filthy drug. I will keep you all posted..This is day ONE!!!
DECKO.
Yes I have gained and always hungry, in motivated unless I have a lot of caffeine. Not cool. It does help me sleep but hard to be in sleepy
I've been on Seroquel for 3 months now, and have gained 40 lbs. I HATE IT. It may be doing a good job keeping me stable (Bi-Polar 2) but the side effects are not worth it to me. I recently started having really bad lower back pains that are making the front of my legs ache. Yep, side effect. I am going to P-Doc on Friday and going off of this med ASAP. The only good thing I see about it, is it does help you get rest. He put me on Topamax for the weight gain and I've done nothing but throw up. This is unbelievable. If you can refrain from taking it, I would, it's a NASTY DRUG./
I am presently on seroquil xr 50 mg and I want to get off it. I struggle to get out of bed in the morning and have been losing weight. I am slender to begin with and cannot afford to lose any more weight. Initially it seemed to help my mood but that does not seem to be the case any more. I feel like sleeping my life away. I take Pristiq in the morning and will leave it at that.
I am going on a hiking tour in a few weeks and fear the seroquel will make it difficult.
I have the exact same problem and I take 400 mg. I rake it for sleep. I have severe pain and burning in my calves when I walk some distance
I take 200mg of seroquel, I have been on it for about 2 and half years and I am starting to taper too 100mg. Be honest I don't feel anything really.. I did one night not take it at all and it was crazy.. So I will let everyone know how it goes..
Greetings - a message of hope - good news -
Success story
Positive -
Hi my name is Rob -
My Experiences are not meant to influence others to do is I’ve done but it is a message of hope and the possibilities-
I was on 200mg of Seroquel for 3 years . For sleep - it did give me great sleep - gained 6 lbs - the situation in my life changed - I had lost my parents - so I needed sleep was prescribed Seroquel 200 mg - took it every single night - slept well . (Also while on it - I did notice some extra hairs in the shower drain - but at 57 I’m rare with a full head of thick hair - ) Now I have decided to taper off - dropped from 200 to 25 mg - 3 mg at a time - I figure took it for 3 years almost . Now I wanted off - so after 35 months why rush - I dropped by about 3 mg per night - over a month an 1/2 .
It was a sloppy taper - 6 night s I had slight bed sweats - here an there - NO head ache / NO upset stomach / NO shorten sleep / slept exactly 8 hours every night - now I did use old somas I had one per night with the lowering dose of Seroquel -
Both 100 mg of regular plus 100 mg of X-release - I crushed up the X-R and crushed it with the flat edge of a butter knife - bit off a little more each night and spit it back into the bottle -crushing what I had bitten off - scraped it off my marbel counters into swirling water I had just stired . So the water was moving in the glass - bout shot sized - through it back before it could Congeal as XR does .
Then 55 min later asleep -
Had no negative aspects so far - nothing nada zero - but after reading all this stuff I was scared to death - for a hell that never came - taking my pulse 3 times per day - this is my story - not meant to be instructional in any way - it would have been easy for me to say big wop and not right this - but I’m wrighting this so people can have hope - all people are different - perhaps I’m one of the only luck ones - but you too can be a lucky one . You never know - and I have no doubt those people are truly suffering - that’s who stays up unable to sleep writing their story - MY ONLY ADVICE is you’ve been on it for years - walk off don’t run take your time - if an unfortunate situation has Caused you to stop Suddenly then my heart truly breaks for you because I can imagine how those situations are far different from mine- but never having to endure a sudden stop all at once I can not speak for those situations - plus the old somas could have assisted with easing w/d symptoms - next I will be tapering that pill -soma - and sticking to Melatonin and catnip tea
I am taking seroquel xr for anxiety and depression. Without it, I have hives. I agree it does cause sleepiness. I have found that forcing myself to go for a walk outside at lunch helps to wake me enough to continue to work, but mornings are a struggle to stay awake at work using a computer. I have to take a class next week for work, but am worried that my reactions may be slowed down, as well as retention of material. Because of severe test anxiety, I can's stop or decrease prior to class, which lasts all day. What a dilemma! But, I am also having leg cramps that wake me up at night. Does anyone else have this problem?
I am a massage thereapist and massage will help your anxiety a lot.
I am BP II and this is the worst drug I have ever taken.
I've been on it for 2 months for insomnia.
It gives me anxiety and rapid heart beat and I've gained 25 pounds.
I hate this drug.
They're taking off lithium in 2 days and back on Vslproic acid.
I'm miserable
HELP!!!
you are right, i have been on this for 4 years and i can no longer afford a doctor of the drug, really bad trying to get off this dangerous drug, doctor told me you cant stop taking this. I dont know what i am going to do as it made me gain weight. Only in the american health care system could i have fallen into this trap and now at 60 years old my health because of this drug is in trouble. I have restless legs at night and I really think I may have really high sugar levels now . Almost everything you are going through I am also but now uninsured and either food and rent or sorry medical care.
OMG I am so glad I looked this up. I also have been diagnosed as Bi-polar 2 which I don't think I have but whatever. I have the same effect as you I feel like I took an upper I have total anxiety and my body is slow like I took a tranquilizer but my mind just races... I am going to talk to my doctor ASAP about this. Sorry for the weight gain I don't have that side effect I would no way take it I work to hard to be thin to gain weight over a medication. I will keep you posted!! By the way Doctor put me up to 600 MG... I didn't take it last night for the first time just Melatonin can slept like a baby
!!
I have been on 300 xr seroquel for depression and anxiety for a year and a half. In the last 3 months, i have tapered to 200xr. YES, I DEFINITELY HAVE DEVELOPED BAD LOWER LEG CRAMPS AND CRAMPING IN MY TOES AND FEET TOO. I want to get off of it.
I have been on Seroguel XR for about 3 months, I'm on 800mg and Seroquel is the only drug that I am taking for my bipolar condition. My family and I feel that the drug is working for me; my mood is very stable, far from the manic
episodes that I have experienced in the past. Over time the side effects have lessened. At the present time my side effects are primarily dry mouth and sleeping too much. Without setting an alarm I sleep 10-12 hours a night compared to 7-8 sleep in my adult life. My doctor thinks that my dosage may be adjusted downward in the near future. I hope that this is helpful, good luck, hang in there.
I have been on serequil and then serequil xr still on the xr but down to 100mg want to get off it as it has ruined my short term and long term memory. It also made me gain 100 pounds.
I've been on seroquel for 4 years taking 200mg xr. I sleep 10-12 hours a night. And the mornings are awful. It takes forever to get my head in the game. I want off!! I'm going to talk to my doctor but I think this is a terrible drug!!!
I am on 200 mg at night. It does cause me to be extra sleepy and hard to get going .I am also on 100 mg sertraline during day. I am hungry a lot and gained quite a bit.
Try being on Seroquel for 10 years i was a mental health professional and it ruined my job ; long term effects was on 800 mg now 200 mg include a gradual decline in cognitive function and memory loss: I was brain washed thinking
I was on seroqual for a short period of time as well, but i couldnt handle the sleepyness, i was only on 50 mg and i slept almost all day. I tapered off slowely within two weeks i was completely off. Talk to you Dr, he/she should be the best to recomened how to slowely taper off. Good luck - nena
I had that exact same sleepiness on the 50mg. After 3 weeks I have been tapering off. My doc gave it to me for anxiety and it didn't work. I don't really know why he put me on a med for bipolar just for anxiety. My new doc is adding Cymbalta to my Wellbutrin. It's kinda scary but a lot of people say it is common to take the 2 together. Good luck with your tapering. The only side effect I've had so far is horrendous diarrhea. But at least I can get out of bed now!
My brother was prescribed 300mg for depression now he can't get off and he is way worse... he tried dissing down to 100mg on his own but it's making him sick everyday... not sure if anyone has advice?? Thanks
Sorry
How long were you on it for? How did you taper off? I’m trying to taper for. 25mg now
NOpe you must taper. Or you will have horrible side effects. I did. I was itchy, had more trouble sleeping and lots of other horrible thing. Trust me talk to your doc and taper off.
What's the best way to get off 50 mg of seraquel? My doc doesn't have a clue he says just stop taking it
I've been using seroquel for over 12 years & I have constant sinus trouble every night Can't sleep because my nose is stopped up all the time but yet I can't sleep if I don't take it. I just threw out 5 bottles of that crap. I kept 5 small 25 mg tabs to ween off with. Is this ok?
I've been using seroquel for over 12 years & I have constant sinus trouble every night Can't sleep because my nose is stopped up all the time but yet I can't sleep if I don't take it. I just threw out 5 bottles of that crap. I kept 5 small 25 mg tabs to ween off with. Is this ok?
What kind of withdrawals? How long did it take you to recover? I hope you’re feeling better.
Never take yourself off on your own... Work with your doc
Related topics
seroquel, seroquel xr, sta-d, bipolar disorder, post traumatic stress disorder, lithium, side effect
Further information
Similar questions
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.