I don't care if I have to go to another country for treatment, I'm at wit's end with this burning mouth.
Is there any doctor out there that can treat burning mouth syndrome?
Question posted by Mypurrogative on 10 Aug 2020
Last updated on 25 September 2021
I’ve suffered BMS approximately 10 months. Finally had enough! In the far past I’ve had a steroid “burst” or “run” for bronchitis. It’s given over 6 to 7 days. Usually 10 mg prednisone tablets. 1st day you may be prescribed 7 tablets, 2nd day 6 tablets, 3rd day 5 tablets, 4th day 4 etc.
Now as a retired RN with good relationship with primary physician and a very bad back, I was offered a prescription for a steroid run to have in case of painful inflammation of my back.
Thinking of my BMS I asked to try it for this inflammatory condition. I’ve read and continue to learn about living with a body in an inflammatory state. I‘ve come to know about inflammatory and anti inflammatory foods and lifestyles. Good ( kind of fanatical for me) oral care. I have always thought I did well- 6 mo dental cleaning. I did not floss. But there is a whole upper level of self oral care. Will try to shorten this: Dr said yes to steroid run , still 2 days more (so still early intervention)nothing goes in my mouth that burns. Anti inflammatory foods. Orajel kids tooth paste with fluoride. Gentle bubble gum hint of flavor. Absolutely no burning while brushing unlike Crest sensitive or Sensodine(ouch). Plastic bristle toothpicks. (I even lightly brush off the mint) Yes I’ve gone fanatical. Then brush , including tongue , palate sides ,under tongue. Then floss with those plastic handle things. I do it anytime I eat. Tend to eat a bit less. But a Yeh thing. Also vitamin supplements suggested in my reading.
If you’re tired of it…. try it. Still very early for me but zero Burning mouth so far. Will keep you posted.
Hopefully Mexican food and red wine and cerveza in my future.
I have had BMS for 6 years. It mainly affects the tip of my tongue and the left side of my tongue. I feels like I have canker sores, but I don't. My doctor has prescribed gabapentin 300mg -never tried it and amitriptyline 10mg -just today. Not sure if they work yet, as I am someone who doesn't like to take drugs, but the doc says these are commonly prescribed.
I manage it and get relief by combining a 1 to 1 ratio of liquid lidocaine with liquid Benadryl (1/4 cup to 1/4 cup of each in a little plastic container with lid) and swish about 1-2 TBSP every night in my mouth for 3 to 5 minutes then spit it out. I do this at night when the burning is at its worst and that gives me relief before I go to bed at night, which helps me get to sleep. Just do not swallow the mixture because of the liquid lidocaine. Liquid lidocaine is usually carried by pharmacies, but often you need to ask for it behind the counter. I also suck on Cepacol lozenges during the afternoon if it is bothering me then. This helps numb the burning sensation.
I have found very few doctor's who understand this condition. I have a wonderful Nurse Practitioner who has been a God send! Mostly ENT's treat this .Here are a couple of things to consider.. if you take high blood pressure medication, make sure they are not Ace Inhibitors or AR's. They can cause burning mouth. Check if you have silent reflux.. The acids from your stomach can come up into your mouth and cause burning. Most people don't even know they have this. I have switched to a gluten free diet, I take protonix and pepcid for my reflux. I also use clonazepam , 0.5 mg melted on my tongue as needed. I rinse my mouth with water/hydrogen peroxide or water and baking soda... It alleviates the burn. By doing all of these things I have reduced my pain 85%. I hope this helps! If an underlying cause cannot be found, an oral pathologist may be able to help.
I suffered with BMS for over 3 years and have finally found something that worked. Find a VERY GOOD naturopathic doctor. She put me on a gluten free diet and supplements. The drugs are gone and I have my life back. Good luck and I hope this was helpful.
I have suffered with BMS for 8 years and tried EVERYTHING I could, slowly going insane. I finally found a doctor who prescribed a new drug called Nusynta, an opioid for nerve pain, and it is life changing. Please ask your doctor for it!
Have you tried a mouth rinse with clonazepam? It seemed to help me a bit but not totally. No insurance coverage so it’s 200$ a month or so.
I had a dental bridge and my mouth has not been right since, first was told Dry Mouth Syndrome took all sorts of stuff made it worse, had blood tests tried different toothpastes, then saw an Oral consultant in hospital he said classic symptoms of Burnt Mouth Syndrome, he referred me to Dental Hospital Liverpool they examined me, blood tests, took notes from me, I was diagnosed with Oral Dyseasthesia which is BMS. They said no cure as Nerve Damage, and advised me to see GP to try low dose of anti depressant I don’t think this is the way forward !
In their letter to me it says my Oral Dyseasthesia was initiated by the placement of a dental bridge. I am still trying to combat this daily nightmare writing to people for advice but nobody seems to know. I have permanent numb lips , my palate is awful and mouth too, and tongue is dry, lately it feels like I’ve got lots of salt in my saliva, I would not wish this on anyone. I’ve also put in a complaint to my dentist !
Hi there. BMS - there is no cure, it is not even known why it sometimes suddenly happens. Doctors can treat the symptoms, but NO CURE. There are different medications which help, but you need to find the one that helps you. Mine was Amitriptyline. It became my life line literally. To cut a long story short I started taking five x 10 mg Amitriptyline spread over a day, daily. Whatever medication you take, it takes time to get into your system, so be patient. I had BMS for a number of years, when it hit me first, it was unbelievable. What was this burning, scolding, searing, metallic taste, so powerful. It dominated my life.
Do not add different medications together, unless they are meant to be, or you will not know what is working for you. PLEASE do try AMITRIPTYLINE, keep it to five a day, I took one when I woke up, then two afternoon, and two evening. I found mine started to get worse in the afternoon and evening, oh boy. As, I mentioned, give it a chance, take them for at least ten days and fingers crossed. I do not like to say too much, in case I tempt fate, but touch wood. I now take two in the early evening to keep it at bay. It is life destroying and undescribable for some. Unless, you have had it yourself, like us, they do not know or understand how painful it can be. Good luck.
My thoughts are with you. Kind Regards June
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