My BMS is lowest in morning, escalates throughout the day and then by night or bedtime the pain is at its worst. Consequently, I rarely fall asleep before 3:00 am due to the intensified pain. I keep ice water on my night stand but drinking/sipping water keeps you up all night. Can anyone offer tips or experience on how to sleep when pain is worst at night? Doctors in my state refuse to write for any sleep med (zolpidem or similar) and my insurance would require the doctor to first spend months getting it authorized. I've tried already. Insurance does not want anything controlled to be prescribed and doctors are reluctant for BMS. I guess if you had open heart or brain surgery they might give you something for sleep, if insurance allowed it. Benadryl leaves me lethargic next day. I sleep about 4 hours at most a night for last 7 years now since BMS began. Before BMS I had no problems falling asleep and remaining asleep until morning and did not need any medication or supplement. Thank you for any suggestions that have helped you with sleep. Best to everyone.
Burning Mouth Syndrome - any sleep suggestions?
Question posted by K2Z on 18 July 2021
Last updated on 21 July 2021
I've had BMS for the last 15 years. For sleeping I take 2 , 100MG at bedtime of trazodone. This is the only time I get sleep and relief. I fall asleep the minute my head hits the pillow and sleep like a baby all night. For pain during the day I take 3-200MG of over the counter Ibuprohen. It helps. Hopefully someday they will do more research. Maybe then they could at least find a treatment for it. Sorry for all of you that suffer from this horrible painful disease.
I have tried magic mouthwash, also Dexamethasone, Nystatin, and a formulary from an RX. However, I haven’t heard of lyrica. I am really looking for the root cause to eliminate it but after blood tests and medical visits there is nothing that stands out. So I guess I have primary BMS.
I use a mouth wash containing 2% viscous lidocaine (need a prescription and my script is for 10 bottles at a time, cheaper that way) I mix equal amounts of over the counter Mylanta with the lidocaine. This mouthwash numbs my mouth. I don’t swallow the mouthwash I hold it in my mouth until my mouth is numb then spit it out. Google “magic mouthwash” there are lots of formulas. Some of which include Benadryl and even some steroids. I also am trying Lyrica or pregabalin, suggested not only by my local neurologist but by a Mayo Clinic neurologist consult. The Lyrica makes me very sleepy at night. Good luck.
I accidentally discovered that trazodone, which I was given years ago for mild depression, really helped with sleep. It is generic for Desyrel. I take 1/2 a pill each night i.e. 25 mg, and sleep really well. It is well known as a sleep aid and non addictive I am told. Hope this helps.
I take 2 Benadryl about 45 min. before I go to bed. It knocks me out. I try not to do this every night. I just want to get to sleep as fast as I can. I, too, feel lethargic the next day but I can always switch to Ativan to knock me out. We're all in this together. I could use all the help I can get.
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