... hormone therapy. Since I have read and been told this terrible infliction of pain to your mouth(tongue) 95% in post-menopausal women it makes some sense. Has anyone else been told this?
Burning Mouth Syndrome - I had an Oral Surgeon tell me BMS was caused by your body coming off of...
Question posted by burningtongue3 on 20 Nov 2019
Last updated on 30 May 2023
I think it would be a good idea if we shared what medications we take, as I have already viewed one that read she takes Trazadone and so do I. Has anyone read the side effects of Trazadone? I read that burning of the mouth was a side effect, my Internist told me it probably wasn't. You would think why would would I still take it? I would never sleep without it.
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7 Answers
I'm a 59 year old post menopausal female. My BMS came on suddenly and intermittently maybe 8 to 10 years ago. I would get it for several days about once a month. This went on for a few months and then one month it never went away. I have never been on hormone replacement therapy so that has never been suggested as the cause. I have Fibromyalgia and I believe there's a link there. My primary care physician agrees this could POSSIBLY be the case. He initially prescribed 100 mg Topiramate once daily. It helped for a while (instead of absolutely horrific pain 24/7, I was experiencing pain I could mostly live with as long as I was careful about what I ate, drank, brushed my teeth with, etc.). Eventually my pain increased so he increased my dosage to 100 mg. twice daily. Unfortunately, I now have increased pain again. It's time for another talk. I'm really just so sick of this!
I have fibromyalgia too and definitely think there’s a link. I’ve had low B12 and anemia. Correcting those has helped!
What I have seen in my research is being peri menopausal or post menopausal woman is required. Some sites say age 50, others say 60. Having diabetes or GERD are likely in women with BMS. Women are more likely to develop BMS. Haven't heard anything about HRT being involved.
I never used HRT, but I'm 74, with full blown BMS. Though I suspect I've might have mild form of it since my late 50's or early 60's, but thought it was related to my dental health. Been told it could disappear tomorrow (Ha!) or last for years. No known cure at this time. Hope researchers are working on it. So at this time, it's all on the sufferers to create treatment plans. I was just diagnosed just last Sunday. Hope you're feeling okay.
I had a dental bridge and my mouth has not been right since, first was told Dry Mouth Syndrome took all sorts of stuff made it worse, had blood tests tried different toothpastes, then saw an Oral consultant in hospital he said classic symptoms of Burnt Mouth Syndrome, he referred me to Dental Hospital Liverpool they examined me, blood tests, took notes from me, I was diagnosed with Oral Dyseasthesia which is BMS. They said no cure as Nerve Damage, and advised me to see GP to try low dose of anti depressant I don’t think this is the way forward !
In their letter to me it says my Oral Dyseasthesia was initiated by the placement of a dental bridge. I am still trying to combat this daily nightmare writing to people for advice but nobody seems to know. I have permanent numb lips , my palate is awful and mouth too, and tongue is dry, lately it feels like I’ve got lots of salt in my saliva, I would not wish this on anyone. I’ve also put in a complaint to my dentist !
No. My BMS stems from Sjogrens Syndrome. The best thing I have found to keep it under control is a strict diet eliminating all simple sugars and limiting carbs. My mouth does not get as dry and relieves burning quite a bit. The problem is you have to be diligent. However, after having relief I don't really want to eat the wrong things as the pain makes it really
not worth it
I had tried so many things over the last 3 yrs. and no results. I have gone to Drs. At USC and UCLA—and dentists. There is no cure and because it is rare there is not, if any research! I cannot take the prescription drugs as I have terrible side effects—-like sleeping all the time And alwAys dizzy! Just cannot function. They call it a Cronin disease. I have tried ever over counter mouth wash and toothpaste. I coat my mouth with olive oil at night. Only relief is gum and lozenges . Always have them in my mouth. I am thinking about acupuncture in my mouth but what I have read it hasn’t work for anyone? You have to have at least six treatments over a period of 6 weeks. It would be very difficult to do this as I live 6 hrs away from UCLA but I am willing to try. Has anyone had good results??? It drives a person to the brink—-I am 75 year old woman and have had no dental work or hormone therapy.
Just woke up one morning to that horrible taste in my mouth! My saliva is thick and food sticks to my teeth. Need to brush them after eating anything. Always picking my teeth. Help—cw
Have you tried Pilocarpine or Cevimeline for dry mouth?
I've been taking trazodone for 8 years now, and never had this problem for sleep have you tried seroquel?
Have you ever looked up the side effects for trazodone? BMS is a side effect, I asked my Internist and he said he didn't think that it was the trazodone but if you and I are taking trazodone and both have BMS?? I have taken Seroquel and that was before my BMS but it made me put on weight.
I am on trazodone as well, I have tried Seroquel and it seemed that I put on weight and my Dr. switched me to the trazodone. But it has been since then, that I have had my tongue problem.
It's now been three years and my tongue is a red hot mess. My only solace is that after many sleep meds. taken before bed I can sleep 8 hours. I don't wake up groggy but as soon as I'm up I realize my burning tongue didn't magically disappear overnight! I have come to the realization until there's a cure I will have to endure this agonizing pain!! It's a drag but it's not cancer! (at least I haven't been told so). The many doctors I've seen for this horrible malady kinda look at me as if I might be exaggerating! But you can see the flora on my tongue is blistered, swollen and the crevices are so deep!
It's now been three years and my tongue is a red hot mess. My only solace is that after many sleep meds. taken before bed I can sleep 8 hours. I don't wake up groggy but as soon as I'm up I realize my burning tongue didn't magically disappear overnight! I have come to the realization until there's a cure I will have to endure this agonizing pain!! It's a drag but it's not cancer! (at least I haven't been told so). The many doctors I've seen for this horrible malady kinda look at me as if I might be exaggerating! But you can see the flora on my tongue is blistered, swollen and the crevices are so deep!
I haven't taken any hormone therapy in over 10 years and I have BMS. Mine came on after dental work was done.
I thought this was a support group? No one according to the FDA or the AMA has proven where for sure BMS comes from. I am a 64 year old woman who has not had hormone therapy in 8 years, I'm just sharing with the group what I was told. This is a sensitive topic please try not to be so randomly harsh.
I didn't think I was being harsh, I was just saying when mine started. I'm 64 also and have had this 3 years, I take Neurontin, Xanax, and Benadryl the combination seems to help when it comes on stronger than normal.
Maybe I'm overly sensitive to this new forum, I've never shared my feelings publicly, so I'm sorry.
I have never had any inclination that BMS could be caused by a dental procedure. I have ever only had fillings, cleanings, and recently a wisdom tooth pulled. But my pain came on Dec. 2017. And I've gone to the same dentist for decades. He seemed to not know anything about BMS! Very peculiar... Anyway thanks for writing back.
Mine did too and an Oral Consultant said it was initiated by placement of a dental bridge ? Even though dentist denies this ? It’s a daily nightmare I’ve tried lots of things I need to find a toothpaste that doesn’t make it worse. I was advised to go on anti depressants with it being Nerve Damage there is no cure, they say anti depressants alter your brain pattern which sometimes helps ?
Hi Terry, that's what happened to me!
Still have it on one side of tongue.
How about you??
Related topics
pain, burning mouth syndrome, burning, mouth, tongue, hormone, syndrome, burning mouth, therapy, oral, hormones
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