... without treatment? I had a benign cyst removed from my throat 7 years ago and this triggered my burning tongue syndrome. What hell! I've been to countless dentists, ENTS, oral surgeons, GPs and NONE of them know what to do. I've had my teeth ground-down, capped and night guarded, all to no avail. This site helps me feel I'm not so alone and suffering in silence. I can't stand to think I will live with this the rest of my life. Is it possible for it to just dissappear and resolve on its own? Thanks all
Gracious I wish I had an answer for you, then perhaps I'd have one for me too. I guess you have googled all the places and tried all of their recommendations? I have a problem with the roof of my mouth, been to dentists, oral surgeons and ENTs and they tell me there is nothing wrong. I know what you mean about why and when will it go away. I hate to think I have to chew gum the rest of my life to live with this problem. Are you taking any anxiety medications? I'm here if you want to talk. Judy
Sorry to join in however I have developed a sore tongue that hurts and burns whenever I have something fizzy, spicy, cold. Very aggrevating. Been getting worse over time. I frequently get thrush and treating for that makes my tongue go crazy with burning. The tongue has crevices and sometimes bleeds a bit in the very deep ones. Is this anything like what you two suffer from or did I get something new? I seem to get lots of new ailments. When looked at they suggest not enough folic acid, from mouth breathing at night. Oxygen drying out the mouth and cracking the tongue from the concentrator. Lots of ideas but no remedies. What do you think?
Gonzo Jen, I have suffered with severe pain for 10years and I think I could write a very long book on this hideous condition. The only thing that has actually helped (not cured) is surgery that took a small amount of my skull. to sever the glossopangneal nerve and part of the vagus nerve. Very difficute to recover. Then I discovered Amitipoline on this site so asked my doctor for it and after 4weeks I had very noticeful relief. I have been on it for about 5 months and have very little pain. I'm wishing you the best of hope and God's help.
Ugh, this medical problem is so annoying. I've been to the dentist, an ENT and my primary care. The ENT gave up. The dentist prescribed a mouth swish anti depressant that was supposed to reset the nerves. I did it for about 1 week and was so tired and emotional all the time from the side effects, I finally stopped with no improvement. She also gave up saying some people just have it and there is no cure. The primary care doc just gave me elavil to try (it's supposed to help BMS) and after the first night the side effects are I'm depressed, irritable, agitated, and can't seem to keep my eyes opened.
The ENT doc said just about anything you try has worse side effects then the BMS, which I'm about to agree with. I haven't been able to find any stories where people have gotten better. My sister said, "who spends time on the internet when they are healed? It's only the people who are searching for a cure that post online." I think she may have a point. It's just so frustrating feeling like you just ate a pepper or someone just slid sandpaper down your tongue!
Hi gonzo jen - Good question - has anyone found their BMS just disappear or has anyone found an answer to this syndrome. As some sufferers have found - amitriptyline does help keep it calm. I take amitriptyline and it helps immensley, although at times, like now my tongue and lips feel like burning chillies, but it really is my only answer at the moment. Unfortunately when my BMS is playing up it also makes me irritable and snappy, I can't help it and prefer just to be on my own. Sweet things helps it go away for a short while but of course no good for the waiste line. I could not go in for any op or teeth ground down, because I really dont think that it will help. Mine just happened out of the blue and to carry on like this I dont like to think about it. The other thing that helps me for a short while, again not really good for the gums, is that I brush my teeth, gums, tongue so hard that they tingle and it outweighs the burning sensations for short while.
We all communicate on this forum hoping that one day there may be an answer to this BMS. All advice and ideas form anyone is appreciated. Are ther any answers to why this has occurred. Good Luck June
For me it started six months after my dentist recommended switching to Sensodyne, which does contain SLS (Sodium Lauryl Sulphate). Switching back to my long-time favorite herbal Thera-Neem toothpaste (no SLS) solved the problem within a few days.
Of course I can't be sure if it was SLS or another ingredient in Sensodyne, but I am definitely not going to try another toothpaste for a while now!
I have finally figured out that I have BMS. I think mine came from a long drawn out amount of dental work last year and this year and changing dentists was not the answer.The most recent dentist was I feel the cause as I ended up losing a good tooth that hed crowned and root canaled. I have had blood tests and see oral specialist. My zinc was low so I have been taking zinc for 2 weeks but still not improvement. The specialist suggested a mouth rinse of tabasco sauce as capsicum has been known to relieve.
My tongue is always finding teeth so they are making me a guard or plate to put over teeth that seem to annoy me. I do not want to take antidepressants
so am hoping it does go away.. it worsens at night and gone are the days of enjoying a wine and chewing gum relieves it in day. I have no trouble at night so I do think its a nerve condition. The only relief I get is putting my tongue on roof of mouth and focusing on leaving it there and it settles down.
I get very irritable and just want time out a lot..
when I had the long drawn out dental prob I was using all sorts of chemical rinses and also sensitive tooth paste so whether it triggered it and I noted when tooth came out... my tonge was burning hot.. so not sure if this was connected to it. but before tooth came out I had the sensation between teeth now its pred on tongue . so if anyone similar let me know
I believe I am in the same boat as everyone in here. Back in January of 2014, I attended a bachelor party and completely lost my voice. I also teach for a living so this was not good. I gradually began to feel a scratchy sensation in my gums and the roof of my mouth whenever speaking (My mouth gets very dry). If I am resting, it's really not an issue. Anyway I thought this was just something to do with a strained voice. When the school year ended, it did not become better. I eventually saw my general practitioner, two ENT's, my dentist, an oral surgeon, and had an endoscopy through a gastroenterologist. Luckily, my vocal cords are fine and well but they did say I may have GERD and prescribed me omeprazole 40 mg. It stopped my acid reflux but did not relieve the symptoms of my mouth. All professionals I saw stated that there were no sores or lesions so there's no infection. I began to think I was going crazy but I knew something was not right. Anyway, I have it narrowed down to dry mouth or Burning Mouth Syndrome. I just began taking Alpha Lipoic Acid so hopefully that helps. Does anyone have symptoms like mine? I feel a scratchiness in the GUMS BEHIND MY UPPER MOLARS, along the inside gums of my upper teeth, and along the roof of my mouth. I wouldn't say it's a burning but more of a dry scratchiness. Thanks for your help.
This is my first birthday with BMS. Blessed to be alive and all. But no one understands "No, not really in the mood to go out and WATCH you all enjoy dinner". Everyone here is right. It's a very lonely & frustrating condition. And none of us can really complain out loud because we ar'nt looking for pitty. We want answers! We smile and bear it. I wish you all well. It shouldn't have taken me 4 visits between 3 doctors JUST for a diagnosis. So please, let's all keep posting & pushing for a cure or we won't get answers. Finding this page of posts made me feel better. Thanks all! :)
Have had burning mouth syndrome 2.5 years - tried everything, also two hospitals and no luck
BUT in the last couple of weeks have been using anbesol (has lidocaine ) occasionally, also chew sugar free gum and the thing that has made a BIG improvement is to melt quarter of a disprin (soluble aspirin) on the sore part of my mouth (half the tongue and roof of mouth) 3 or 4 times a day (nowhere near the amount you can use) and after a couple of days it started to feel better - now a week on can't tell you the relief. Good luck, I know how distressing this can be.
Hi, I just wanted to let you all know that I use Biotene Toothpaste & Mouth Rinse, it helps a bit for a little while. I am in so much pain that even a little relief is good. You may want to try it. I also chew Juicy Fruit Gum & spread it over my tongue. That helps a little too. I drink Ice water all the time & like someone else said, when I'm outside I find it doesn't hurt as much. I have noticed that any spicy food at all kills me !!! The Doctor says it's Damaged Nerve Endings but I don't agree ... BUT I really don't know !! I do know it hurts & I'm lost as to how to get rid of it !! It's been 15 Months now & I really don't know !!! I'm willing to try anything at this point !!!
Thanks for sharing your thoughts & ideas ... it helps to know I'm not alone !!
There are days I don't want to get out of bed because as soon as I get up it starts !! I say ... Mine wakes up about 15 minutes after I do !!! Anyone else find that to ??
Thanks & God bless you all !!
Now going on my 8th year. No cure, know one knows how to treat it. Sorry, I hate to be the barrier of bad news. But it gets worse year after year. May God Bless and keep you strong. He is the only way I get through the day. Oh an walking around in my house eating ice chips all day long. Take care and I shall add you to my prayers.
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