... without treatment? I had a benign cyst removed from my throat 7 years ago and this triggered my burning tongue syndrome. What hell! I've been to countless dentists, ENTS, oral surgeons, GPs and NONE of them know what to do. I've had my teeth ground-down, capped and night guarded, all to no avail. This site helps me feel I'm not so alone and suffering in silence. I can't stand to think I will live with this the rest of my life. Is it possible for it to just dissappear and resolve on its own? Thanks all
Burning Mouth Syndrome - I've had BMS for seven years. Has anyone had this go away on its own?
Question posted by gonzo jen on 5 Sep 2013
Last updated on 16 January 2023
I’m so sorry you have suffered with this for so long. I did too…for 15 years. Always searching for help from dozens of doctors and anything new on the internet. One night, I read an interesting article by a doctor in California. She said if doctors took the time to do an oral swab, they would see that BMS is a herpes derivative and VALTREX pills help take the pain away. After 15 years, I took Valtrex and in 5 days, it was GONE. FOR GOOD. I don’t know why more posts don’t talk about this. These pills literally saved my life. No more burning, rancid taste, sleepless nights etc. I pray this post helps others. If it helped me…it could help you, too. Good Luck.
I suffer from trigeminal neuralgia and had gamma knife surgery 5 years ago to kill off the trigeminal nerve. The surgery and the neuralgia are typical triggers of BMS which started about 3 years ago and are a two of the major contributors of BMS. It started with a numbness on the lower right side of my lip, then to the tip of my tongue and now the entire soft palate and my tongue. My neurologist has told me there is no cure but through research I’ve discovered that Baking Soda and water help calm it down. Any toothpaste with tarter control aggravates it so I now only use the baking soda solution. Also, ice cream held in my mouth helps to calm it down. I only get it at night and must stay away from acidic and spicy foods. I hope this helps because I agree, this is awful!
Several people on here have recommended Dexamethasone as being very helpful with BMS. My cardiologist finally prescribed it for me but I am confused as to how to use it. Do I swallow after rinsing with it or spit? Also my druggist put on the bottle "take with food or milk". I am confused. Help.
i’m sorry to hear food aggregates your bms. eating has always made mine go away. the very best thing i’ve found is cbd oil. i put .05 drops twice a day, plus inject b12 shots weekly and try to manage stress. the cbd tincture has given me my life back. find a strong dosage. go to your local health food store and ask the person in supplements for their recommendation for tongue phantom nerve pain. best of luck
I am trying to compile a list of foods that tend to activate BMS. From personal experience, I have found red wine, anything with chocolate and tomatoes to be real killers. Your thoughts on this would be appreciated.
I feel for all of you, besides myself who's suffering from this awful burning mouth! I've been everywhere to everyone, Johns Hopkins, oral surgeons, rheumatologists, neurologists, dentists, periodontists, and no one had really any relief for me. I chew sugarless bubble gum, drink a lot of water, take Zoloft, and was prescribed a drug for dry mouth. I rinse with ACT or Biotene, I take anxiety meds and the highlight of my night is getting so tired so I can sleep. All of this happened when I had a tooth extracted for a dental implant. That was in 2018. I do know that anxiety makes mine worse. I'm glad, too, that I have this site to go to...
I have had BMS for about 3 yrs. At one point, I thought, I had licked it. Three months with no signs of burning (side of tongue) but it came back. This has occurred about three times with the most recent a month ago. Why the BMS goes away for a period of time and then comes back, I have no idea. I also have a horrible metallic taste in my mouth. Unless you have BMS, no one knows how awful it is. Does drinking carbonated beverages and eating chocolate tend to make it worse? Trust me, you are not suffering alone.
I've had it for 15 years and have tried everything. I hate to tell you this. But mine has only gotten worse year after year. I pray for a miracle for you.
I just returned from seeing my ENT physician for another issue and asked him if he knew about BMS. He suggested I try Magic Mouthwash which can be a mixture of different medicines. Has anyone had luck with using this type of medication?
FYI: My health insurance carrier did not pay for it.
Through more investigation I am now assuming the cause of my pain is due to my wisdom teeth extraction which was about 2 years prior to when the pain started. I guess the question is why did I not feel the pain straight after the procedure rather than 2 years later. The pain on my tongue seems to be on my left side which is where one of my back molars were extracted. D did anyone else have their wisdom teeth pulled out and then had pain a year or so later?
I have had (self-diagnosed) BMS since last year (mid 2019). I don’t feel I have as extreme a situation as others are experiencing and I feel so badly for them. Mainly, my tongue burns and I have had one overnight experience of my entire mouth burning unrelentingly. I refuse to accept that prescribed meds are the place to start. I’ve begun by boosting my vitamins which I have been inconsistent with in the past. I will try other non-Rx approaches first. Last week I began taking Goli Apple Cider Vinegar gummies. I take 2 in the morning and 2 in the afternoon when I feel the burning return. I have found a great deal of comfort in these and, no, I am not receiving these free nor am I sponsored by them in any way. It did take a long time to receive the order, but I will definitely be ordering more. While I can’t attest to the inner workings of ACV it does seem to be offering a significant amount of relief thus far. Good luck all.
Is there a significant moment you think may have caused your condition? I was contemplating some of the events which may have caused my pain and one of them was when I had a deep tissue massage in 2009. I remember the massage giving me a headache for weeks. It's it possible that I trapped a nerve somewhere? One nerve is the Vargas nerve, which I believe can cause this issue. One other thing I get is ringing in my left ear which also happens to be the side my mouth and tongue hurts the most. I thought it would be good to share some of this as it might also remind you of an event and help join the dots.
Hi there! So I’m knew to this ailment. Not sure I have it as I haven’t been officially diagnosed. For me, my symptoms began towards the end of June this year. For me I could only describe is as a menthol feeling on my tongue. Today it feels like a slight burning but still mentholated. I will say, I had intense anxiety during the onset of Covid. Mom of a toddler here and my mind has been overwhelmed with keeping my family safe. I have a variety of symptoms leading up to this. Along with the anxiety and stress, gut problems developed in May, i began losing hair. My doctor thought it was thyroid or diabetes problem but all blood work came back normal. I need to confirm if I was tested for Vitamin B levels.
So then June comes around and here comes this weird symptom/menthol sensation on my tongue. Next problems were intense inflammation in the body, just over all aching. And intense low back pain. After seeing the chiropractor religiously, my back is just starting to feel better. However, this tongue thing is still here and as of recent I’ve developed a “nerve pain” in my elbow. I literally feel as if I am falling apart. I’m beginning to think this is a nerve issue maybe brought on by the overwhelming stress. Maybe my body seize up so tightly it’s pinching on nerves.
So now begins my journey. I see my PCP next week, and will get some referrals from there. My chiropractor suggested I get an MRI done. I did a search on YouTube and found a chiropractor who claims to have success curing patients of this by stabilizing the neck with prolotherapy. It is his belief this has something to do with the Vagus Nerve being compressed. He will be my last resort. Lol
Hi all, please check to see if you have an intolerance to fructose. I believe this is what the issue is for me. I'm going to be referred to an allergist/immunologist, I'll see what comes out of it. Thanks
I read about you using CBD oil, I just happen to have purchased it on trial and I put the drops in my morning tea. How do you use it, thanks for the additional info about B 12 and zinc
My tongue was torturing me for over a week this time,
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