Burning Mouth Syndrome - I've had BMS for seven years. Has anyone had this go away on its own?

Hi gonzo jen …..WOW we corresponded back in 2013 maybe even before …. My BMS started maybe 2012 and so far no medical help. I still have BMS and all I can say is that it is Amitriptyline that helps … I have found NOTHING else and it’s been many many years, still continuing. IF … IF there is anyone out there who has an answer or any kind of help, PLEASE let us know … it is a terrible syndrome to live with, Amitriptyline definitely helps me keep it under control.
I am so sorry that you gonzo jen, and many others still suffer. Is there Help out there ?? Regards to all junejoan

Try being tested for the herpes virus. I was tested and found positive for the herpes virus (aka kissing disease) and given valacyclovir which helped immensely.

Hi, started out with COVID-19. After it was healed I had BMS. Over 2 years now. It's awful. It get worse the more I talk. I saw countless natural and typical health care. It sure has been hard on me and my family and me. Also,I have nerve issues in the head are and mouth. I hope you find help. If you do let me know. I will do the same. It is caused by a trauma they say. COVID-19 was a trauma.

I’m so sorry you have suffered with this for so long. I did too…for 15 years. Always searching for help from dozens of doctors and anything new on the internet. One night, I read an interesting article by a doctor in California. She said if doctors took the time to do an oral swab, they would see that BMS is a herpes derivative and VALTREX pills help take the pain away. After 15 years, I took Valtrex and in 5 days, it was GONE. FOR GOOD. I don’t know why more posts don’t talk about this. These pills literally saved my life. No more burning, rancid taste, sleepless nights etc. I pray this post helps others. If it helped me…it could help you, too. Good Luck.

I suffer from trigeminal neuralgia and had gamma knife surgery 5 years ago to kill off the trigeminal nerve. The surgery and the neuralgia are typical triggers of BMS which started about 3 years ago and are a two of the major contributors of BMS. It started with a numbness on the lower right side of my lip, then to the tip of my tongue and now the entire soft palate and my tongue. My neurologist has told me there is no cure but through research I’ve discovered that Baking Soda and water help calm it down. Any toothpaste with tarter control aggravates it so I now only use the baking soda solution. Also, ice cream held in my mouth helps to calm it down. I only get it at night and must stay away from acidic and spicy foods. I hope this helps because I agree, this is awful!

Several people on here have recommended Dexamethasone as being very helpful with BMS. My cardiologist finally prescribed it for me but I am confused as to how to use it. Do I swallow after rinsing with it or spit? Also my druggist put on the bottle "take with food or milk". I am confused. Help.

i’m sorry to hear food aggregates your bms. eating has always made mine go away. the very best thing i’ve found is cbd oil. i put .05 drops twice a day, plus inject b12 shots weekly and try to manage stress. the cbd tincture has given me my life back. find a strong dosage. go to your local health food store and ask the person in supplements for their recommendation for tongue phantom nerve pain. best of luck

I am trying to compile a list of foods that tend to activate BMS. From personal experience, I have found red wine, anything with chocolate and tomatoes to be real killers. Your thoughts on this would be appreciated.

I feel for all of you, besides myself who's suffering from this awful burning mouth! I've been everywhere to everyone, Johns Hopkins, oral surgeons, rheumatologists, neurologists, dentists, periodontists, and no one had really any relief for me. I chew sugarless bubble gum, drink a lot of water, take Zoloft, and was prescribed a drug for dry mouth. I rinse with ACT or Biotene, I take anxiety meds and the highlight of my night is getting so tired so I can sleep. All of this happened when I had a tooth extracted for a dental implant. That was in 2018. I do know that anxiety makes mine worse. I'm glad, too, that I have this site to go to...

I have had BMS for about 3 yrs. At one point, I thought, I had licked it. Three months with no signs of burning (side of tongue) but it came back. This has occurred about three times with the most recent a month ago. Why the BMS goes away for a period of time and then comes back, I have no idea. I also have a horrible metallic taste in my mouth. Unless you have BMS, no one knows how awful it is. Does drinking carbonated beverages and eating chocolate tend to make it worse? Trust me, you are not suffering alone.

I've had it for 15 years and have tried everything. I hate to tell you this. But mine has only gotten worse year after year. I pray for a miracle for you.

I just returned from seeing my ENT physician for another issue and asked him if he knew about BMS. He suggested I try Magic Mouthwash which can be a mixture of different medicines. Has anyone had luck with using this type of medication?

FYI: My health insurance carrier did not pay for it.

Through more investigation I am now assuming the cause of my pain is due to my wisdom teeth extraction which was about 2 years prior to when the pain started. I guess the question is why did I not feel the pain straight after the procedure rather than 2 years later. The pain on my tongue seems to be on my left side which is where one of my back molars were extracted. D did anyone else have their wisdom teeth pulled out and then had pain a year or so later?

I have had (self-diagnosed) BMS since last year (mid 2019). I don’t feel I have as extreme a situation as others are experiencing and I feel so badly for them. Mainly, my tongue burns and I have had one overnight experience of my entire mouth burning unrelentingly. I refuse to accept that prescribed meds are the place to start. I’ve begun by boosting my vitamins which I have been inconsistent with in the past. I will try other non-Rx approaches first. Last week I began taking Goli Apple Cider Vinegar gummies. I take 2 in the morning and 2 in the afternoon when I feel the burning return. I have found a great deal of comfort in these and, no, I am not receiving these free nor am I sponsored by them in any way. It did take a long time to receive the order, but I will definitely be ordering more. While I can’t attest to the inner workings of ACV it does seem to be offering a significant amount of relief thus far. Good luck all.