Have to wean off from Lyrica, experiencing blue moods & depression, will this go once I've tapered?
Question posted by Tee6759 on 27 July 2012
Last updated on 4 August 2012 by ladydragonfly
Hello everyone. Im doing fair. Here is my problem. I had been put on Lyrica for 2 months at 300mg per day. When I went to my PM doctor, he doubled my dose and I was taking it 2x a day. I started having double vision, dizzy, woozy, and felt like I was totally out of control. I told the doctor and they told me I had to wean myself off of it. 2 weeks at one cap per day, then 1 every other day for 1 week. In the meantime, he put me on gabapentin 300mg 3x a day. Ive been experiencing blue moods and my depression is worse. Im wondering if anyone else has ever experienced these symptoms. Im wondering if they'll subside when I finish tapering off the Lyrica. If anyone can help me, Id greatly appreciate it. My fibro is in full flare. Thanks for your help.
Seeking peace, Tee
Added 31 July 2012:
Well everyone, I see my orthopedic surgeon tomorrow. I'm hoping he will do something very soon. Between the frozen shoulder and my fibro flare, I can't take the pain. I've one more week on Lyrica, and then I'm done!!! I really appreciate all the prayers, thoughts, and support shown by everyone. You can't begin to know how important it is to know I can come here and ask for help. So many of you responded and offered encouragement and support. It means a great deal to me to have this support while going thru this headache of changing my meds. I will post tomorrow what happens at the surgeon. Thanks again for all the support. In peace, Tee
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13 Answers
LA
ladydragonfly
4 Aug 2012
Hello Tee! What I am about 2 share w/u is solely based on my own personal experience(s) w/coming off Lyrica. I have lost weight, no longer have blurred vision & have energy once again! However, I was ALREADY taking Neurontin (Gabapentin) 600mg-3 x's daily 4 my Fibro pain, anxiety & depression. I currently went off Zoloft-switching 2 Cymbalta (moods r better-helps Fibro pain ALOT) & I have never felt better. Unfortunately the Fibro pain is daily & sometimes worse than others. But all in all, going off Lyrica was, 4 me, the best decision I've made in a long time. Hope I have helped in some way. B safe! ~Ladydragonfly
Votes: +0
50
505eva
3 Aug 2012
Hi Tee, I see you've had a lot of information about your situation. I 'got off' Lyrica in a month's time. It was rough, but I wanted to get it out of my system. It never helped with the pain. Before I was put on Lyrica, I tried gabapentin twice--never did a bit of good for the pain, and the dizziness and 'creepy feelings' were too much to handle. Yuk! Right now I'm taking LDN (low dose naltrexone). I've been on the 4.5 dose for about 2 1/2 weeks. The jury is still out on this. I'm hoping that it works. I had the 'frozen shoulder' a few years back. I went to PT and it never seemed to help. They'd bring out the boss and try to figure out why I wasn't getting any better. It was probably worse due to the fibro (isn't everything??? ). I kept doing the exercises with the stretchy band they gave me and eventually it got better.
I hope something works for you. People just don't understand what we've got to deal with.
That's all I've got.
Eva
Votes: +1
LI
Lizardoli
31 July 2012
Since I had to wean off a drug called Trazadone, I remember the nightmare it was. The Nuerodoctor told me to stop the drug (nothing about tapering off). It really sucked, My youngest and I were shopping for her school clothes and I got flushed and sat on the floor for awhile, then we made a quick exit from the store because I knew it would trigger a siezure and it did!
Good Luck, but if it remains an issue I would call the doctor for sure. Sometimes I wait too long before I call my doctor and it just makes things that much worse for me!
Votes: +1
BU
butterflylynn
31 July 2012
Hi Tee, Sorry I haven't been on here the last several days. And sorry I have been so slow on the emails.. My son had his heart broken by his first true love with his best friend... So he has been coming over here every night just to try & wrap his head around it all..
But I wanted to make sure to tell you to definately send me an email with what the Dr. says tommorow I sure hope he can help you out. And yes it is amazing how much we have in common. You stay strong you can make it thru this as you are strong but stay positive. Because as a few other members said you can physc yourself out & actually make yourself worse. Take care my friend & I hope to hear from you tommorow.
LG
lgotv
29 July 2012
you already have so many good answers the only thing i can add... lyrica made me so dizzy an upset stomach,,, truly hopeing you have a brighter tomorrow
Votes: +2
IN
Inactive
29 July 2012
Hi Tee, sorry to hear you are still having so many problems. We haven't had rain since the first of June & the dryer air was helping my fibro quite a bit. Now that it's rained & the humidity is back agin, well you know the rest of the story! Also have been sick for a month now so haven't been able to keep uplike I usually do. Sorry I haven't been here to support you. I sure miss Ter, don't you? Mar, Ter, & Tee. We were the 3 weren't we? I think your doc gave you a great taper from the Lyrica. I found I couldn't take it either as it gave me HBP & water retention of over 25 pounds. Sure feel a lot better off of it! Never thought Id say that as it seemed to help the fibro pain, but Wow! since dropping the water wight in less than a month(8 lbs in one day)I feel better just from that alone. Keep trying to strecth even tho it hurts. I do that every few minutes even sitting here in my computer chair.
Don"t want to sit in one postition for long. Probably look like I'm having a fit or something with the legs strechtes & such, but it does help. Hope you find that road to peace... Mary
Votes: +1
TE
Tee6759
30 July 2012
Oh Mary of the many numbers! Its seems so long ago... I often wonder how she is doing. Ive lost all contact with Ter. We were the ones at a point. Nowdays, Im just trying to cope with everything. Im trying to hold on. This Lyrica mess threw me a great big curve. The side effects were and are horrible. I cannot wait for the day I take my last one. Thanks for the memories and the support. Youve always been there for me and it means a lot. Take care! In peace, Tee
IN
Inactive
31 July 2012
Hopfully the gabepentin will wrok betterfor you. My hubby has fibro along with his diabetic neuropathy & it really helps him quite a bit. It does make him sleepy so he takes it all, 1,200 mg at bedtime, but not reccomended. You could probably use some good naps anyway at this point. I miss Ter so much. I have her email addy, but haven't contacted her, but am tempted to. she is a good gal... Mar
UK
ukliz
29 July 2012
Hi Tee, sorry that your really suffering at the moment, if I could give you the advice you are looking for and wave my magic want and make you feel better, or at least get you through this quicker I would. I remember a while back I tried to come of the lyrica to see if I needed to be on the dose I was on, I went through withdraw and after a week of suffering I could not do it anymore. I was not as strong as I am now, and you are a strong women also. Hang in there with the Gabapentin you need to give your body time to get use to the medication, I know probably not what you want to hear. But when you get so many people saying the same thing, it must have some truth in those words. I am also hoping your Dr's appointment will give you the answers and help your looking for, take care my friend. Liz.
Votes: +2
TE
Tee6759
30 July 2012
Dear Liz, Youre a great friend and your support means a great deal to me. If we could wave that magic wand... then we wouldnt all be here. It is a wonderful thought, tho. I hope youre enjoying your trip. Take care. In peace, Tee
UK
ukliz
30 July 2012
Tee your so very welcome, your friendship means a lot to me too. I did have a nice time away thank you, I still hold out hope for that wand to work on all of us one day soon. Liz.
LI
Lisa01
29 July 2012
Dearest Tee, I'm so sorry you're going through such a rough patch. I've been offline a couple days due to a massive migraine, always fun, and come back to see you're suffering as much as you are. I wish I had some practical advice to give that would make it all better, but I'm completely out. Between the med changes, the fb flare and just the basic stress of it all, it's no wonder you're feeling blue and out of control of it all. I'm hoping that your upcoming visit to the ortho dr will at least give you some definitive answers as far as your shoulders go. Sometimes answers, even the ones we don't like, can give us back a sense of control. In the meantime, hang in there. Hopefully the changes you're going through with the meds will even themselves out soon and give you some relief. You're in my thoughts and my prayers and always welcome to come to me whenever you need a friendly shoulder! Hugs, Lisa
Votes: +2
TE
Tee6759
30 July 2012
Dearest Lisa, You have been so encouraging and supportive. Always upbeat and caring, i cant tell you how much it means to know that I can turn to you when things get rough. Youre a shining light in helping me cope with my changes. I cant thank you enough!!! In peace, Tee
IN
Inactive
28 July 2012
hi Tee, From what you've been through, who wouldn't be depressed?! I hate to write this, but gabapentin can cause a bit of depression at first. It sure did for me, and a depressed mood is listed on the pharm printout, or i should say it was listed on my print out. the depressed mood (for me) has gone away now, thank God. so, wait it out. bet you feel much better in a week. good luck
Votes: +1
TE
Tee6759
28 July 2012
Tills, youre a doll. I know youre there for me. I may just not be on a high enough dose yet. I hate to see whats coming down the road. Peace, Tee
IN
Inactive
29 July 2012
Tee, girl don't anticipate something worse, or it may come to pass. we can psych ourselves into or out of almost anything, our minds are powerful things. you are going to be just fine once the dreaded lyrica is out of your system. if i were you, and this is a fools errand, so don't listen to me, but i would get the hell off of lyrica and fast. the gab is going to make you down in the mouth for a little while, but it WILL PASS. i promise, and if it doesn't i'll eat my hat. (it's lovely, my hat, a nice expensive one) Just remember, this too shall pass. PQ me anytime you need to talk/vent/cry. Tills
BR
brandiRN
28 July 2012
Tee, Back when I used Lyrica, I was on a dose similar to yours. I took 200mg in the morning, 100mg in the afternoon, & 300mg at bedtime (nights are the worst for me). When I decided to stop taking it for financial reasons, my doctor also weaned me off but at a much slower rate. It sounds like you were (for lack of a better word) overdosing on the Lyrica. To go from 300mg to 600mg/day is a HUGE jump!! Slowly weaning off Lyrica is important because you can have symptoms including insomnia, nausea, headache, and diarrhea. Weaning should be gradual over a minimum of 1 week rather than discontinuing the drug abruptly. I took 3 weeks to stop Lyrica which also allowed time for the gabapentin to build up in my system & honestly I think that helped a ton! I hope you start feeling better soon!! :-)
Votes: +3
TE
Tee6759
28 July 2012
Dear Brandi, I hope I'm as fortunate as you to come down off the meds as easy as you. It all just makes me uncomfortable bc I feel like I'm not in control. That's the part that scares me the most. I take so much medication and for so many things. Plus my fibro is in full flare which doesn't help. I'm trying my best to cope. I just hope I can hold out. Thanks again for the support. In peace, Tee
BU
butterflylynn
28 July 2012
Tee, I didn't realize you lost your job I am sorry to hear that. I ended up quitting my job last Sept. As they were giving me a hard time due to me missing too much work even though I was under doctors care. I was diagnosed with Vascular dementia & I quit working. So I understand when you say you dont feel like you are not in control. But I totally agree that they increased you way too fast & way too much all at once on the Lyrica. Unfortunately since they are having to taper you off the Lyrica they have to slowly increase your Neurontin. So please be patient. Another question... Do you have insurance now ? If not you need to start looking up the medications you have online & find the manufactures & see if you can get your medicines for free... I take about 18 meds & I get all but about 3 meds for free. You can get the Neurontin thru Pfizer connections to care.
If you want to send me a private message & list the meds you are on I can help you figure out some websites & phone numbers for patient assistance. Take care of yourself & please be patient with the transition of the meds. I am always here if you want to chat just send me a private message. Your friend, Kathy
BR
brandiRN
29 July 2012
Tee,
I think as long as you're able to taper slowly, you should be able to get off Lyrica without too many problems. Unfortunately you're probably going to be uncomfortable no matter what because you are in full fibro flare. I know it can be overwhelming at times, but know there are many people around that love & support you!! If you ever need someone to talk to, send me a private message & I'll give you my cell #. Hope you have a great weekend. :-)
TE
Tee6759
29 July 2012
Hey Brandi, i have friended you so that we can pq each other. I will send a message as soon as you answer my friend request. Thanks for the offer and the support. It means a lot! :0)
Hello Tee Alias seeking peace. I agree with the two previous comments. I'm afraid you'll have to be patient going through the mood changes. Not easy though. Hope your pain levels drop. Be well have a great weekend, pledge
Votes: +1
TE
Tee6759
28 July 2012
Dear Pledge, you are always here for me. That means a lot. You've always offered support and encouragement. I will do my best to take care. In peace, Tee
IN
Inactive
29 July 2012
:-0)
DE
Delila
28 July 2012
Hi, as already mentioned, these 2 changes at the same time will take their toll on you. It's the rough before the smooth unfortunately. Please take care of yourself during this transition, if you work take some time off if possible, but don't isolate yourself. Do you have a close family and/or friends that you can talk to when you are feeling bad? Take a walk each day - get out of the house and get some fresh air. If you are feeling particularly depressed and feel as though you can't cope, call your doctor right away! Tapering is the best way to cease treatment of medication, so you are doing the right thing. Always know you can talk to us here.
Votes: +3
TE
Tee6759
28 July 2012
Thanks Delila for offering your support. It means a lot. I wish I had work to take time off from. That's my biggest prob right now. After trying to go back to work after being out 6 months, I've had nothing but time on my hands. My job let me go in February. Now I have nothing but time on my hands. I keep in touch with a couple of people. My afternoons are the worst for me. A lot of alone time . I will keep you posted on how things go. Thanks for the offer to talk. I appreciate it more than you could know. In peace, Tee
DE
Delila
29 July 2012
I know exactly how you feel. I haven't worked for quite a while now and also feel the loneliness creeps up on me everyday. The afternoons do seem to drag in particular. Just try to think of your time off work as time to recuperate, and get well. And at some stage you will get back in to it feeling refreshed and capable for the challenge. Give yourself time. We all need it. x
BU
butterflylynn
28 July 2012
Tee, It is normal to feel mood swings right now. Stopping the Lyrica is mood changing. I don't understand why they had you on such a high dosage they were having you take anyways. I have taken 75 mg. 2x day for about 6 years .. Also on top of that the Hands Gabapentin also is mood altering. Give it a couple weeks for both meds. If it doesn't get better by then definately call your Dr. I Hope this helps, Kathy
Votes: +3
TE
Tee6759
28 July 2012
Dear Kathy, My fibro had gotten so bad that they placed me on the high dose. I've never felt such a high when they doubled me like that. Now coming off one while taking the other, I feel like I'm headed downward. Its so spooky. I'm trying to hold on and just deal with it as best I can. Thanks for the support! It really means a lot. In peace, Tee
BU
butterflylynn
28 July 2012
Tee, The dosage they had you on the Lyrica was way to high. As far as the Neurontin goes you said you are taking 300mg 3x day which is a low dose. I take 900 mg 3x day. When do you go back to the doctor ? They should increase your dosage of Neurontin up & that should help with your Fibro. Also do they have you on any kind of muscle relaxers ? If not they would help you also. I take Baclofen which is the best muscle relaxer I have been on & I have been on alot if them. I hope your Dr. appt is soon & you can start getting some releif soon. Take care of yourself, Kathy
TE
Tee6759
28 July 2012
Kathy, I don't see my pm doc for a few more weeks. I see an ortho surgeon Tues about my shoulder. If it doesn't seem to be working, I guess I'll have to call him and find out. The lyrica has really done a number on me. I'm hoping the gabapentin will work for me. Price wise I can't afford it. That's why they changed my meds. I just hope something works. Thanks for the support. You can pq me anytime. Peace, Tee
These abrupt changes definitely take a toll, and should level out over time. Wean yourself off? What an odd thing to tell a patient. Hang tight, and keep us posted.
Votes: +0
TE
Tee6759
28 July 2012
He said this was the best way to wean me off the Lyrica. If I stopped abruptly, I would be thrown into severe withdrawal. I can't handle this withdrawal with everything else I'm facing. I'm suffering enough as it is. Thanks for the support and I'll keep you posted. Seeking peace, Tee
IN
Inactive
29 July 2012
Tee, i stopped lyrica abruptly and had no problems. i was on it for about three weeks to a month, and that stuff made me feel depressed. thought about this situation last night and went thru my notes, and yup, it was lyrica that made me all depressed. but that's just me. hope you are feeling a little better my friend. Tills
IN
Inactive
29 July 2012
B, have you ever been on gabapentin? just curious. thanks, your friend from philly, tills
BA
balbanese
29 July 2012
@philly, yes, 2 times in my life, 3 weeks and 3 months,
IN
Inactive
31 July 2012
Yes, he gave her the right instructions of 2 for a week then 1 for a week etc... Tee, hang in there... Mary