Prograf for Organ Transplant, Rejection Prophylaxis User Reviews

Prograf has an average rating of 8.1 out of 10 from a total of 24 reviews for the treatment of Organ Transplant, Rejection Prophylaxis. 79% of reviewers reported a positive experience, while 8% reported a negative experience.

Prograf rating summary

8.1 average rating out of 10

24 ratings from 26 user reviews.

Compare all 26 medications used in the treatment of Organ Transplant, Rejection Prophylaxis.

10		25%
9		38%
8		17%
7		8%
6		0%
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4		4%
3		4%
2		0%
1		4%

Reviews for Prograf

Anonymous
October 31, 2009

"My daughter had a liver transplant almost 15 years ago. After 6 months, Prograf was the only medicine she was taking. Has had NO setbacks, no problems. She has given birth to 3 beautiful, smart children with no problems or side effects. Thank God for Prograf. She is on 2 mg twice a day."

10 / 10

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45 Report

NM8...
January 8, 2011

"I am a grateful liver transplant recipient. 4-11-08. I have been taking Prograf and Myfortic since transplant with very few side effects that I am aware of. I have returned to work for 12 months. The only side effect that I have a problem with is sleeping. I am a contractor, and many times it is a manual type of job, so I do need sleep, which I only get 5 hours/night if I am lucky. I feel in time this will take a negative effect on the transplant. All liver functions and blood work are good. I go to the transplant clinic semi-annually. The hepatologists are opposed to prescribing me any sleep aids."

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27 Report

Ste...
Taken for 1 to 6 months
February 24, 2019

"I just had the worst time with this medication! I had severe diarrhea, we are talking 20 times in one day. It gave me the worst migraines. They would last for days. They would cause me to vomit. When I was in the hospital, they would give me IV pain meds, and I still had the crippling migraines. All I wanted to do was lay in bed. It worked great as preventing rejection. However, I felt so sick I was not living. I lost a ton of weight. I was never hungry, and when I did eat, it all just came right back out. I had a lot of edema in my legs and feet. I begged to be on something different and switched to cyclosporine. This medication was just plain awful. I'd rather live my whole life on dialysis than to ever take this again!"

1 / 10

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13 Report

Anonymous
June 19, 2008

"So far, so good. Dosage has been reduced tremendously since my liver transplant 7 months ago. I have had very few side effects, and the capsules are small and easy to swallow. I started at 18 caps/day and now down to 3/day. Be sure to follow your doctor's orders and take your medicines on time. I use a Timex Datalink watch and set 2 alarms for each dose to reduce the chance of missing a dose."

9 / 10

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27 Report

Anonymous
April 30, 2008

"Liver transplant 5 years ago. No rejection. Generally comfortable drug. I have experienced small skin cancers, easily treated, no problem. I itch from time to time, not objectionable, and I don't blame it on the drug. Generally thankful for this drug. I am careful about infections because of reduced immunity. Thank you."

9 / 10

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27 Report

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Ann...
August 5, 2009

"I started taking 3 mg/day Prograf almost a week ago for my heart transplant. I was on cyclosporin but was having lots of muscle pain and cramps from the cyclosporin. Since starting the Prograf, I've been itching non-stop. It's apparently one of the side effects. I've also gained some fluid in my legs and hands. Another side effect. I hope the itching goes away soon, or I'll have to switch to something else."

8 / 10

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21 Report

mph...
February 25, 2009

"I received my liver transplant 4 years ago and started with 6 x 1 mg caps/day. It has been reduced to 3 x 1 mg tabs/day since then, and I have had no episodes of rejection. Prograf seems to do the trick. Love it. I don't know if this is a side effect from taking Prograf, but I have gained weight over the course of 4 years."

9 / 10

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20 Report

Bri...
Taken for 2 to 5 years
August 28, 2024

"Had two weeks to live before I received my new liver 2.5 years ago. Currently take 1 mg in the morning and 2 in the evening. My side effects are bad joint pain, fighting weight gain, very hard to lose. Ongoing anxiety. Hey, my feet hit the floor in the morning, so I have another day. Every day is great thanks to my unknown donor. Thank you."

10 / 10

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1 Report

Anonymous
February 7, 2009

"I have been taking Prograf for 3 years now. When I first got my kidney transplant, I was taking 6 mgs a day. Now I'm down to 3 mgs a day. I have had no reactions from the drug. I thank God and my brother for the second chance at life."

9 / 10

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19 Report

May...
Taken for 1 to 2 years
June 14, 2017

"Itching was bad in lower legs, especially my ankles, for a few months after liver transplant in June 2016. I had hand trembling, where it was hard to write or hold things steady, like utensils, for several months. These cleared up about 3 months out from transplant. Also, though lesser in degree, was dizziness, confusion, tingling in legs, prickly feeling in legs, fatigue, loss of taste, urination about every hour at night. These decreased or ceased after 4 months. I have put back on weight (40 lbs) that I needed to put on and am now stable at a healthy weight. Overall, taking Prograf now, one year out, is good. Though I am having trouble sleeping through the night. I wake up around 3 am and do not get back to sleep until 5-6 am."

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10 Report

Anonymous
June 14, 2009

"I am 4 1/2 years post liver transplant. Take 2 mg 2 x daily since the initial year. Not aware of any particular side effects. Have had no incidence of rejection as far as I know. Overall, the drug appears to do what it is supposed to do, thankfully."

9 / 10

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15 Report

sur...
Taken for 2 to 5 years
October 14, 2019

"I've been on this since September 1, 2016 as an immunosuppressant for a kidney transplant. So far, it's working well. Side effects include continuous stomach distress, usually ranging from mild to moderate, with occasional severe flare-ups; mild tremors; mild blood glucose elevation; occasional mild numbness in hand. For me, the side effects are well worth keeping my kidney from rejecting."

8 / 10

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6 Report

1Dr...
November 28, 2017

"All praises to program. I have not had any problems with rejections. Liver transplant Date 2011. I’ve had some itching and my sleeping is awful. But my main problem follows. I have developed NODM (New Onset Diabetes Management) and I simply cannot lose weight, instead , I am gaining and CANNOT LOSE. I EXERCISE AT LEAST 1 1/2 HRS DAILY, MY DIET IS EXCELLENT AND I'M A MODEL PATIENT. Yet my post transplant diabetes is out of control. I am hovering around 7.0 and I am literally killing myself exercising, eating right, taking meds correctly, etc. Been seen by 4 Endocrinologists....more oral meds and more insulin. Just this week, I’m been told to take Glipizide maximum daily dose, Novolog insulin, 9 units X3, Novolin 28Us/10Us & Junevia"

9 / 10

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7 Report

Anx...
January 26, 2013

"Prograf seems, so far, to be a great immunosuppressive medication. Bad - tremors and anxiety."

7 / 10

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22 Report

Anonymous
September 24, 2009

"I have been using Prograf for 4 years now. 1 mg in the AM and 1 mg in PM. Last year, or 3rd year into this treatment, I had 2 episodes with squamous cell carcinoma, which were both removed."

8 / 10

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20 Report

JJO...
September 21, 2010

"Liver transplant 8 years ago. No problems."

9 / 10

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19 Report

Anonymous
November 23, 2011

"I'm taking Prograf since 2000. Was seven back then, now I'm 19. Still no side effects, just wanted to check if there are any long-term side effects."

10 / 10

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17 Report

Anonymous
August 29, 2009

"I take it because I need it. If I did not have a transplant, I would not want to take it because I have gained weight and have edema."

3 / 10

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19 Report

Anonymous
August 18, 2008

"I have taken Prograf since my liver transplant eight years ago. Very few side effects. Nothing compared to dying with liver disease. Very blessed from the drug and my donor, Spencer."

10 / 10

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19 Report

ale...
Taken for 10 years or more
October 18, 2018

"No problems of liver reject from when I use Prograf (Tacrolimus), but I have some collateral effects like alopecia and tremors of hands and sometimes I feel buzzing in my ears. 9/10 !"

9 / 10

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8 Report

Anonymous
December 21, 2011

"Started taking Prograf in July of 2011 for my heart transplant. Except for some slight itching and for a little fluid in my ankles, this drug has worked wonders."

10 / 10

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13 Report

Anonymous
February 27, 2009

"This has fewer and lesser side effects as compared to other medicines given after organ transplant, for my eight year old daughters heart transplant."

10 / 10

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10 Report

bad...
April 21, 2009

"I have kidney disease, called IGA nephropathy disease. I am 14 years old, male, got diagnosed in July of 2008. I am finally in remission. I have not yet had a transplant."

9 / 10

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8 Report

jdd...
July 8, 2014

"Some side effects...they've been manageable. Keeping a positive attitude and having a support group has been beneficial."

7 / 10

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5 Report

Anonymous
August 28, 2008

"Great drug, it lets me keep my new kidney, but it gives me terrible diarhea. Just got a kidney 7 weeks ago had my first one 12 years ago."

8 / 10

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7 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.