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User Reviews for Pimozide

Also known as: Orap

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

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User Ratings

10
   
32%(5)
9
   
25%(4)
8
   
0%(0)
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0%(0)
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0%(0)
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19%(3)
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7%(1)
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7%(1)
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13%(2)

Pimozide Rating Summary

6.9/10 Average Rating

16 Ratings with 15 User Reviews

What next?Compare all 20 medications used in the treatment of Tourette's Syndrome.

Reviews for Pimozide to treat Tourette's Syndrome

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Orap (pimozide): "I was 7 yrs old when I starting with tics & when I was 12 I was diagnosed with mild Tourette Syndrome. I gained 100lbs plus during the 15 yrs that I was on Orap, I developed medicine induced anxiety, cotton mouth, fatique/sleeping all the time, my menstrual cycles were messed up, my thought process & decision making was not balanced, I developed temp. infertility, my prolactin levels were elevated dangerously high. I never should of been on Orap to begin with, Orap is for severe cases of Tourettes after ever other medicine has been tried..Orap is a last resort at a very low dosage...Please ...Please proceed with caution if you do choose to take this medicine. At age 44, I am blessed to be here today to type the rating of this medicine."

   
1.0

Roxx1972 August 8, 2016

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Orap (pimozide): "My son was diagnosed with Tourette syndrome at the age of 6 and he is now 12. He has taken everything clonidine, klonipin, seizure meds, topmax, haloperidol, and a host of other meds at first the Orap was a God send because he went from a lot of meds to only 3 meds. His doctor had a hard time getting approval at first because he wasn't quite 10 yet, but after the approval, for the first 6 months it worked well, my son began to gain a little weight but it was a good thing because he lost so much with the other meds but after that first 6 months his tics began to increase."

   
5.0

ShondaB July 13, 2016

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"The side effects were awful. I was not able to get out of my bed because I was sleepy and tired all the time and at the same time I was restless. And I just didn't stop take them immediately (after the first week) because my psychiatrist said it had no side effects at all and I trusted him 100% on that. I thought I was just tired because I had just finished the 1st semester of university. I stopped taking them 2 and a half weeks later when my mom suspect it was probably the medicine causing me all of this. And it didn't even help me with my tics at all."

   
1.0

Leom June 3, 2015

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Orap (pimozide): "I was diagnosed with Tourette's Syndrome when I was 11 years old. I had tried a couple of medications before this one that didn't help too much. Although this medication helped tremendously, the side effects were too much. My appetite greatly increased on top of gaining weight from the medication itself. I had no energy and had gained 100 pounds within a year. I am now 25 years old and this medication changed my relationship with food. I recently had bypass surgery due to overeating throughout my life as well as an inability to lose enough weight trying methods like healthy diet and exercise. Although this medication is helpful treating the tics, please use with caution."

   
5.0

jourdanerica May 8, 2015

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Orap (pimozide): "I'm a 65 year old female who has just been diagnosed with Tourette's Syndrome. Only been on medication 1 week very low dose. I've already gained weight and experienced dull mind also energizing. Orap scares me for my age. My tic is a throaty burping sound. This whole experience is rare and unbelievable. My tic is slowing somewhat."

   
4.0

Texastilly July 21, 2014

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Orap (pimozide): "I was diagnosed at the age of 14 with Tourette's Syndrome, and I am now 15. Before Orap I had a severe tic to my right side that would happen usually when I was stressed, or something was out of place, but sometimes at random. Though this medicine has helped me tremendously, I can say I am much better off without it. The side effects were just too much. I became void of any energy, and would stay in bed for more than 12 hours a day. I also started to experience syncope. I decided to stop taking Orap for a couple of weeks to see if the side effects would cease. I felt mildly better, but I developed a tic similar to what you would see in a person with Tardive Dyskinesia. I'm going back to my doctor soon to discuss what has been going on."

   
5.0

Vest (taken for 1 to 2 years) July 1, 2014

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Orap (pimozide): "I took Orap in my early 20s. My tics were minimal and I only needed Clonidine in my early 30s. I'm having a bout right now and am so scared to take the Orap again due to the side effects I've read up on. Don't know if I should just wait it out or what. I've been stuck in my hose since the end if January. Can't take the stares."

   
9.0

Lezlee1302 April 16, 2013

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Orap (pimozide): "My son was diagnosed with Tourettes and he is 10yrs old. The medicine has helped a little with his tics but still does some. His anger is getting worse while on this medication and has gained alot of weight in the half a year he has been on this medication. "

   
3.0

Slick#4 February 4, 2013

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Orap (pimozide): "My experience with Orap was horrible. It was like taking speed for me. I was so Hyper I couldn't sit still long enough to eat a bowl of beans, I had to be moving constantly. I told the doctor how they affected me. He said Orap does that to some people so he put me back on my old meds that didn't work. Klonopin and Haldol. "

gene A (taken for 5 to 10 years) January 27, 2013

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Orap (pimozide): "It is the only medication that has worked for me. Others such tenex and risperdal made my tics increase 10 fold."

   
10

Anonymous February 4, 2012

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Orap (pimozide): "I am an 18 year old male. I fond out I had Tourette's Syndrome when I was 15 and I was put on Orap. Orap helped me, my girlfriend says my tics aren't that bad."

   
9.0

jesse ray December 13, 2011

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Orap (pimozide): "I am a 41 year old male who was diagnosed with TS when I was 12. I had medium severity and was on Haldol for 3 years, I was a zombie. I changed to Orap and it was like I was born again. I still take it after all these years, 2 mg per day and have minimal to no tics noticeable. Teva assistance program gives free medication to those who are eligible, I am on this program. "

   
9.0

MrUbiquitous July 12, 2011

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Orap (pimozide): "I have had Tourette's since I was nine years old. I remember blinking non stop and knowing that something was wrong. I am now 30 and have been on Risperdal, Haldol, and Orap. The Orap is the only thing that works without any harsh side effects. Mostly I have facial and vocal tics that get fairly severe under stress. The Orap eliminates all but the most severe tics. I am extremely thankful for Orap and how it has helped make my life a little more normal. I also suffer from anxiety and OCD."

   
10

Red Light January 12, 2011

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Orap (pimozide): "I'm a 38 year old man who has had Tourette's from the age of 8. The only medicine I have found to control my tics almost 100% is Orap. When I take the medication my tics are almost none. I am very lucky not to have the speech tics. Mine are mostly ticks in my eyes and face."

   
10

Neile November 11, 2009

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Orap (pimozide): "I was diagnosed with a "medium' case of Tourettes Syndrome when I was seven years old. I'm now 23, and in the times before I started Orap about 4 years ago I was on almost every single medication that can be used for Tourettes. In addition to the tics, I have severe anxiety/depression problems, so it complicates matters. I've seen many psychiatrists, and they have all done their best, but in the end, it really came down to finding the right combination of drugs. The Orap is good. There is no cure for Tourettes, yet, but I have faith they will find it. I believe very strongly that medication is not the only way to treat it. Sleep, diet and exercise are all important. But of all the tic medicines, Orap helps the most."

   
10

Anonymous May 24, 2009

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