User Reviews for Pembrolizumab to treat Non-Small Cell Lung Cancer
Also known as: Keytruda
Pembrolizumab has an average rating of 3.3 out of 10 from a total of 72 ratings for the treatment of Non-Small Cell Lung Cancer. 24% of reviewers reported a positive effect, while 69% reported a negative effect.
Keytruda (pembrolizumab): “My father is in ICU, he asked me to share this with you . He has had COPD, recently he got a spot on his lung but otherwise he was strong, though overweight. After his 3rd Keytruda treatment everything went wrong. He lost his voice, kept feeling "particles" in his nose and mouth, didn't sleep for over a week, feet swelled up like footballs, and awful coughing. The doctor said he had a lung infection and sent him home with antibiotics and Lasix. No effect, swelled up even more. He stopped going to the bathroom... both. He could barely walk and we had to lift each leg into our suv, and pull them out one at a time when we got to hospital. Liver & kidneys shutting down, still can not talk, only whisper.. he's dying. He agreed to do this because they said it uses your immune system and my father has a very strong immune system. He assumed that Keytruda would use his already good immune system to beat the cancer.”
Keytruda (pembrolizumab): “Frustrated beyond words. My husband had his first treatment of Keytruda on a Friday morning at which time his Oxygen levels were normal. Within a couple of hours he had chills and a fever (to be expected), however I took him to the hospital the next morning because his fever was 101.3 (which I thought was too high). Upon admission, his Oxygen was 88 and they were alarmed and he's been in ever since. He's now on High Flow Oxygen @ 98.9% and 25 Liters. They are denying it's the Keytruda and says it wasn't in his body long enough which I don't believe at all. They keep saying it's a VIRUS. At one point, his oxygen line broke and he tanked to 39%. And they didn't put him in ICU (go figure). They still to this day don't believe it's the Keytruda but we are 100% confident it's the drug. I just want them to admit it -- we knew the risks but we were sold on "hardly anyone has side effects". I'm beside myself upset !!! I just want the Doctors to be honest.”
Keytruda (pembrolizumab): “My heart goes out to all affected by cancer, patients, families, friends and providers. We are all very different genetically & there's no "One Cure". My Husb was diagnosed with Stage IV Lung Cancer the Thurs. before Thanksgiving 2019. By Christmas he had radiation for 15 days followed by an evaluation for chemo. After blood work & consultation, he decided on Keytruda, chemo not an option. Had treatment once a week, then every two weeks, once a month and now every six weeks. As of now he has improved in the sense that the cancer is not growing, yes it shrunk a bit but he will never be cancer free it has compromised his spine, but he's here now and goes to work every day (UPS) and has never had to take the day off due to complications from the treatment (some nausea). I don't know what tomorrow brings regarding the medication, his cancer or life but I thought 2019 was the last year he would be with us, Today I am grateful for Keytruda. Best wishes to everyone struggling with cancer.”
Keytruda (pembrolizumab): “1 treatment and 2 weeks later he was gone. Horrible swelling, unable to focus, couldn't eat, couldn't walk, before treatment was doing ok. This took him out really fast went from functional to non functional after 1 treatment. Thought this medication would help instead it only sped up his death.”
Keytruda (pembrolizumab): “My Keytruda experience is entirely positive. I only wish and hope it helps others like it helped me. Male, 70. My 5cm inoperable lung tumor discovered about a year ago shrank to smaller than 1 mm in size after 3 Keytruda infusions. No side effects. Never stopped riding my bike to the gym. Only stopped 2 days before the surgery. Lobectomy followed. Few weeks later I was told by the surgeon and my oncologist that I don’t have cancer anymore.”
Keytruda (pembrolizumab): “My father was diagnosed with NSCLC July 2018. We were told he was not eligible for chemotherapy and that Keytruda was his best option. My father had his first treatment 1 week later and 2 weeks after treatment he presented to the ER with weakness, severe shortness of breath, restlessness. He was admitted for pericardial effusion. He had his 2nd treatment and 1 week later he went back to the ER with severe shortness of breath, loss of appetite, at this point he had lost weight and admitted for pneumonitis and hypoxemia. My father's health declined so rapidly after taking this medication within a months time. After his 2nd hospitalization his quality of life was minimum to none; was a total assist as he could not do anything for himself. He was placed on hospice 1-2 weeks after his last hospitalization and passed away 1-2 weeks after being placed on hospice. My family and I were given false hope regarding this medication and it killed my father and stole what time we had left with him.”
Keytruda (pembrolizumab): “I'm going to be brutally honest here. If you are not ready to give up the fight for lifethen STAY AWAY from this drug. My grandpa was walking, talking, cooking meals and within 4 days of treatment was literally LIFELESS!!! I will NEVER tell anyone this is a good and/or safe drug. I would give Keytruda a 0 if I could.”
Frequently asked questions
- Pembrolizumab vs. nivolumab: how do they compare?
- How does pembrolizumab affect the immune system?
- How does pembrolizumab kill cancer cells?
- How are Inlyta and Keytruda used in kidney cancer?
Keytruda (pembrolizumab): “In the 18 months after my lung tumor was found I had platinum based chemo, surgery to remove part of my lung, proton beam radiation, gamma knife surgery, and oral chemo med Iressa. Nothing helped, the cancer spread and I had mets to brain and bones. Bone mets so bad that my femur spontaneously fractured. My docs did not initially offer Keytruda because my tumors carried the EGFR mutation. But I did have high PDL1 (80%), so when nothing else worked we tried it. After 2 years of treatment every 3 weeks I had no evidence of disease, and remain NED one year after stopping treatment. Side effects were extreme fatigue, headaches, sweats; I still have these. But I am enjoying life and sure that Keytruda saved my life.”
Keytruda (pembrolizumab): “So last April my mom was diagnosed with stage 4 lung cancer. Turns out she was a candidate for keytruda. Her first treatment she became very ill. Ended up in ICU for low sodium. It was bad. She was very ill and was going to stop the treatments. We and the doctor talked her into continuing and honestly she's done amazing with it. The cancer has shrunk. You would never know my mom has cancer. 1.5 yrs later and still doing everything she did years ago. I'm sorry it hasn't worked for everyone but it truly is a miracle drug for some. Thank you from the bottom of my heart for the extra time with my mother.”
Keytruda (pembrolizumab): “I believe Keytruda killed my husband. Period. He was diagnosed with non small cell lung cancer/brain cancer June 2017 and passed away in September 2017. He did not die of the brain cancer, he was still choosing to work, functioning, but days before he died he had several unusual things happen. He went to the Dr. and died that evening from what I believe was heart failure. It was sudden, unexpected. He had 2 series of Keytruda, 3 weeks apart. I believe the "cure is worse than the cause". Caution to anyone who believes this is miracle drug. It is not.”
Keytruda (pembrolizumab): “Keytruda is a killer, my mother was diagnosed with NSLC in March and passed away June 22nd. This so called miracle drug attacked her healthy organs, there’s not a lot of information on the internet stating the facts, more than 4% of people suffer due to this drug. Please consider all your options my moms life was cut short because of false hopes.”
Keytruda (pembrolizumab): “After chemo and radiation treatments I was given six months. My Dr. got me into a keytruda study. After eleven months of keytruda treatments I am considered in remission. I write this because I debated taking keytruda because of the bad reviews. So sorry for the people that didn't have good results, but keytruda was a blessing for me.”
Keytruda (pembrolizumab): “Keytruda was used for my boyfriend along with pemetrexed and carboplatin. After the third infusion, he developed a bad cough that turned out to be pneumonitis caused by the Keytruda. They persisted in giving him another round of the Keytruda, and the pneumonitis got much worse. He is on oxygen now. A few months after stopping the Keytruda, he developed autoimmune colitis, also attributed to the Keytruda. His cancer spread into the pleural cavity, so it didn't help at all. The risks of this drug were not explained to him before starting. I think this is criminal. He went in with one life threatening condition and came out with three!”
Keytruda (pembrolizumab): “I was diagnosed with lung cancer on January 27th. Later a brain scan revealed seven brain lesions for which I have been treated Stereotactic body radiation therapy (SBRT). Before January 27th I experienced arrhythmia fairly regularly anywhere from every two weeks to at least once a month. After my first infusion, my arrhythmia has occurred daily lasting anywhere from 4 to 12 hours which debilitates me often leaving me very weak. (Last week my cardiologist gave me a more powerful anti-arrhythmia prescription, but to no effect.) I also experience a persistent dry cough which sometimes makes talking difficult. There is also shortness of breath. And since my second infusion 2 weeks ago occasional neuropathy in my feet. My daily quality of life seems worse than the disease, although the latter's outcome is assured. So I ask myself, two years of feeling like this daily? No way. And at what point is quality of life to be sacrificed for treatment? Of course it's an individual assessment. Nevertheless - your thoughts?”
Keytruda (pembrolizumab): “Although it seems some have had a bad experience with this drug, as in some other posts mine was positive. My father found out he had lung cancer. His brother and father both had also, and passed away at 74 (both same age). My father has been a heavy smoker since age 15, as they were also. After finding out he had tumors on his lungs, we both felt it was a death sentence. He informed me that he was going to do some treatments with a new drug. I had never heard of, and I work for a pharmaceutical. Keytruda was the name of it. Of course you have to qualify health, stage of cancer and other aspects to be treated. He was a high candidate for this drug as per his doctor. He began treatments immediately upon that confirmation. Within three months one of his two tumors was gone. The other had shrunk 50 %. Here we are in August, the other tumor is gone as per his scans, as well as his blood being normal. Now they did not say he was cured, but his treatments have ceased.”
Keytruda (pembrolizumab): “I honestly believe this medicine ended my mother life. It was horrible she had two doses and passed away 2 months after taking this medicine. She was so sick from this medicine. Then a friend of our family who was doing great on chemo was put on Keytruda and they passed away 2 weeks later. This is a horrible medicine and I wish I had not placed my trust in the doctors who recommended it. I am heartbroken.”
Keytruda (pembrolizumab): “I believe that Keytruda killed my Dad. The doctor told him most people don’t have side effects and this drug works great. My Dad was feeling good and after the second treatment had non stop coughing and severe shortness of breath. He could no longer breathe, collapsed and died. The doctor had no explanation or comments. Upon further research it looks like this drug only works for 20% who use it. I would explore other treatment options before using this drug. It’s marketed as a miracle drug but they don’t tell you it only works for a small percentage of people and a side effect may be death.”
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Keytruda (pembrolizumab): “My uncle was diagnosed with lung cancer in Jan. 2019. His Dr prescribed Keytruda. His liver and kidney are failing after the second treatment. Don’t understand why the Drs don’t explain to you about the risks of getting this treatment. Very upsetting watching his health deteriorate so bad because of Keytruda.”
Keytruda (pembrolizumab): “My friend has had 36 treatments and has not had any side effect. Her treatments are every 21 days she is now cancer free and plans on staying on the treatment for the rest of her life. Her COPD is still bad but she is glad to be cancer free.”
Keytruda (pembrolizumab): “5 days after my mother in law's first infusion, she passed unexpectedly. She showed no sign of pain. After reading the reviews, I know believe it was Keytruda that killed her... Stage 4 Non small cell”
Keytruda (pembrolizumab): “My mother took 2 doses of keytruda then she became unable to walk very soon after and started having extreme confusion. She started writing movie characters on papers hundreds of times a day and cannot remember anything. She barely is in reality at all. At the moment she is in the hospital waiting to go to a geriatric psych facility because she is not safe to be left alone. My mother was totally sane and doing well before 2 doses of keytruda!!! She has literally gone crazy. Doctors do not want to hear it and I'm frustrated. It is so sad to watch this drug we thought was to help her and destroyed her. I'm mad as anything. The doctors do not tell you about the horrible adverse effects it can have.”
Keytruda (pembrolizumab): “My girl friend was having non small cell lung cancer and was getting treatment Calgary, Canada, she got almost 34 cycle of keytruda every 3 weeks from Dr. Since started receiving treatment she started getting better but after after her 35th cycle her condition deteriorated and she got severe side effect of keytruda call immune inhibitors pneumonitis and after 5 days which on October 8th, 2019 at 7.30pm she passed in hospital. This medicine is good but I can't say that this will help you survive longer, it's better that researchers should do something about it to protect the patient from its fatal side effect or make an antidote of this medicine.”
Keytruda (pembrolizumab): “On Keytruda my Tumor shrunk or remained stable for 10 months. Now, after 13 months is growing slowly. I think Keytruda has kept me alive! However recent untreated side effects not addressed by my Doctors are causing grief. My joints are so inflamed I can barely stand. It’s important to be proactive with your Doctors! They’re new to these drugs also!”
Keytruda (pembrolizumab): “diagnosed with extensive Stage IV NSCLC with numerous mets to the liver and adrenal glands. After four infusions with Keytruda all liver mets are gone and adrenal mets greatly reduced in size. Used as first line treatment. Very grateful. No major side effects. Feeling run down with low appetite attributed to the remaining cancer and after affects of radiation to hip bone met.”
Keytruda (pembrolizumab): “I believe my Father died because of Keytruda. Prior to treatment he was asymptomatic and active. No cough and never has been on oxygen. After first treatment he was never the same. He was gone in less than 3 months and spent his final 2 months of life in the ICU on a ventilator. Keytruda induced Guillian-Barre was his diagnosis. Your doctor will minimize the side effects of this drug and no one is being held accountable. Do your research before proceeding or allowing your loved one to use this drug. You don't get a second chance.”
This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare professionals.
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