Kesimpta for Multiple Sclerosis User Reviews (Page 2)

• Moham...
• Taken for less than 1 month
• May 23, 2022

"Just taken my first shot of Kesimpta, I got the explained chills and headache but I woke up in the middle of the night to use the toilet and couldn't feel my legs I couldn't walk nor crawl. With assistance I did what I had to do and checked my heart rate which was over 140 BPM, I'm in a dilemma to take my second shot. But will seek advice from the MS team"

• Drea
• Taken for 1 to 6 months
• December 1, 2022

"1st dose was November 9th, no issues! I had a mild headache the next day but I always get headaches. I already deal with chronic fatigue, pain, and numbness, so no noticeable changes to that! I actually got a burst of energy for about 4-5 days so that was awesome! I was on Ocrevus for 3.5 years and was sick of the 6 hour infusions so I asked to switch! The next dose is December 9th! I'm extremely happy that I switched! I'm so sorry for everyone that has had horrible reactions! Take care to all you MS'ers out there!"

• Infor...
• Taken for 1 to 2 years
• April 21, 2022

"I love Kesimpta. Not having to worry about veins being blown out by infusion treatment. I did run a 104 fever from first injection, but the second and third were fine. I began to feel my feet again after the first injection. Mixed emotions about that. For the time being I can't really say if I'm slowly getting worse or better. Good and bad days. I did have a icy hot sensation in my leg for a month after taking the first 5 doses which vanished after steroid treatment."

• Kesim...
• Taken for 6 months to 1 year
• May 19, 2023

"I'm on the 7th month of Kesimpta. I was 2 days late for the injection. I got severe agonizing chills, body pain & migraine, worse than the loading dose. A week before the injection, usually my best time, my heart rate went down so low I was afraid to go to sleep, my urine was dark even when drinking lots of water, and my body hurt. I wish doctors would approach prescribing kesimpta with these side effects in mind. It feels condescending to be told that these side effects are acceptable and don't require anything beyond ibuprofen. If I had to do this more than once a month I'd quit. Bimonthly dosing would be great. I'm worried about my organs. I haven't had an MS flare since starting, but the injection itself is worse than having one. I'm getting an MRI in 3 months & I'll know if I should stay on it. The only reason I recommend it is that there aren't incapacitating stomach effects like tecfidera or multiple injections like Copaxone."

• Marcie
• Taken for less than 1 month
• July 15, 2023

"I have completed the loading doses for the first three weeks. This week is my week off before the permanent fun begins. First reactions were pretty miserable. About six hours after my injection, I started shaking and was absolutely freezing. I had a mild fever, about 1°. I could not get warm, and I live in South Florida! The shaking stopped after a couple of hours and then I started getting really hot. I had a couple degree fever by then. And I was hot, hot, hot. By mid-afternoon the next day I felt 90% fine. The second injection was way better and I only got a mild fever and a headache. The third week was better still. A mild headache and about a half a degree fever. But now, during my off week, I have been feeling really tired and frequently mildly nauseous. I don't know what that means. Overall though, I feel like this is way easier than how I felt during my 14 years of Avonex."

• Zoano
• Taken for less than 1 month
• June 12, 2022

"Felt awful after my initial dose and had signs of an allergic reaction so I was given antihistamines and an EpiPen for my second injection but it was absolutely fine. No side effects. Was on Tysabri for the past 7 years which I loved but my JC virus score was increasing too much."

• Just_...
• Taken for 6 months to 1 year
• May 1, 2023

"I have been on Kesimpta for 10 months so far. I recently had more scans and found out that I had new lesions and have developed numerous black holes throughout my brain. The damage may have occurred prior to starting treatment, but overall I do feel a bit better so I am continuing treatment. The only side-effects have been fatigue and fever for 3-5 day after injection."

• DLewis...
• Taken for 1 to 6 months
• April 25, 2023

"The medication has a positive effect on my condition. My mobility has improved greatly. Which, I'm more than thankful for. The negative that I've experienced is currently a breakout on the back of my right hand, a small reaction on my left hand, and both my arms. These are a small irritation, which I'll happily deal with for the positive effects the medication has had/ having on my overall condition."

• Kesim...
• September 1, 2022

"It’s not working I have got worse. Since I was taking Tysabri but got the JCV virus from that I had been on that for 13 years. The Kesimpta my legs are feeling like they are on fire. Once I stand in the morning after a few minutes my legs go numb!! Right now my toes on both feet feel like they are on fire can’t stand this!!"

• Glider
• Taken for 6 months to 1 year
• March 25, 2023

"Has effectively stopped further MS activity as shown on MR tests. However, after four months of use, I have developed side effects. Severe pain in my leg, like flashes during the night and lasting about three weeks, after sore foot and burning sensation upper side of the foot. Tried massage (professional) which seemed to help. Experience “trigger finger symptoms “ in both hands; thumb and point fingers. Also burning sensation in the leg muscles when getting up from a chair/bed. I have some cramps feet and lower legs. Calf-muscles locking. Goes away when standing up. Have been using Kesimpta since July 2022. So 9 months. Dosage 1/month. Very easy to use. No side effects when taking the medicine (within 24 hours) so far."

• Donna
• Taken for 1 to 2 years
• August 13, 2023

"Have been on Kesimpta for 20 months (I am 67). No side effects even with loading doses. At about the 10-month mark, I felt like I turned a little corner and was fully in my system. Only thing is I feel like my walking has declined over these 20 months. It's easy to use and painless, and some months I feel pretty good. Just concerned about the decline in walking, so I am trying to increase my daily steps to see if that helps. Overall, I like it."

• Stacey
• Taken for 1 to 2 years
• May 3, 2023

"I have been on Kesimpta for 2 years. I have a bit of a love /hate relationship with it. Pros are it was only one jab a month after the initial start-up jabs. Minimally impacts my life and It’s quick and simple. Cons are that it stings when I do the injection, and I immediately get a 24-hour headache the minute it hits my system. I do get a little more poorly if I get an infection."

• Cc1002
• Taken for less than 1 month
• January 22, 2023

"First time taking my Kesimpta injection last night, it was painless, was fine for the first hour. After 1 hour I had chills/back pain. After 4 hours I had fever, got to 101.09 went to bed used ice pack. That helps and took the fever down. Next morning felt 100% but I have itching on my face. Going to call Dr to see if this is serious. Hope everyone is doing well and good luck"

• Markie
• November 4, 2022

"Have been taking for 14 months. Periodic stints of feeling a little better and able to get around pretty good without my cane. Yesterday I got bold and raked leaves in my yard. Today can hardly walk. Back to my cane again. Last couple of months my sinuses have been excessively, constantly draining. My PCP started me on an antihistamine and Mucinex. Had no positive results. Then I researched for potential side effects of Kesimpta finding nothing listed for Kesimpta and sinusitis. Then researched Ofatumumab extensively. Did find that Azerra was the name of the Ofatumumab given for CLL (Chronic Lymphatic Leukemia). Found several sites indicating Sinusitis was a common side effect of Azerra. One listing indicating Saline Nasal Spray may be beneficial. I did try the saline nasal spray with extremely positive results. Finally am able to sleep without choking on the continuous nasal drainage from choking me awake frequently at night. Now able to do things around my house."

• Great...
• Taken for 1 to 2 years
• June 27, 2023

"I have been on Tysabri, Tecfidera, and Gilenya. I had liver issues with Gilenya, anaphylactic shock with Tecfidera, and Tysabri was OK, but it was too time-consuming to get the monthly infusions. Kesimpta has been by far the best medication I have taken to treat RRMS. I have been on this for over a year and had one minor flare-up, which was easily treated with a pill steroid. I am very happy with this drug, and I haven't felt better since my diagnosis in 2015."

• LuLu
• Taken for less than 1 month
• May 20, 2022

"I have taken my first dose two days ago. Due to Covid, insurance and medication shortage I was without any medication for 7 months. Begged for a steroid treatment, which I hate and my neurologist wouldn’t do it. I have been nauseous, mild headache, very tired and HOT! It’s humid here (SC) and the night sweats were so bad. The reviews have been helpful. I will know more when I get to my second and third dose. Not given up yet. Keep your fingers crossed!"

• GroovyP
• May 1, 2023

"I just finished my initial doses. All were different, the first dose I got a sore throat, itchy without a rash, went to bed, and woke up with the most excruciating muscle and joint pain I've ever experienced. Dose number two hurt more than the first, my throat was sore and I was again itchy all over without a rash, but no body aches. Dose three was only the itchiness, but I just didn't feel good for about a week. I had all my injections on a Sunday, for the first two on Thursday I had some minor vertigo and a short-lived temp increase to about 101 F. I rotated my injections on my thighs, however with each injection, I felt like I received an injection in my left upper arm. Very weird."

• Teresa
• Taken for 6 months to 1 year
• October 26, 2022

"Started in late Jan- got sick (fever, flu-like symptoms) only after 1st dose and have had no problems since then. I do take ibuprofen and benadryl 1 hour before injection, and I inject at night right before bed. Too soon to know if it's working, but very easy to take."

• Diana
• Taken for less than 1 month
• November 28, 2022

"I have finished the 3 week shots. Each time it did get better. I still get tired on the 5th or 6th day after the shot. I was taken off Ocervus cause getting an infusion all at once was shocking my body and I have a weak stomach, to begin with. In the beginning, I know there will be some side effects until your body gets used to it and trying to work with it. I am hoping this will keep my MS steady. Good luck everyone. Think positive"

• IHateMs
• Taken for 1 to 6 months
• April 27, 2022

"About to take second dose. I don’t like how I feel on this drug. Migraines are worse. I’m more fatigued. I began the drug because of its ease of taking once a month via self injection. I wanted to go back to work full time. However, I’m too tired to do the job. Can’t think clearly because I’m too fatigue. Going back to Tysabri."

• Chuck
• Taken for less than 1 month
• September 17, 2023

"Was on Ocrevus for about 3 years, seemed to not be working as well as before, so the doctor switched me to Kesimpta. Just finished my first 3 shots with no real side effects, other than feeling a little tired after the first two. Looking forward to seeing how it works in the future."

• dennis
• Taken for 1 to 6 months
• May 19, 2023

"The best medicine ever. I have my energy back, my eye issues are gone, and I have reduced pain that does not linger all day. Used tecfidera and Avonex. I have days that I forget I have MS."

• range...
• Taken for 1 to 6 months
• April 25, 2024

"Injections are okay. No site reaction, which I like. So far, not sure if my side effects are MS related or medication related. Will find out next month."

• Check...
• Taken for 6 months to 1 year
• March 13, 2022

"Haven’t had any side effects or relapses with Kesimpta. I do have headaches and aches/pains but they were there before Kesimpta. Easy to use, feeling positive about it."

• Annie...
• Taken for 6 months to 1 year
• February 20, 2023

"This drug is amazing. No side effects, no new lesions, very minimal sickness. In fact, I got COVID while on it and recovered quickly."