Skip to main content

Obeticholic acid for Primary Biliary Cholangitis User Reviews

Brand names: Ocaliva

Rating: 7.3

Obeticholic acid has an average rating of 7.3 out of 10 from a total of 3 reviews for the treatment of primary biliary cholangitis. 67% of reviewers reported a positive experience, while 0% reported a negative experience.

10
0%
9
0%
8
67%
7
0%
6
33%
5
0%
4
0%
3
0%
2
0%
1
0%
  • Gra...
  • Taken for 6 months to 1 year
  • February 15, 2019

"Started Ocaliva in July 2018. Had side effects of blistering on legs and severe itching. Doctor took me off the drug for 2 weeks, then started back with 5 mg every other day for 2 weeks, then one pill daily. My blood work has been all over the place, not getting steady reduction in readings. I also take ursodiol. Intercept Pharm offers help with the copay if qualified, however, once I go on Medicare with a private drug plan, Intercept does not help with the copay for the $7000+ per month drug. Might be possible to get help through a nonprofit if any funds are available. Is this drug worth it?"

8 / 10
Was this helpful?YesNo
11 Report
  • Gen...
  • November 15, 2020

"My gastroenterologist started 5 mg daily. I had itching, but I started to hydrate more than usual, and the itching isn’t too bad. I have not had any serious bleeding or jaundice side effects yet, and I have been on this medication since April 2020. As far as my labs, they seem to stabilize, but I will be having a liver ultrasound and labs in December 2020. Hopefully, this med is working like it should."

6 / 10
Was this helpful?YesNo
4 Report
  • Che...
  • Taken for 1 to 2 years
  • February 18, 2025

"It’s brought my levels down a lot, but I have gained weight & really struggling to lose any. I have a bloated tummy all the time. The fatigue is unreal, I’m so tired all day. I have pain widespread all over my body. It’s hard to know if I’m doing the right thing by taking it with all the side effects."

8 / 10
Was this helpful?YesNo
0 Report

Are you taking this medicine?

Your review helps others make informed decisions.
Write a review
Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.

Learn more about Primary Biliary Cholangitis

Care guides