Ocaliva User Reviews & Ratings

• Gra...
• Taken for 6 months to 1 year
• February 15, 2019

For Primary Biliary Cholangitis "Started Ocaliva in July 2018. Had side effects of blistering on legs and severe itching. Doctor took me off the drug for 2 weeks, then started back with 5 mg every other day for 2 weeks, then one pill daily. My blood work has been all over the place, not getting steady reduction in readings. I also take ursodiol. Intercept Pharm offers help with the copay if qualified, however, once I go on Medicare with a private drug plan, Intercept does not help with the copay for the $7000+ per month drug. Might be possible to get help through a nonprofit if any funds are available. Is this drug worth it?"

• Gen...
• November 15, 2020

For Primary Biliary Cholangitis "My gastroenterologist started 5 mg daily. I had itching, but I started to hydrate more than usual, and the itching isn’t too bad. I have not had any serious bleeding or jaundice side effects yet, and I have been on this medication since April 2020. As far as my labs, they seem to stabilize, but I will be having a liver ultrasound and labs in December 2020. Hopefully, this med is working like it should."

• Che...
• Taken for 1 to 2 years
• February 18, 2025

For Primary Biliary Cholangitis "It’s brought my levels down a lot, but I have gained weight & really struggling to lose any. I have a bloated tummy all the time. The fatigue is unreal, I’m so tired all day. I have pain widespread all over my body. It’s hard to know if I’m doing the right thing by taking it with all the side effects."