Immune globulin intravenous and subcutaneous for Primary Immunodeficiency Syndrome User Reviews

• mar...
• May 11, 2011

Immune globulin intravenous and subcutaneous "I've been on Gamunex since it was introduced. I take 60 grams every three weeks in about 2-1/2 hours. I have no side effects and pre-medicate with Allegra and Advil. It is by far the easiest tolerated of any of the IVIG products. I've used IVIG for over 30 years. Works for me."

• Mar...
• Taken for 5 to 10 years
• December 16, 2024

Immune globulin intravenous and subcutaneous "I was diagnosed with CVID in December 2019. My body weight had fallen from about 220 pounds to less than 130 pounds in 2 1/2 years, even after following a strict diet for celiac disease. In 2019, two different specialists examined me and found that I had severe CVID; they insisted that I was being misdiagnosed as having celiac disease. My immunologist prescribed monthly infusions of Gammagard IVIG. It took about two years to gain weight back to a reasonable level; I now live a normal life. Like some other patients, I started to feel low back pain about halfway into my infusions. My immunologist prescribed Solu-Medrol to be given before the infusions. I no longer have pain. After 6 years of using Gammagard IVIG, I am being changed to Gammagard SCIG. My immunologist feels this will yield more consistent IGG levels and eliminate the need for Solu-Medrol. The Takeda Patient Support program (OnePath) made this drug affordable. Gammagard saved my life!"

• Sue...
• August 23, 2020

Immune globulin intravenous and subcutaneous "I have common variable immune deficiency (CVID). First time ever receiving this (Gammagard) developed severe headache, N&V, and D. Temp 100.2 and low back pain. I felt like I wanted to crawl out of my skin. Symptoms continued for 4 days. Second treatment gave me a temp of 102, N&V, back pain, hypotension, and lasted 3 days. The 3rd dose was changed to Phlebogard and I had a headache, low back pain, and symptoms lasted 2 days, but did not start until 48 hrs post-administration. Much better toleration."

• mar...
• February 12, 2010

Immune globulin intravenous and subcutaneous "In a 2007 study, Gamunex was shown to have the least side effects of any of the IVIG products."

• Gra...
• Taken for 5 to 10 years
• July 4, 2019

Immune globulin intravenous and subcutaneous "In 5 years of use, only one infection and need for antibiotics. Reduced 'headaches' symptom with Gamunex. I was on it for common variable immune deficiency (CVID)."

• jjr...
• Taken for 1 to 2 years
• December 5, 2013

Immune globulin intravenous and subcutaneous "The side effects are being down more than I am up. Headaches, fatigue, joint pain, nausea, diarrhea."

• pam...
• Taken for 2 to 5 years
• April 24, 2016

Immune globulin intravenous and subcutaneous "Changed my life. Much healthier now."

• Mis...
• Taken for 6 months to 1 year
• December 14, 2019

Immune globulin intravenous and subcutaneous "Was on Gammagard at the hospital for one year. Had terrible back pain after infusion, and my numbers never got above 525 for IgG. Changed to Hizentra, and my numbers are near 1200 for IgG."

• MMa...
• January 7, 2019

Immune globulin intravenous and subcutaneous "I feel this medicine gives me severe joint and muscle pain for about 72 hours."

• Tin...
• Taken for 6 months to 1 year
• February 18, 2025

"I have stage 3 lymphoma, my immune system low. I kept getting sick. Tried it for one year. Had headaches and flu symptoms from it. The copayment is $500 a month, too expensive."