Immune globulin intravenous and subcutaneous for Chronic Inflammatory Demyelinating Polyradiculoneuropathy User Reviews

• Ran...
• Taken for 2 to 5 years
• April 20, 2024

"I have been on Gamunex C for over 4 years now. I have CIDP, and before taking Gamunex C, I could hardly walk because of the pain, tingling, electric shock pain, weakness in both legs and feet, and my balance was not good at all. Since taking Gamunex C, I have not had all the pain I used to have. My legs are not as weak, and most of the tingling, burning, feelings of electrical shock, and numbness have mostly gone away where it doesn't hurt to walk, I can sleep at night, and my balance has improved. It is pure gold. It has been a blessing. I look forward to my infusions twice a month. For years prior to being diagnosed, I was put on all kinds of pain medication. I am so glad I am off of those pain medications. Pain medications like methadone, Percocet, and morphine. No more! I have had no side effects from Gamunex C."

• Poo...
• Taken for less than 1 month
• November 26, 2018

"I have been under IVIg therapy (intravenous immunoglobulin therapy) for more than 4 years, after first trying steroids for CIDP (Chronic Inflammatory Demyelinating Polyneuropathy). Felt better immediately with steroids, but gained weight, which is now impossible to lose! Switched to Gamunex, which I have used alternately (every 6 months with a change of living location) with Gamagard - no problems with either one. The only thing I can complain about is the time at the hospital every 3 weeks that is required. At the last appointment, I was informed that a switch had been made from the Gamagard to Gamunex-C. Again, no problems whatsoever. I feel fortunate that I no longer fall and have only mild balance problems, along with NO REACTIONS to the products used in treatment."

• Jan...
• Taken for 1 to 6 months
• March 23, 2025

"The first IV provided no relief. The second monthly dose increased my strength significantly for around one to two weeks. The third monthly dose, I felt wonderful. I had the strength and endurance I had at 50. I'm 74. I could get up off the ground until three days before my next dose, and suddenly, I was back to where my legs just refused to do what I told them to do. I managed to pull myself up. Then my hands lacked fine motor control. Three days later, I limped into the infusion facility, barely able to keep my eyes open or walk without a cane. Halfway through the infusion, I awoke thinking someone was pinching my feet. My feet were swollen to where I had to pry my shoes off. They have elastic laces. But, I could see clearly and walk without a cane. Day two of infusion, I wore sandals. My feet were swollen, my energy was high, and I felt great. It is amazing how this stuff works. It's like the lights come on and you are 10 or more years younger. However, by nightfall, the side effects hit."

• lau...
• January 7, 2014

"I was diagnosed in 2007 with Lewis-Sumner disorder, a branch of Chronic Inflammatory Demyelinating Polyradiculoneuropathy. I received a week of loaded doses of Gammagard, then a maintenance dose of 100 g and have been at 90 g for a few years now. This medicine is a great help for the atrophy in my legs, but I do get side effects: moderate to severe back and muscle pain, cramping in my upper front thigh muscle, foot and toes. Also, a lot of hair loss, and women should not get IVIG infusions when on their menstrual cycle. It causes more clots and a lot of increased flow than normally happens. Double up on your monthly feminine products and be prepared to change them every 30 minutes. I also experience fatigue, frequent urination, and headaches. Drink lots of water! I take Excedrin migraine."

• CID...
• August 6, 2011

"After 5 months of infusions, I feel better, although CIDP symptoms persist. Side effects were mouth sores, swollen lips, both with white blisters starting after three days, resolving after two weeks. Significant coverage of chest and back rash, large red blotches. Start on the fifth day and resolve after forming black scabs after three weeks. Will continue with last treatment and then quit."

• Dee...
• Taken for less than 1 month
• March 22, 2023

"Great medicine. Have severe CIDP symptoms. Yesterday had my first infusion, that night felt like millions of ants inside me, building me up. Have had four more infusions, 11 mg/kg, pretty heavy dose, but helps."

• ang...
• Taken for 6 months to 1 year
• December 27, 2022

"I was taken off Octagam in April, changed it to this Gammaked. For the last 6 months, it does not work as well as the others, they had to add saline before treatments, 2 days every three weeks. Doc is changing to 1x month, thank heavens. In the last treatment, my right hand went completely numb, though it was slowed down to a crawl. The side effects for this med are more frequent and usually bring on the symptoms of the polyneuropathy, also, the headache lasts 3 days. My body cannot seem to get used to this. I wish I could get off these infusions, but going for 1x month may be better and helping, but I am not sure."

• rin...
• Taken for 6 months to 1 year
• March 12, 2025

"Recently completed my 6th monthly infusion and am beginning to show some improvements with motor skills in my extremities."