Immune globulin intravenous and subcutaneous User Reviews & Ratings

• Ran...
• Taken for 2 to 5 years
• April 20, 2024

Immune globulin intravenous and subcutaneous for Chronic Inflammatory Demyelinating Polyradiculoneuropathy "I have been on Gamunex C for over 4 years now. I have CIDP, and before taking Gamunex C, I could hardly walk because of the pain, tingling, electric shock pain, weakness in both legs and feet, and my balance was not good at all. Since taking Gamunex C, I have not had all the pain I used to have. My legs are not as weak, and most of the tingling, burning, feelings of electrical shock, and numbness have mostly gone away where it doesn't hurt to walk, I can sleep at night, and my balance has improved. It is pure gold. It has been a blessing. I look forward to my infusions twice a month. For years prior to being diagnosed, I was put on all kinds of pain medication. I am so glad I am off of those pain medications. Pain medications like methadone, Percocet, and morphine. No more! I have had no side effects from Gamunex C."

• Poo...
• Taken for less than 1 month
• November 26, 2018

Immune globulin intravenous and subcutaneous for Chronic Inflammatory Demyelinating Polyradiculoneuropathy "I have been under IVIg therapy (intravenous immunoglobulin therapy) for more than 4 years, after first trying steroids for CIDP (Chronic Inflammatory Demyelinating Polyneuropathy). Felt better immediately with steroids, but gained weight, which is now impossible to lose! Switched to Gamunex, which I have used alternately (every 6 months with a change of living location) with Gamagard - no problems with either one. The only thing I can complain about is the time at the hospital every 3 weeks that is required. At the last appointment, I was informed that a switch had been made from the Gamagard to Gamunex-C. Again, no problems whatsoever. I feel fortunate that I no longer fall and have only mild balance problems, along with NO REACTIONS to the products used in treatment."

• mar...
• May 11, 2011

Immune globulin intravenous and subcutaneous for Primary Immunodeficiency Syndrome "I've been on Gamunex since it was introduced. I take 60 grams every three weeks in about 2-1/2 hours. I have no side effects and pre-medicate with Allegra and Advil. It is by far the easiest tolerated of any of the IVIG products. I've used IVIG for over 30 years. Works for me."

• Mar...
• Taken for 5 to 10 years
• December 16, 2024

Immune globulin intravenous and subcutaneous for Primary Immunodeficiency Syndrome "I was diagnosed with CVID in December 2019. My body weight had fallen from about 220 pounds to less than 130 pounds in 2 1/2 years, even after following a strict diet for celiac disease. In 2019, two different specialists examined me and found that I had severe CVID; they insisted that I was being misdiagnosed as having celiac disease. My immunologist prescribed monthly infusions of Gammagard IVIG. It took about two years to gain weight back to a reasonable level; I now live a normal life. Like some other patients, I started to feel low back pain about halfway into my infusions. My immunologist prescribed Solu-Medrol to be given before the infusions. I no longer have pain. After 6 years of using Gammagard IVIG, I am being changed to Gammagard SCIG. My immunologist feels this will yield more consistent IGG levels and eliminate the need for Solu-Medrol. The Takeda Patient Support program (OnePath) made this drug affordable. Gammagard saved my life!"

• lau...
• January 7, 2014

Immune globulin intravenous and subcutaneous for Chronic Inflammatory Demyelinating Polyradiculoneuropathy "I was diagnosed in 2007 with Lewis-Sumner disorder, a branch of Chronic Inflammatory Demyelinating Polyradiculoneuropathy. I received a week of loaded doses of Gammagard, then a maintenance dose of 100 g and have been at 90 g for a few years now. This medicine is a great help for the atrophy in my legs, but I do get side effects: moderate to severe back and muscle pain, cramping in my upper front thigh muscle, foot and toes. Also, a lot of hair loss, and women should not get IVIG infusions when on their menstrual cycle. It causes more clots and a lot of increased flow than normally happens. Double up on your monthly feminine products and be prepared to change them every 30 minutes. I also experience fatigue, frequent urination, and headaches. Drink lots of water! I take Excedrin migraine."

• Jan...
• Taken for 1 to 6 months
• March 23, 2025

Immune globulin intravenous and subcutaneous for Chronic Inflammatory Demyelinating Polyradiculoneuropathy "The first IV provided no relief. The second monthly dose increased my strength significantly for around one to two weeks. The third monthly dose, I felt wonderful. I had the strength and endurance I had at 50. I'm 74. I could get up off the ground until three days before my next dose, and suddenly, I was back to where my legs just refused to do what I told them to do. I managed to pull myself up. Then my hands lacked fine motor control. Three days later, I limped into the infusion facility, barely able to keep my eyes open or walk without a cane. Halfway through the infusion, I awoke thinking someone was pinching my feet. My feet were swollen to where I had to pry my shoes off. They have elastic laces. But, I could see clearly and walk without a cane. Day two of infusion, I wore sandals. My feet were swollen, my energy was high, and I felt great. It is amazing how this stuff works. It's like the lights come on and you are 10 or more years younger. However, by nightfall, the side effects hit."

• Ori...
• Taken for 5 to 10 years
• August 3, 2019

Immune globulin intravenous and subcutaneous "I had Stiff Person Syndrome, and I was on this medication 80% of my last 9 years of IVIG. It did well overall. I grew tired of the ups and downs I would go through each month. Two weeks of feeling great, one week of meh, followed by a week of horrible, with all my symptoms feeling magnified. I finally switched to subQ last year and haven't looked back."

• CID...
• August 6, 2011

Immune globulin intravenous and subcutaneous for Chronic Inflammatory Demyelinating Polyradiculoneuropathy "After 5 months of infusions, I feel better, although CIDP symptoms persist. Side effects were mouth sores, swollen lips, both with white blisters starting after three days, resolving after two weeks. Significant coverage of chest and back rash, large red blotches. Start on the fifth day and resolve after forming black scabs after three weeks. Will continue with last treatment and then quit."

• Bri...
• Taken for 6 months to 1 year
• June 15, 2023

Immune globulin intravenous and subcutaneous for Multifocal Motor Neuropathy "No side effects, and relatively immediate relief from pain and general wobbliness of legs. Did not improve hand function, it continued to slide. However, I recently switched to Gamunex-C, and my hands became worse, so I believe Gammagard did slow the progression."

• Sue...
• August 23, 2020

Immune globulin intravenous and subcutaneous for Primary Immunodeficiency Syndrome "I have common variable immune deficiency (CVID). First time ever receiving this (Gammagard) developed severe headache, N&V, and D. Temp 100.2 and low back pain. I felt like I wanted to crawl out of my skin. Symptoms continued for 4 days. Second treatment gave me a temp of 102, N&V, back pain, hypotension, and lasted 3 days. The 3rd dose was changed to Phlebogard and I had a headache, low back pain, and symptoms lasted 2 days, but did not start until 48 hrs post-administration. Much better toleration."

• Mac...
• February 21, 2018

Immune globulin intravenous and subcutaneous for Multifocal Motor Neuropathy "Great medication for myasthenia gravis (a chronic autoimmune neuromuscular disease), but very expensive. Company is not helping with cost if you have MG. They are using FDA guidelines...I will need to stop using it after several years."

• Dee...
• Taken for less than 1 month
• March 22, 2023

Immune globulin intravenous and subcutaneous for Chronic Inflammatory Demyelinating Polyradiculoneuropathy "Great medicine. Have severe CIDP symptoms. Yesterday had my first infusion, that night felt like millions of ants inside me, building me up. Have had four more infusions, 11 mg/kg, pretty heavy dose, but helps."

• ang...
• Taken for 6 months to 1 year
• December 27, 2022

Immune globulin intravenous and subcutaneous for Chronic Inflammatory Demyelinating Polyradiculoneuropathy "I was taken off Octagam in April, changed it to this Gammaked. For the last 6 months, it does not work as well as the others, they had to add saline before treatments, 2 days every three weeks. Doc is changing to 1x month, thank heavens. In the last treatment, my right hand went completely numb, though it was slowed down to a crawl. The side effects for this med are more frequent and usually bring on the symptoms of the polyneuropathy, also, the headache lasts 3 days. My body cannot seem to get used to this. I wish I could get off these infusions, but going for 1x month may be better and helping, but I am not sure."

• Adr...
• Taken for 1 to 6 months
• June 6, 2023

Immune globulin intravenous and subcutaneous "My mom was switched to Gamunex-C once the pharmacy ran out of Gammagard. Her maintenance dose was 65 mg every two weeks. It didn’t improve her weakness or relieve the effects of her myasthenia gravis at all, which we didn’t understand. It was as if she didn’t have an infusion at all."

• Sir...
• Taken for less than 1 month
• June 27, 2025

Immune globulin intravenous and subcutaneous "I had my first infusion of Gamunex-C recently, for myasthenia gravis. Pretreated with Benadryl. It was a piece of cake. Until the next day. I felt like I had the worst flu ever. Fever, chills, body aches, cough, congestion, and more. For whatever reason, I had these non-serious side effects. I know people who haven’t had many side effects, if any. I also know some who reacted like me. However, I will say this: I don’t think I hydrated well enough beforehand, which is recommended. That may have played a part, I don’t know. A big MG symptom is double vision. When I get tired or late at night, too much screen time, the double vision is back even with meds. Added prednisone, even upped dosages, nothing was working to resolve the problem. Still no change, but it hasn’t even been a month yet."

• rin...
• Taken for 6 months to 1 year
• March 12, 2025

Immune globulin intravenous and subcutaneous for Chronic Inflammatory Demyelinating Polyradiculoneuropathy "Recently completed my 6th monthly infusion and am beginning to show some improvements with motor skills in my extremities."

• mar...
• February 12, 2010

Immune globulin intravenous and subcutaneous for Primary Immunodeficiency Syndrome "In a 2007 study, Gamunex was shown to have the least side effects of any of the IVIG products."

• Gra...
• Taken for 5 to 10 years
• July 4, 2019

Immune globulin intravenous and subcutaneous for Primary Immunodeficiency Syndrome "In 5 years of use, only one infection and need for antibiotics. Reduced 'headaches' symptom with Gamunex. I was on it for common variable immune deficiency (CVID)."

• jjr...
• Taken for 1 to 2 years
• December 5, 2013

Immune globulin intravenous and subcutaneous for Primary Immunodeficiency Syndrome "The side effects are being down more than I am up. Headaches, fatigue, joint pain, nausea, diarrhea."

• Mis...
• Taken for 6 months to 1 year
• December 14, 2019

Immune globulin intravenous and subcutaneous for Primary Immunodeficiency Syndrome "Was on Gammagard at the hospital for one year. Had terrible back pain after infusion, and my numbers never got above 525 for IgG. Changed to Hizentra, and my numbers are near 1200 for IgG."

• pam...
• Taken for 2 to 5 years
• April 24, 2016

Immune globulin intravenous and subcutaneous for Primary Immunodeficiency Syndrome "Changed my life. Much healthier now."

• MMa...
• January 7, 2019

Immune globulin intravenous and subcutaneous for Primary Immunodeficiency Syndrome "I feel this medicine gives me severe joint and muscle pain for about 72 hours."

• Anonymous
• Taken for 1 to 2 years
• December 31, 2017

Immune globulin intravenous and subcutaneous for Immune Thrombocytopenia "Worked fine and lasted 9 months the first time. Second and third times, no blessing."

• Tin...
• Taken for 6 months to 1 year
• February 18, 2025

For Primary Immunodeficiency Syndrome "I have stage 3 lymphoma, my immune system low. I kept getting sick. Tried it for one year. Had headaches and flu symptoms from it. The copayment is $500 a month, too expensive."

• Ben...
• Taken for 10 years or more
• November 5, 2021

For Immune Thrombocytopenia "Had this disease for over 30 years. IVIG has not helped, but the doctor always wants to try it first. Had best results from Rituxan and Doptelet."