Dimethyl fumarate User Reviews & Ratings (Page 2)

• Doesnt...
• Taken for 1 to 6 months
• December 21, 2017

Tecfidera (dimethyl fumarate) for Multiple Sclerosis "Ok so was given my first drug and my last for now. I had hair loss extreme balance issues, no stomach cramps etc the most common. But after 3 months taking this I got very severe joint pains that moved from one area of my body to another on a daily basis. After I stopped the drug the joint pain continued nearly 3 weeks, then stopped and I threw drugs away. It was confirmed after tests at my drs and hospital it was the drug. I have never experienced pain like it. Not a common side effect but a side effect all the same. Now I' m on no drug I feel normal like my old self. How interesting hardly any negative comments on here? Or there are plenty but not been published!"

• mimosa
• Taken for 1 to 2 years
• September 4, 2018

Tecfidera (dimethyl fumarate) for Multiple Sclerosis "My husband takes this after failing with Avonex and Copaxin for RRMS. Ever since he started he's had headaches, stomach aches, joint pain, and severe fatigue. He's now taking Vitamin D and Wellbutrin. Can't sleep through the night because of pain and can't stay awake because of the fatigue. Can't do much exercise or activities due to the headaches. Only good thing was it stopped the progression of lesions. But what good is that when you don't have quality of life?"

• Turbo
• Taken for less than 1 month
• July 9, 2019

Tecfidera (dimethyl fumarate) for Multiple Sclerosis "Hands down the worst horrifying medication I have ever took!!! Took for 6 days, trial pack thank god was smart enough to stop taking. 1st day trouble swallowing, lips swelled. 2nd day swollen lips , unbalanced, 3rd day all the above plus excruciating neck, head severe pains and redness right cheek. 4,5,6th day massive pain around right eye, right ear, right cheek. All I was told 5 out of 6 days was "it will get better keep taking it" by neurologist and tecfidera!! Was losing vision in right eye in 3 days, that was May 2019 and now it July 2019 still having eye issues, swelling if right check, redness on right cheek. Have been taking benadryl since May . I have also had 2 steroid shots once in ER , 2nd in Drs office pcp. There is more and I am beyond livid. I want to be compensated from May and into the far future. Considering 1 of side effects is lip swelling to be told to keep taking it shame on you!!!!"

• Molly
• Taken for 2 to 5 years
• April 22, 2019

Tecfidera (dimethyl fumarate) for Multiple Sclerosis "Been taking Tecfidera for 3 years now. I was very sick in week 3. Vomiting for several days. Got through that. I have a burning flush 3 1/2 hours after taking tablet if not got enough food in my system. Other than that, I think it’s doing its job. I have wondered if my weight gain in the last couple of years might be influenced by it but I’m not sure. No relapses in the MS though despite death in the family and full on chickenpox a couple of years ago. If you’re new to it, persevere."

• Alexs...
• May 14, 2016

Tecfidera (dimethyl fumarate) for Multiple Sclerosis "I have taken Rebif (hated injections), Tysabri (loved) and Tecfidera. I lasted 6 months on the drug after experiencing the flushing and feeling blah every day and 10 lbs weight loss which I can't handle. I was pulled off this past March after having a low White Blood Cell count."

• Donny...
• Taken for less than 1 month
• May 31, 2020

Tecfidera (dimethyl fumarate) for Multiple Sclerosis "I started taking Tecfidera about 3 weeks ago. I started on the lower dose of 120 mg twice a day for 7 days. I experienced pretty bad flushing the first day, but it didn’t really bother me. I compared it to using tingle tanning lotion. I also had bloating, but again nothing too bad. After 7 days I started taking 240 mg twice a day. I felt okay for the first few days. The bloating got a little worse, and I did have stomach pains 1 night, but I thought maybe I ate something bad. Fast forward to a week later, and I begin having severe stomach pains/ cramping and bloating. It started early Friday morning (woke me up), and is continuing. Nothing helps the pain. Not Kaopectate, GasX, Tums, extra strength Tylenol, nothing. I’ve barely slept at all this weekend because the pain is so bad. I decided to not take any more of the medicine until I speak with my doctor. I read the side effects will subside, and I really tried to tough it out, but I can’t handle the pain anymore."

• Pippy
• Taken for 1 to 6 months
• August 11, 2016

Tecfidera (dimethyl fumarate) for Multiple Sclerosis "I was diagnosed with rrms in May this year. Tecfidera was the first medication I have tried. I felt good for about three days in the first week on the 120mg dose, apart from some flushing and burning skin. I haven't felt that clear headed for such a long time. Then, two weeks into the full dose I developed such severe cramping in my stomach with vomiting and diarrhea that I was too scared to take another dose. I will try something else instead. I really really want to have clear thoughts and energy!"

• Pug...
• Taken for 1 to 6 months
• April 21, 2016

Tecfidera (dimethyl fumarate) for Multiple Sclerosis "I took Avonex for 18 years and was recently prescribed Tecfidera. I have only been on it for three months. I was so happy to not have to inject, but swallowing these pills twice a day takes getting use to. The two side effects I seem to have is being exhausted all the time and my depression seems to be a little worse."

• easyp...
• Taken for 6 months to 1 year
• August 29, 2019

Tecfidera (dimethyl fumarate) for Multiple Sclerosis "Been on tecfidera for 6 months now. Had noticeable flushing at the start but nothing unmanageable (tried to think of it as a funny thing). Can take it now without food and have a slight feeling of flushing but not much. Not sure if it's working but easy to take and glad I choose this over avonex (side effects wise). I would recommend this from my experience but everyone seems to react differently."

• -RED-
• April 12, 2016

Tecfidera (dimethyl fumarate) for Multiple Sclerosis "Been taking Tecfidera 2 years plus. Took Tysabri 2 years prior to that. Tysabri left me wiped the day of transfusion and tired for a week. JVC antibodies detected so switched to Tecfidera. Flushing and stomach pains in the first two months were fierce but stomach pains settled. Manageable diahrea. Still flush with burning skin sensation on face, chest, arms starts 4 to 5 hrs after dose and lasts 15 to 30 minutes. On a good note, have not had noted change in MRIs sense taking the drug. Optical neuritis in 2013 permanently damaged vision but the loss has stabilized. Doctors are monitoring my white blood cells to lower risk of PML occurrence. Recommend considering the drug for relapsing MS after you weigh cost benefits in your case."

• marin...
• Taken for 2 to 5 years
• January 1, 2017

Tecfidera (dimethyl fumarate) for Multiple Sclerosis "This chemical nearly killed me ! Question : is this drug in the same category as the biologics ? If so, then I am not surprised. Like Humira, Xeljanz, Opdivo, Methotrexate, et al; I can "see the writing on the wall", in a manner of speaking. I hope not two see an entirely new year of people who are injured by an entire nation of people too impatient with the same period of time it'll take for the 15 to 20 years of strict FDA latitudinal / longitudinal double - blind studies necessary to ensure ALL SIDE EFFECTS ARE ABLE TO BE AS MINIMIZED AS HUMANLY POSSIBLE. For me, with my history of strict regimentation of timing my own medications, I came within 96 hours of loss of life due to a 3- organ-system failure. These things are like rat poison !"

• Ash
• Taken for 2 to 5 years
• September 4, 2019

Tecfidera (dimethyl fumarate) for Multiple Sclerosis "I've been taking Tecfidera for almost 3 years and in 3 years I've only had 1 lesion added based on the MRI. This is very good news... Due to fatigue and slow bowel movements I stopped taking it for about 2 months and it seems I have more energy. I'm seeing my neurologist in 2 weeks to see if there is an alternative or if he has any recommendations."

• Anonymous
• Taken for 5 to 10 years
• September 11, 2022

Tecfidera (dimethyl fumarate) for Multiple Sclerosis "I have been on Tecfidera, for eight years. I have not had any relapses, or many problems, some flushing, which I figured out, was caused by what I ate. I have been very active, including speed skating at 60."

• Vglgi...
• Taken for 2 to 5 years
• September 21, 2018

Tecfidera (dimethyl fumarate) for Multiple Sclerosis "I was diagnosed 2015 with MS and the first drug was Tecfidera had no side effects until recent after catching the flu. I have taken Tecfidera for 3 years with no side affects. Now I have stomach problems which consist of cramps and nausea. When the doctor told me to stop, I felt like a new person no fatigue or restless. Now I am waiting to see what my new medication is going to be, do not like what I see when it comes to MS drugs with all the side affects."

• Viola
• Taken for 5 to 10 years
• April 22, 2023

Tecfidera (dimethyl fumarate) for Multiple Sclerosis "I have been on it for 6 years. My MS is well under control with no exacerbations at all. The education nursing team has got the instructions regarding treating early treatment nausea all wrong. I was advised to eat a cracker with each dose. This is ludicrous. I found relief when I ate something fatty like 4 raw almonds, 1/2 “ of turkey kielbasa, or a slice of bacon. It did go away at about 3 months. Now I have rapid onset though painless diarrhea after meals. I manage this with half a CVS brand of Imodium twice a day. This is working well. I gathered these effective treatments on my own and with the help of my gastro doctor."

• Raymone
• Taken for 1 to 2 years
• April 29, 2018

Tecfidera (dimethyl fumarate) for Multiple Sclerosis "Diagnosed with multiple sclerosis 5 years ago. 50 yrs old now Tried avonex and rebiff both were tough. Wiped out after every shot. Dr put me on Tecfidera 1.25 years ago. Stomach pain in beginning-bad too. Take Zantac before every pill 15 min and eating helps too. BIG TIME Now 1.25 years later, no stomach pain and most importantly no new lesions."

• juli...
• Taken for 6 months to 1 year
• July 29, 2015

Tecfidera (dimethyl fumarate) for Multiple Sclerosis "I have been on Tecfidera since Sept 2014 and it has made a big difference to me. Firstly, no injections, which I hated and it has helped control my symptoms better, as well as having the positive benefit of sorting out my eczema. Side effects - intermittent flushing and increased need to use the toilet/washroom. I am fortunate and very grateful that the drug is prescribed for me by NHS Scotland."

• AlexCon
• Taken for less than 1 month
• May 12, 2016

Tecfidera (dimethyl fumarate) for Multiple Sclerosis "Been on Tecfidera for one week now, staring with a 120 mg dose in the evening. I take the drug after dinner. Before dinner (~15 min) I take 100 mg acetylsalicylic acid (aspirin). No important symptom yet. Just some lite flushing during the first three days (in the 7th day, no flushing, no gastro-intestinal problems). Indeed, after the very first dose, when I didn't take the aspirin I experienced mild flushing doubled by "sun burn"-like sensation over the scalp, face and neck that gone after ~30 min. This first experience begun after ~5h from drug administration (delay caused most probably by the food intake)."

• Benito
• Taken for 1 to 2 years
• July 15, 2019

Tecfidera (dimethyl fumarate) for Multiple Sclerosis "So far so good. Been taking it for more than a year after having more than 15 active lesions when I was with Copaxone. MRI scan last week found 0 new lesions, so I guess I've been doing well on this drug. The only side effect that I've experienced is redness on my skin, however it has only happened less than 5 times since I've been on Tecfidera and it lasts no longer than 2 hours."

• Chuck...
• Taken for less than 1 month
• July 28, 2019

Tecfidera (dimethyl fumarate) for Multiple Sclerosis "I started Tecfidera three weeks ago. First week I had transient symptoms but they were tolerable. Beginning my third week, I developed a severe cold with fever, diarrhea and nausea. They said this can happen because of my lowered immunity. I feel sick as a dog and just want to stop this drug."

• DBano
• Taken for 6 months to 1 year
• March 18, 2019

Tecfidera (dimethyl fumarate) for Multiple Sclerosis "Eight months in. Flushing sometimes (twice a week) maybe. Went through 3 days of fetal position causing stomach pains. That was about 2 months in. I've been working out 4 times a week, and staying positive. I feel like attitude has a lot to do with triggering symptoms/side effects."

• Rusty
• Taken for 2 to 5 years
• October 23, 2019

Tecfidera (dimethyl fumarate) for Multiple Sclerosis "Have been taking DMF (dimethyl fumarate) for MS for the past four years and since taken MRI has shown no increase in lesions. Only side effect has been occasional flushing which can be itchy, uncomfortable and embarrassing. Flushing typically only lasts about 20 min."

• Anonymous
• Taken for 6 months to 1 year
• March 31, 2021

Tecfidera (dimethyl fumarate) for Multiple Sclerosis "I was diagnosed 12/2018 with RRMS first I was on copaxone I developed and allergy then doc put me on Beta seron which gave me perminant lepord spots at injection sites. Them I tried Ocravis but with the pandemic my new neuro took me off and put me on tecfidera. There is flushing and itchy skin about 2 hrs after. My face is goes full tomato red. The stomach pains only happen once in a while usually if I have an empty stomach. For me it has worked very well, my energy level increased 100% since being on tecfidera. All in all I am happy with it."

• EMano
• August 21, 2018

Tecfidera (dimethyl fumarate) for Multiple Sclerosis "Taking Tecfidera as part of a trial for Radiologically Isolated Syndrome in hopes of preventing MS, I have brain lesions, found inadvertently. At intake appointment, 6/18, I felt fit, energetic, healthy and agile. I started Tecfidera then. Here I am in 8/18. I now have weird sensations that migrate daily, like a padded foot, weird feeling toe, tingly pinky and extreme back pain. It changes location daily! This is aside from the extreme fire-face burning, runny nose and watery mouth when the drug hits me, followed by exhaustion for about an hour! I find eating apple sauce helps the "fire face" as well as white wine. Maybe the acidity counter acts the drug? All I know is, I feel awful, not myself, and felt normal before! The dangling carrot is, taking it will apparently prevent MS! I am in a tough spot. What should I do? Docs say I can still be in the study without the pills, with free MRI's, blood tests and a close watch on things."

• NOMAM...
• Taken for 6 months to 1 year
• July 24, 2019

Tecfidera (dimethyl fumarate) for Multiple Sclerosis "Say no to this one ! I tried this and the side effects were horrible- very severe hot flashes, burning and itching sensation over my entire body. I stopped it 2and a half years ago and those hot flushes won't go away "