Xiaflex User Reviews & Ratings (Page 2)

• Anony...
• April 2, 2021

For Peyronie's Disease "It’s been 9 months and 2 injections every 6th week. No discomfort after initial injection. Always bruised for a few days. Went from 75% curvature to 50%. Opted to continue. Must go to expert in this field. The details are important. The stretcher must be from Mayo Clinic. Must adhere to wearing it as directed. The stretcher allows growth of good tissue in right area. My doctor has treated over 5,000 patients from all over the world. UCSF has their own PD unit. Highly recommend."

• Disap...
• Taken for 6 months to 1 year
• April 30, 2022

For Peyronie's Disease "I wish I had read more about Xiaflex before agreeing to be treated. I went through all 4 cycles, 8 injections in total. After 2 cycles, I saw no improvement. Now, I wish I had never done it at all. After the 4 cycles, my problem is much worse. The fibrosis grew. The bend that used to be a slight slope now bends like a knuckle. I'm far worse off than before I was treated with Xiaflex. I'm now doing daily penile traction therapy hoping to see some improvement over time. I would say to anyone considering Xiaflex for Peyronie's, don't! You will most likely regret it."

• Shawn
• Taken for 1 to 6 months
• July 22, 2022

For Peyronie's Disease "Completed 3 cycles. So far no improvement. 65 percent curve. I also use a stretching device that I paid $540 USD from the Mayo Clinic. Lucky for me, I have good blood flow and get hard erections. It still works, and the people I have had sex with do not seem to mind me having a curve. The only other option is to continue stretching or stitch it straight. Implant would only happen if I had ED. Maybe someday they will develop a better grafting material that stretches like a natural penis. It sucks turning 60."

• Dave
• Taken for 1 to 6 months
• November 5, 2019

For Peyronie's Disease "The bend moved to the top middle from being closer to the tip. The bend is somewhat lesser but now the length and girth is a lot less also. Take your chances on that it will go away by it self. Not worth the cost, pain and decrease in size. Now what can I do ? Should be lawyers begging for my business with law suit. So annoyed!!!"

• Wrecked
• Taken for less than 1 month
• May 5, 2022

For Peyronie's Disease "Had about a 35-to-45-degree curvature in the middle of the penis. Sex was possible, but sometimes painful. I should have left well enough alone. Only had one shot. Did everything they tell you to do. It straightened it out because my penis shrunk so much that the middle of it is basically gone, plus the girth is about two thirds of what it was before. No mention of that by the doctor or in the literature. Don't know how this stuff is legal. Worst decision of my life."

• Arthur...
• July 15, 2017

For Dupuytren's contracture "Painful, expensive and useless treatment. I have extensive dupuytrens. No follow up whatsoever. Immediate results seemed hopeful, but regressed almost immediately despite pt and stretching regimen. No difference whatsoever from pre treatment condition after 6 months."

• Bent...
• Taken for 1 to 6 months
• September 29, 2021

For Peyronie's Disease "Look for other options! Unless your into your penis looking like ballon art. My doctor bragged on it, telling me all his success stories. How it was my only option. I never had an ultrasound Or imaging. Before or during the procedure. However he mentioned during my 2nd injection that I had the largest plaque he had performed the injection on. At one point he ask me where he should inject it. That’s after he already jabbed my penis 5 times trying to hit plaque and injecting a little each time. If I had known what I know now about this drug, I would have even looked at natural alternatives."

• John
• Taken for 6 months to 1 year
• April 21, 2018

For Dupuytren's contracture "Absolute waste of time and money. Even after my PPO coverage I was still left owing more than $3,000. It was VERY painful and only a few months after the treatment my hands are back the way they were before I started. This is despite hand therapy 3 times a week and wearing a brace while sleeping. DO NOT HAVE THIS TREATMENT!! Find another way - I suggest Needle aponeurotomy which I did several times with great success."

• Anonymous
• Taken for 6 months to 1 year
• September 3, 2020

For Peyronie's Disease "Don't waste your time or money. I went to my urologist for the treatment , who was excellent. Little bruising or discomfort with the injections. After 4 courses of injections over several months, NOTHING. I even purchased an expensive traction devise and followed the instructions perfectly....The only option for this disease unfortunately is surgery if you want any results at all. So glad my health insurance paid for this as it's VERY expensive and ineffective."

• in...
• Taken for 1 to 6 months
• January 17, 2024

For Peyronie's Disease "I just finished my second round. Like most others, the first set of shots were not that painful but uncomfortable. The second shot of the first series was given 1 week after the first. I purchased the traction device that bends and used it as directed. The second round of shots was done on successive days and it was much more painful with a lot more bruising and pain. I couldn't use the traction device for over a week because it was too uncomfortable. I just went in for an assessment of the curvature and it went from 60 to 50 with no change in length or girth, for which I'm grateful. I am scheduled for my third treatment in a week. I can't say anything too bad about the whole experience, other than I was hoping for a more significant change. But I trust the doctors at Mayo. I will let everyone know of any changes moving forward."

• Anonymous
• Taken for 1 to 6 months
• June 17, 2022

For Peyronie's Disease "After first series of injections which were not painful I waited as prescribed before sex. First experience having sex and I got a penile fracture. Do not take xiaflex unless you want to go down the road of a penile implant"

• Tom...
• Taken for 6 months to 1 year
• January 28, 2022

For Peyronie's Disease "After two rounds of Xiaflex I can say I’ll never have a third . Never recommend to anyone no matter how bad your PD is. The pain, swelling blisters and bleeding are a 11 on a scale 1-10. Nothing is worth what this horrific drug has done to me ."

• Charl...
• November 14, 2019

For Dupuytren's contracture "I had surgery in my left and thought I would try this less invasive method. The pain of the injection and finger stretch was moderately painful. The problem is the contracture returned in 9 months and was worse than before the treatment, 60 went to 90 degrees."

• Steve
• Taken for less than 1 month
• March 1, 2021

For Dupuytren's contracture "Had the treatment 20 months ago for a 45 degree bend in my little finger. The pain was minor. The procedure was very successful with no return. I’m sorry for the poor outcomes others have had... my experience was very positive and I would certainly do it again."

• my exp
• Taken for 6 months to 1 year
• March 2, 2022

For Peyronie's Disease "After receiving 4 injections for Peyronie's disease manifested by an approximate 30 degree curve to the left, I find myself at least one inch shorter and a curve upward larger than the previous curve. I'm told this curve is not due to plaque therefore not correctable. Sex, that is penetration, is almost impossible with this particular curve. I was better off before this treatment."

• Anonymous
• Taken for less than 1 month
• December 24, 2019

For Dupuytren's contracture "I would not recommend this procedure at all. I had a reaction to the injection which caused bruising on my arm up to my armpit. It felt like my whole right side of my body was just not quite right, however my Dr. said that it just couldn't be from the shot. It is a week and a half later and my arm still hurts and my little finger is bruised, swollen and aches. The procedure was painful and the manipulation of my little finger 3 days after the shot hurt and I felt the tearing of the cord or whatever. My finger is still so swollen and bent that I'm not sure how straight it will be after it heals up, hoping upon hope that it actually heals and I can use it again. Again, I would not ever do this again!"

• Xiaflex...
• Taken for 1 to 6 months
• January 17, 2020

For Peyronie's Disease "Terrible experience with Xiaflex! This is a very bad drug! It left me worse than I was! I wish I would have never done this. I felt a burst, worst bruising ever. So very painful! I still don't feel right, this has messed me up big time!!! This drug should not be used for this!! Rating this drug as a 1 is too high!"

• Xiaflex...
• April 14, 2022

For Peyronie's Disease "I have more of a curve now then I use to. My penis is all black and blue. My urologist was shooting other injections right in bruising. Throbbing pain. Shortness of breath. Headaches. Its not worth it at all. I had way better results with acoustic wave therapy. Girth was better and it was straighter."

• Disap...
• Taken for 6 months to 1 year
• November 3, 2022

For Peyronie's Disease "Painful and stressful. It seemed to break up plaque a little after 2nd round. No further progress after that. By 3rd round there was more plaque developing and curvature actually got worse. I only give it more than one star because I do believe it helps a few people, but not a high percentage. It was worth trying at least."

• Unhappy
• Taken for less than 1 month
• February 28, 2020

For Dupuytren's contracture "I was so excited to finally get my hand straightened out!! My doctor who had special training injecting xiaflex never recommended surgery to correct my hand. He told me that I would be very happy with the results!! Well I am not. My ring finger is at a 90 degree angle. He now recommends surgery. I have a very high deductible -so the xiaflex alone was $3600.00 out of pocket!! With very little correction. I can’t help but think that these doctors kick-back to recommend the injection over the surgery. And since you purchase the xiaflex from a professional pharmacy - no refund or adjustment is issued. Very unhappy!!!"

• Rusts...
• December 21, 2020

For Peyronie's Disease "I am very satisfied with how things have gone and am happy that I chose to go the Xiaflex route. I have had two sets of injections with the third set scheduled. I started out with 65 degree curvature and am now down to 20 degrees. I would be thrilled if I was left with no further improvement since 20 degrees is mild compared to where I was. Yes, the injections are painful, but that isn't surprising considering the location. And I experienced severe bruising each time and a bit of pain for about three days afterwards. I should add that I also have Dupuytrene's, so that is the source of my plaques, not injury."

• dbt
• March 26, 2021

For Dupuytren's contracture "It has now been a year since I had the injections. I did not experience pain to the extent that some people have posted. My injection resulted in about a 50% improvement and it has stayed that way after one year. Still have a problem with it going numb in cold weather, but in spring and summer it is not a problem. All in all I feel it was a better option then surgery for me"

• Never...
• May 11, 2021

For Dupuytren's contracture "Extremely painful and the outcome was no correction. The side effects were relentless itching after the painful injections, my hand and arm swelled 2x it’s normal size for a week after injections and my hand was so painful I couldn’t even touch it. It’s only been two weeks and still experiencing pain and bruising. This drug should be taken off the market in my opinion. A waste of time, money, and unnecessary complications for absolutely no reason! I’ll turn to amputation before I would ever do this treatment again."

• Big...
• Taken for 6 months to 1 year
• September 7, 2021

For Peyronie's Disease "Completed 4 sets of 2 injections (8 injections total). It wasn't pleasant receiving the shots. Nor was it easy Not having sex for a month after each shot. But, everything does appear to be straightening out. It is longer and thicker. Would not go through it if there was a better choice. I have had surgery on my hands for DePutryn's, as well as the injections too...Surgery is a rougher path. Surgery on the hand was bad enough, injections a better alternative. And the stories you will have will make your friends cringe. WIsh I had known about the numbing creme. But done now. Doctor says it can take up to 9 months to get full benefit. It is working great then...Kind of like getting a Dick Lift."

• dbt
• November 8, 2020

For Dupuytren's contracture "It has now been 8 months since I had my injection which resulted in a 50% improvement. No return to the previous contraction yet. The problem is the circulation in the finger is very poor, there is visible atrophy in the finger and it goes numb with the slightest amount of cold. From my experience I can not recommend this procedure. Will update my review in about 3 months."