Kineret User Reviews & Ratings

• Sam...
• Taken for 5 to 10 years
• September 16, 2023

For Rheumatoid Arthritis "Kineret gave me my life back. Within days, I was feeling back to my old self and free of pain. I'd tried everything under the sun including Methotrexate (pills and injections), Prednisone, Plaquenil, Sulfasalazine, Meloxicam, Enbrel, and then Humira. When I didn't respond to the biologics, my Rheumatologist told me there was nothing I could do besides a double wrist synovectomy. I fired him and got on a waitlist to see a new doctor. It took 8 months to get that appointment, but it was well worth it since one visit was all it took to get the prescription I needed. 11/10"

• Ses...
• January 31, 2012

For Still's Disease "Yes, it does burn when you start to take it, and the spot injected might itch. I did a couple of things before taking the shot: 1. warmed it up for about 30 minutes, 2. applied ice to the spot I planned to inject, 3. would take a Benadryl to keep the itching down. I've been on it several years now. It burns or itches once in a blue moon. It has helped but doesn't keep the fevers and joint/muscle pain completely away anymore. Good luck! This medicine is definitely worth a try if you have AOSD."

• Sea...
• Taken for 1 to 6 months
• May 13, 2023

For Rheumatoid Arthritis "Realized/appreciated the effects after 2 months of daily injections. Very effective at reducing, if not eliminating, full body inflammation without steroids. Kineret’s on-track program made my prescription possible."

• Kel...
• Taken for 1 to 6 months
• April 21, 2023

"I have Still's disease. I was terrified to give myself a daily injection, but after a week or two, I was a pro, and it’s become so much easier. The medicine does sting, and you can feel it go in, which is an odd sensation, but letting it come to room temperature for 30 minutes helps a ton. I also wait a minute after using the alcohol prep pad to let the area dry before injection. I make sure to rotate injection sites and haven’t had any side effects or injection site reactions, thankfully, just a little bit of light bruising sometimes in the injection site areas as I mainly inject in the stomach area."

• K V...
• Taken for 1 to 2 years
• June 11, 2024

"I have been taking Kineret for over a year now. I have Adult Onset Still's disease and had Macrophage Activation Syndrome, which can be life-threatening. Kineret literally saved my life and has allowed me to stay off long-term steroid use. I haven’t noticed negative side effects with this drug either. Wish it wasn’t a daily injection, but it’s worth the pain/inconvenience!"

• Gab...
• April 10, 2013

For Schnitzler Syndrome "I've been on Kineret (anakinra) for several years for Schnitzler syndrome. No other medication gave me relief, except high-dose steroids, but I was pain and hives-free within a couple of days of starting Kineret and back digging in the garden and walking kilometers when I had spent the previous 7 years mainly in bed. It was on the PBS list, but now my hospital pays for it on my behalf. No injection site problems or side effects."

• Anonymous
• March 5, 2010

For Still's Disease "The drug works very well. What they don't tell you, though, is that it burns like a steroid each time, every time. So go into it forewarned, as it's not anywhere in any literature, and it's not something your physician will likely tell you beforehand."

• Bel...
• March 10, 2024

"I’ve been injecting Anakinra for two years. It’s been life-changing for me as someone who has suffered for years with the inflammation, urticaria, fever, fatigue, and pain associated with Schnitzler's syndrome. In 24 hours, it cured my symptoms completely. I have had no issues with this drug, apart from some minor injection site irritation. It helps to warm up the syringe to body temperature prior to injection. I inject 100 mg daily into my stomach."

• Sti...
• February 11, 2011

For Still's Disease "I've only been taking the 100 mg shots for 8 days now. It does burn even after it has warmed up. I think this might be because it's thick and has to be injected slowly. But like they say, no pain, no gain."

• Anonymous
• September 3, 2011

For Schnitzler Syndrome "Kineret works great for my Schnitzler's syndrome. It can hurt when injected, but if I warm it up to room temperature by letting it sit out for a while or hold the syringe in my hand to warm it up, it hurts a lot less."