Firdapse for Lambert-Eaton Myasthenic Syndrome User Reviews
- Ann...
- Taken for 6 months to 1 year
- March 30, 2020
"I took Firdapse for about 9 months, and I had so many side effects. I had a pain in my lower back that went from one hip to the other hip. When I got up in the morning, I could barely walk. It took until afternoon for it to go away, if it did then. I had pains in my thighs and upper arms. After I took the medication, it would take 2 hours for it to work, and then it would only last an hour. My previous medicine took 20 minutes for it to take effect and lasted for 4 hours. I would never recommend this medicine. There are other ones out there that are better. My insurance covered it while on it with help from a foundation, but when I stopped using it, they no longer covered it."
- Liz...
- Taken for less than 1 month
- August 8, 2019
"Allergic. Definitely not the same as 3,4-DAP Ruzurgi (which I am not allergic to)."
Frequently asked questions
- What is the difference between Ruzurgi and Firdapse?
- What is Firdapse (amifampridine) used to treat?
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"Much worse side effects than 3,4-diaminopyridine. In addition, it dramatically exacerbated a kidney problem. Plus it does not last the 4 hours 3,4-diaminopyridine and/or Ruzurgi lasted. The FDA did monumental damage to the LEMS patients, and the company that produced Firdapse should be sued and the FDA approval stripped."