Firdapse for Lambert-Eaton Myasthenic Syndrome User Reviews

• Loi...
• April 2, 2023

"Much worse side effects than 3,4-diaminopyridine. In addition, it dramatically exacerbated a kidney problem. Plus it does not last the 4 hours 3,4-diaminopyridine and/or Ruzurgi lasted. The FDA did monumental damage to the LEMS patients, and the company that produced Firdapse should be sued and the FDA approval stripped."

• Ann...
• Taken for 6 months to 1 year
• March 30, 2020

"I took Firdapse for about 9 months, and I had so many side effects. I had a pain in my lower back that went from one hip to the other hip. When I got up in the morning, I could barely walk. It took until afternoon for it to go away, if it did then. I had pains in my thighs and upper arms. After I took the medication, it would take 2 hours for it to work, and then it would only last an hour. My previous medicine took 20 minutes for it to take effect and lasted for 4 hours. I would never recommend this medicine. There are other ones out there that are better. My insurance covered it while on it with help from a foundation, but when I stopped using it, they no longer covered it."

• Liz...
• Taken for less than 1 month
• August 8, 2019

"Allergic. Definitely not the same as 3,4-DAP Ruzurgi (which I am not allergic to)."