Alpha 1-proteinase inhibitor User Reviews & Ratings

• swe...
• Taken for 1 to 2 years
• January 12, 2013

Alpha 1-proteinase inhibitor for Alpha-1 Proteinase Inhibitor Deficiency "I was diagnosed with Alpha-1 Antitrypsin Deficiency in 2010. I currently receive weekly infusions via a surgically implanted port. I infuse at our local cancer center. I have attempted home health and was horrified by their lack of knowledge and experience for running an IV, and none of the five different people assigned to me took the time to access the online training on medication preparation. Side effects: extreme tiredness, feel drained."

• Dis...
• Taken for 1 to 6 months
• May 29, 2020

Alpha 1-proteinase inhibitor for Alpha-1 Proteinase Inhibitor Deficiency "I have been on Glassia since February 2020. It is now the end of May. I had a reaction when I was first on it. Began taking Benadryl on my second infusion, up to two weeks ago. I have stopped taking the Benadryl when I ran out of it. I have been hesitant to go to the store to pick up more Benadryl because of the COVID. Anyway, long story short, I have noticed that I have a tad more energy for the first two days, then I feel extremely tired before my next infusion. I have noticed that my hot flashes are worse, and I have been gaining a huge amount of weight. I don't eat tons and could not figure out why I've been gaining. It ends up that it might be the Glassia. It is under the rare side effect. I wish it was the other way around, but it is not."

• Kat...
• Taken for 1 to 2 years
• February 25, 2023

Alpha 1-proteinase inhibitor for Alpha-1 Proteinase Inhibitor Deficiency "I have been receiving Prolastin-C IV for the last 2 years. I can tell a 100% difference in my breathing and stamina. I had to miss a couple of treatments because of insurance issues, and I could tell I had labored breathing issues, could not get my breath, and I was extremely tired."

• GWF...
• Taken for 5 to 10 years
• March 3, 2018

Alpha 1-proteinase inhibitor for Alpha-1 Proteinase Inhibitor Deficiency "I have been on this since 2005 and have had little to no bad reactions from it. I guess that I am one of the lucky ones, as my wife is a registered nurse and will give me my transfusions at home. However, my brother passed at 47, and he was on the same regimen."

• Anonymous
• Taken for 2 to 5 years
• May 1, 2018

For Alpha-1 Proteinase Inhibitor Deficiency "I've been receiving Prolastin infusions for a little over 3 years, and the only negative I've had is feeling tired or drained afterwards. This only occurred less than 6 times, and it was also on days when my BP was a little higher than usual."

• Anonymous
• November 15, 2008

Alpha 1-proteinase inhibitor for Alpha-1 Proteinase Inhibitor Deficiency "As far as a drug that needs to be infused, it is about as easy as it can be to do."

• Anonymous
• January 15, 2012

Alpha 1-proteinase inhibitor for Alpha-1 Proteinase Inhibitor Deficiency "I feel so much better now and find that compared to other AATD medicines, I feel better after this one is infused."