Rheumatoid Arthritis - How old were you when diagnosed, what is the average age of people diagnosed?
- 24 Mar 2011 by Anonymous
- rheumatoid arthritis, pain, fibromyalgia
I just got lab work results, and it seems that I may have RA. Just want to know the average age of people with this condition. I don't feel as if I am in the right demographic (for lack of a better word) for this disease.
Also, anyone that has an opinion on pain relief, please help me out on this?
Thank you in advance!
24 Mar 2011
I was diagnosed about 13months ago at 47, it was quite a blow since I already have fibromyalgia,degenerative disc disease(with spinal fusion at c4-5,and more that need surg)and celiac disease. I was already on fentanyl for pain but because the RA was so severe at diagnosis my rheumatologist also gave me vicadin that I only use when I can't tolerate the pain. I was started on prednisone(all the way up to 40mg because of severe inflammation),methotrexate,panquinal for the RA without much relief so I started on remicade 400mg x3 treatments-then 600mgx2 and I was finally getting some relief we even weaned me off the prednisone wasn't needing any additional pain meds and then in January my labs went crazy with much increased inflamation and all my joints are so inflammed I'm back to square1.
So now I'm back on prednisone 10mg andI've had 1 treatment of remicade at 800mg-I'm due for my next treatment next week and I'm still weak and sick from the last one(I get them every 4 weeks). I hope you have luck getting your symptoms under control--I know it takes awhile so hang in there! Kim
24 Mar 2011
Usually it is diagnosed over the age of 40-45 perhaps in the knees as the knees have taken the body weight long enough to get effected, the pain then sets in on a almost permanent basis.
SL, between the joints of the knee cap is a fluid like substance which when in constant use depletes which acts an lubricant for the joints, there are some methods/home remedies to reduce the pains, start to take the juice of aloevera, perhaps it would be available in a shop where you could pick up natural products or try a good homeopath, there are medications available in stronger potency to give immediate relief.
Take care & keep me posted, please.
24 Mar 2011
Hi SL, my mom was diaganosed at 27. It really is a disease for all ages including adolecents. My mom had never used anything for pain relief even when she was really ill and bed ridden when I was an infant. She does now get injections in her knees, non sterodial. Kind of a filler for lack of a better term. It was a fight with the insurance company to get it, but it was worth it. Like most auto immune disorders RA affects everyone differently. As I'm sure must know with your fibromyalgia. For her she has periods of flare ups followed by years of remission, with things like her knees being a constant. I think education and a good doctor are going to be key for you. Best of luck my friend. Love
24 Mar 2011
Hi S.L., Of all the people that I know, NSAIDS seem to have helped them the best. I don't do too well with those meds., but that's me. I always wonder why God built us these wonderful, intricate bodies and we always forget to have our engines checked every so many miles! LOL! Seroiusly, I hope you feel better, please keep me posted. Fall Queen
24 Mar 2011
First of all, let me say that you are in my prayers. RA can be diagnosed even in young people so you aren't out of the ball park. I would get a second opinion by a rheumatologist to confirm the diagnosis.
In the meantime, educate yourself as much as possible about this disease. There is a wonderful website at:
At the top is a drop down menu with a wonderful list of info about RA including home remedies. On the left margin is another plethera of info to click on. So check it out. Exercise and diet are key to the treatment of early stages of RA. It can be controlled without serious medication.
I take Celebrex which is a NSAID of the Cox 2 inhibitor type for my osteoarthritis. It has less side effects on the stomach then the "older" type NSAIDS. It is also prescribed for RA and really helps my pain. I don't have to take any other from of pain medication.
I know you are concerned and rightly so, but try the website I mentioned and start a proactive plan of gentle exercise and appropriate diet and talk to a rhumatologist. I think you will find that with the appropriate actions you can ward off the worst of the symptoms of RA.
Wishing you the very best,
24 Mar 2011
Hello my dear friend!
I was initally thought to have problem with RA when I was around 40, then after I caught these series of falls and had all the special studies with MRI's, laboratory work and CT scans they knew then that for sure I had it, I have found that they could have given me enough Opana to sent me out of this world and it didn't get rid of the pain, the doctor added Ibuprofen prescription 800mg. one tablet every 6 hours which equalled 3200mg, I found that gave me a lot of relief, she said that the combination of Opana and Ibuprofen worked well together but she said that the Opana especially when you had inflammation and anything to do with rheumatoid problems you needed to use the two together because of the anti-inflammatory effect of the Ibuprofen. Hope that you start to feel better with this, good to hear from you, take good care,
24 Mar 2011
Hey Lara! Even children can be diagnosed with RA. I worked with a girl who was diagnosed at age 10. It can affect all ages. Feeling like an ole lady are ya? :) I have heard a lot of good things about Remicade. Then again some cant tolerate it. You know how that kind of thing goes. It is one of those things of trial and error until you find what works for you like so much of medicine is. At least you may have a definite diagnosis for why you hurt all over. Perhaps it has been more RA than fibro?
24 Mar 2011
Hi sweetlemon, I'm not sure if I was in the right demographic, but I was diagnosed at about 35 years old. Big problems didn't begin with it until I was about 48. I'm 53 now and am having a rough time with RA and Fibromyalgia. It might be a weird question, but do you have irritable bowel syndrome and/or Fibro? These conditions sometimes appear together. As far as pain relief goes, I've been taking methadone for about 18 years. It's the only thing that has helped me. I started with percs and vicodan, but those things aren't as long lasting as methadone. I'm certainly not encouraging you to take methadone! It's an absolutely hellish detox. These days there are medications (like Lyrica and Savella) for fibro and RA that work for a lot of people. You have to discuss all of this with your doctor.
I hope you have one you trust and feel comfortable talking with. You didn't mention your age, but please be very careful about what prescriptions you take. Life is long (hopefully), and you don't want to be a slave to your meds like I am! I wish you the best, keemo7
25 Mar 2011
Lara, you just had to go find another thing wrong with you didn't you? haha Just kidding! I don't have RA, but severe OA, & completely understand the pain. Am having surgery on left wrist & thumb on April 11th to remove a cyst & arthritis on the thumb. Can't use it at all. Makes it a Bitch to type! I have heard that even children get RA, so maybe you've had it for a while. Is this the first time you have been tested for it? Seems like I've been tested for everything in the book! Three positives for Lupus , 2 negatives. Crazy! Not to mention all the other things, but they were negative. I have fibromyalgia too. It's the most miserable disease in the world! I found out you even have trigger points in the tummy left & right side. Was having problems with bowel pain & a new doc gave me trigger point injections.
Walla! Pain was gone! Guess I haven't really answered your question, but just wanted to put in my 2 cents worth! I wish you all the best. Take good care of those joints...
10 Apr 2011
My aunt was diagnosed at age 30, and she is still doing well at 66-as well as RA will allow, but still walking. She had bunion surgery a year before, and had complications. She was informed that the surgery had triggered the RA, but I am not sure that really was the case. Here is what I found about the age:
The disease can begin at any age and even affects children (juvenile rheumatoid arthritis), but it most often starts after 40 years of age and before 60 years of age. In some families, multiple members can be affected, suggesting a genetic basis for the disorder.
17 Apr 2011
I was diagnosed with RA last year (33 yrs. old) I thought I was way too young for that. I was fine one day and unable to open a jug of milk the next. It was extremely upsetting, but it is what it is... anyway, I have 2 young boys and needed to get feeling better quick. Dr. put me on a Prednisone burst and I felt like doing cartwheels, but then I gained 15lbs. In the meantime I was put on methotrexate and plaquanil. (motrin 800, mobic, did nothing for me) this has helped a GREAT deal, but still get frequent flare ups, that for me, norco works wonders. Everyones mix of drugs is different... and it takes time to figure out what that is (which to me was very distressing) but its the only way, no quick fix. My Rhume. freaked me out with the methotrexate and preganacy so much that I got my tubes tied. Anyway, It helps to know others are out there and you're not alone... hope I helped some!!!
17 Apr 2011
Even children can have RA, Lara. Sorry to hear that's part of your diagnosis. Mary
17 Apr 2011
I was 49 years old and had recently had an auto accident with a neck injury. I have had it for 1 1/2 years now and still working and taking the meds for it. I do not take anything for pain relief except advil and occasionally flexerol. Hope you find some relief.
16 May 2011
I was diagnosed at 2. I had JRA - Juvenile Rheumatoid Arthritis. I do not show any markers in my blood though. Apparently 5% of people with Lupis or RA do not show these markers. I quit eating and one day I quit walking. They had me in the hospital for weeks running tests and life has been one big management plan since then.
I have to say that for pain Celebrex was my drug of choice. The words Celebrex and Peace go hand in hand for me. Next to remission, it's the most pain free I've ever been. Unfortunately, I was on Celebrex for a long time and can no longer take it due to heart/cardiovascular problems. Value it while you can. The retail price of Celebrex is approx $60 per month for a 400 mg a day regimin in the US. Basically $1 per pill. If your insurance will cover it... GREAT!! If not, it's worth it to get it anyway if you can afford it.
If you're looking for help on a flair... soak in the bath tub for about 20 min with the water as hot as your skin can stand it to help with pain. Then elivate and ice the joint imediately to reduce swelling. I HATE the cold, so for me to offer this as a solution... it's worked for me.
There are ways to help reduce flairs by controlling your diet as well, but this is hard to balance and it takes time figure out what you can and cannot have. Think "no red meat, no alcohol." Those are the two biggest factors that set me off.
Hope this helps.
23 May 2011
hi, yeh i was around 12yrs old when docs started to prescribe me panadeine forte for this reason. now im 39, and i also have just found out i have osteoarthiritis! M
ost days, im in pain and sometimes jus convince myself that i have to jus accept the fact that i'll have to live with pain for rest of my life. my latest doc has been prescribing me Durogesic patches, which help alot,but not magic, still feel pain,sometimes (depends on how active my day has been).
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