Been going to rehab for my back, it feels OK for awhile then the pain returns. This has continued for over a year. My prescribing doctor says it is not caused by the prolia. I also have one kidney and celiac disease, she knows that as well. I have had 3 injections and after being in pain so long I want off, something is not right.
How do I get off Prolia, I am sure that it is causing bone pain?
Question posted by Linda T Williams on 10 Feb 2015
Last updated on 4 September 2021 by Janice Cox
To me it do cause pain in different ways.Also swelling in feet and ankles for me.Will not take again.
I had been on Prolia since about 2012 and it was slowing (but not stopping) bone loss. Because of a change in personnel at the medical center, My Prolia shot was delayed this past January, 2018, and when it was about a month late I had three painful vertebral compression fractures.
Now, over eight months later, I am beginning to get just a little of my former life back. The more I learn about Prolia now the more I want to get off of it, but I do not want to incur the pain and disability (some permanent) I suffered.
I am trying to find reliable information on how to get off Prolia SAFELY?
You are not the first person to attribute bone pain to Prolia. But it seems to me that it does seem unlikely to be felt just in your back. My bone pain is all over my body. And another woman complained about bone pain in her legs. You can just stop the Prolia, but if the pain is being caused by Prolia, then it may not go away right away with stopping Prolia. I am certain that my bone pain was caused by Prolia. It is getting slightly better, but still bothers me 2 and a half years later. You can list your problem with the FDA as a Mediwatch. Just go to the FDA website. If they get enough of the same complaints, then they will make the manufacturer list it as side effect.
Despite the Dr's claims, if you want off he is obligated as your health care provider to help you stop it and help you do so in a way that will not harm you. Just ask for help getting off of it, you need this help from your own Dr and not an unknown in the internet. Best to you.
- Prolia uses and safety info
- Prolia information for Healthcare Professionals (includes dosage details)
- Side effects of Prolia (detailed)
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