This is steadily getting worse. I called my neurologist and could not even get an appointment to discuss anything. She said there is nothing that can be done for me. I asked about special shoes or anything to help with the balance and lack of coordination. I walk like a drunk all the time and have fallen a lot. I am very discouraged as I feel like the medical world has given up on me. My pain doctor will only discuss a pain stimulator. Has anyone else gotten to this point or know of something I can try? I am desperate, I feel like there is no hope
The neuropathy in my legs is causing severe muscle weakness, loss of balance and coordination?
Question posted by smileyzz on 23 July 2013
Last updated on 1 September 2019
jUST STARTED PHYSICAL THERAPY FOR VESTIBULAR
Sounds like the same thing happening to me. Don't know what the outcome will be--- my primary gave me a script when I asked for it. (Have had enough problems with eyes and getting glasses to see right - it was the eye specialist that found the unbalance in my walk, etc. and suggested this.
Even though you just step back and forth trying not to tip over, its difficult and left my head feeling very off balance last week. Just beginning...
I have the same problem as you are speaking of. I read this drug report about statins drugs and that the drug may be causing neuropathy and weakness in the legs. I am on statin drug and I stopped taking it five days ago and I can see a difference already with my balance and coordination.
I was having the same problem and recently corrected it by eating a Whole Foods plant based diet, minimizing sugar and alcohol, enough sleep, exercise and keeping my weight low. It took a while and hard work but so worth it. Things can be changed with lifestyle. Look up Dr. Pam Popper on You Tube. She helped me immensely.
I see this is an old post, but have you had your vitamin b12 checked? Anything under 500 is low, even if the reference range is 100-900.
It was 912 last time I had it checked so I am not sure how much the Metanx will help, if any, but it is worth $200 to find out. I struggle to get to sleep every night due to the pain in my feet so I am looking for any help I can get.
I began Metanx last week. Many have had good results with it. It is worth a try. It is not a pain masking drug, but more of a B vitamin supplement to help get blood flow to the nerves. Insurance did not cover it so it cost about $200 for a 3 month supply. Has anyone else tried it? If so, did it help any?
Please don’t lose hope. I have had PN for 13 years. I have severe progressive PN and am disabled and live with chronic pain. The positive part is that I was in your place about 5 years ago. I could barely stand and had list almost all of my muscle mass. My neurologist suggested PT and the therapist focused on getting me to balance for 5 seconds. I worked the exercises etc... and I regained a lot of strength being able to walk for 10 minutes - needless to say my dogs were happy. My dr said the best thing I can do for myself is to maintain strength. I see a podiatrist who has provided orthotics, air casts and I wear timberland hiking boots which aid in stability. I was proactive knowing that I should not be driving as I couldn’t feel the pedals. I have hand controls on my car which enables me to be independent. I see pain management and have run the gamut on Rx drugs.
I now have medical marijuana that takes the edge off the pain yet not completely so I continue to keep being open minded. I apologize for the long reply... I want you to know you are not alone! Every morning I start over hopefully having a good day! Hugs and hang in there!
I have nerve pain in my feet. It has not spread up through my legs or to my hands (yet). Half the doctors said I had peripheral neuropathy and the other half tarsal tunnel syndrome. They all say it is idiopathic. I say it was from Ambien. Ambien lists peripheral neuropathy as a side effect. My symptoms began after taking Ambien and were worse 30 minutes after taking it. I am about 99% sure this was the cause. I am not diabetic or an alcoholic. I stopped taking it about 9 months ago. Others have attributed this nerve damage to Cipro. What do others attribute their pain to? I am on here to learn about causes and treatment. I have tried physical therapy, electric stimulation, laser light therapy, vibration therapy, and even tarsal tunnel surgery and none of those have helped at all. Currently I am taking ALA, NO booster, CBD oil, nutrient food shakes, and relief factor, for OTC treatments.
So far I have not noticed and difference, but have not been on them long so I have not made up my mind on any of them. The only way I can get to sleep at night is gabapentin 600 2 hours before bedtime. Sometimes, at this point, usually, I take another 300 during the day. If everyone lists their cause and treatments (and if they were successful or not) I think we could all benefit. Good luck to all my fellow chronic pain sufferers. I try to keep a positive attitude as well, but I fail about 95% of the time. You may want to try Cryonext Integrative Health Care. They specialize in treating nerve pain. I went there and I would say the level of 'bee stings' per day went down.
I am also a neuropathy sufferer. Getting desperate. The only thing that really helps me is Gabapentin and 24 hour CBD oil patches on my feet. You can contact me Gary 208-789-7073
I too have the same issues. But I also have a lot of pain in the bottom of my feet. It makes it difficult to walk. I recommend you get some good doctors who are familiar with neuropathy. I am being treated by 2 neurologists, 1 hematologist, and my family doctor. They share information and discuss what medications should be tried. Unfortunately none of the medications have worked. So the conditions are getting worse and they are moving into my hands. My wife did find neuropathy shoes on the internet. They are sneakers and they do help. They do have shoes. I don't know if this will help. But you will at least know you are not alone.
I have had non-diabetic neuropathy for about 12 years. (I am currently 65.) I have very little faith in western medicine. I
have chosen an alternative holistic path such as maintaining a healthy weight, non processed very little sugar whole type of foods, mostly plant based diet and daily exercise (whether I feel like it or not) I also take B vitamins and some supplements. Doing this has vastly improved my symptoms and quality of life. I also did a lot of online research for alternative ways of healing. I have read several books on pain management and implement relaxation techniques. I choose not to be on all the dangerous drugs as I age. This is your life and body and you can't depend on the western health care (or rather sick care ) system to help much. You need to be very proactive about your own health.I know it's difficult and challenging but it CAN be done! Good luck and blessings to you!
I fall a lot too but it’s not from muscle weakness it’s because my pain becomes so bad that I just cannot walk or stand anymore. My pain is nonstop! Like I am never at a point where my pain level is below a 5, and I take Oxycodone 3 Times a day everyday. I’m in a pain clinic.
I've had the same symptoms you describe for a couple of years and have found the medical profession to have no answers or recommendations. My response to the problems are to concentrate while walking (balance) to ensure I don't fall and to maintain exercises for the extremeties and, most importantly, keep a relatively positive attitude. I take pramipexole
for partial relief
There is hope I take
There is hope I take a natural supplement regimen and it's helping my neuropathy tremendously let me know if you want to know it it's not a scam I was desperate just like you I have neuropathy and polyneuropathy please don't give up I can email you the link or send you that information !! I had balance problems shocking pains in my feet I still have issues but they're getting better
Curious about your vitamin protocol for neuropathy
islandgirl, i would really like to know what natural supplements you take, i have the same issues and really fed up of all the medications i take 13 a day and none are helping me at all
What is your regimine?
Please what is the supplement that you have been using ??
What is the natural diet you use for your neuropathy.
Appreciate a response
I have been having the same problems with my right leg. I was just wondering if anybody else has had the same symptoms after starting the levemir pen for type 2 Diabetes. I know joint pain and weakness are listed as side effects. My Thigh muscles in the front of my leg hurt so bad,also.
I don't have diabetes but I do have the leg muscle pain where I can barely walk and in my arms... showering is a challenge... I am going next month to see if it is from levaquin... check your meds side effects to see if it could be the cause..
I am 78 and have peripheral neuropathy. Very poor balance and weak legs.
Has anyone found a successful treatment for this
I have what sounds like the same issues. I am also having what feels like electrical-like shocks in my left knee and shin
It is miserable and I barely sleep as a result.
If anybody could give me any path for help, I would so appreciate it.
depression, peripheral neuropathy, vertigo, back pain, fatigue, muscle
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