I don't know if I have RLS or not, maybe someone can help?
Question posted by Cathleen186 on 1 March 2011
Last updated on 7 March 2021
All my life from childhood til now, I always have to be shaking my leg. As a child it was the only way I could fall asleep. I'm moving it now as I type. At meetings where I can't shake it a lot, I still tense the leg to provide very small movement no one can see, but alone I prefer to shake it. I know it sounds silly.
I don't think it is RLS because there is to "itchy " feeling or restlessness. More like sucking your thumb, I just feel comforted when I do it. It's always the left leg, never the right. I doesn't bother me, but those around me tell me to stop, or in a restaurant the whole booth will shake and I even had a lady get up and yell at me for shaking the table!!!
Also it is not unvoluntary movement because I've had that when I was detoxing from Celexa, twitches I couldn't do anything about.
Does anyone have this? Heard of this? Is it just a part of my anxiety disorder?
Added 5 March 2011:
Just an update. I told my dc and he prescribed Requip. I took 2 doses. Seems to be working
I am 84 years old, and the RLS (name for whatever happens tome is VERY inaccurate), has gotten worse as I have gotten older. This name implies that the problem is in the legs. The legs seem to be the aim of the vicious nerve attacks that begin somewhere much higher and go screaming down my body to the legs where it explodes if I do not immediately move my legs which stops it--for the moment. But it is always just waiting for me to relax again and then I feel it coming fast and hard. I have become so tortured by it that my body wakes before it gets far and moves my legs. But it is a miserable night, I often just give it up and get up and give up trying to sleep.
I have looked up some meds and discontinued some (Omeprazole) that can cause RLS and it has helped. I recently switched from Armour thyroid back to Levothyroxine and wonder if that is why it has come back so consistenty and with such force.
I have been given several different prescriptio meds by my doctor, some of which have helped. But most leave me pretty dull and/or tired and pretty useless the next day. Gabapentin lost effectiveness after a few weeks, plus left me dull and useless the next day. I never take these meds on a regular basis, but only when I had the problem. The one thing that has been somewhat reliable is Valium. I bite off a small piece (I usually get 6 "servings" out of one 5gm pill) and soon the source of that nerve is calm and I sleep. But the length of the relief is becoming shorter. I used to sleep 4 or 5 hours--which was WONDERFUL--but the last few weeks it has been more like 2 or 2 1/2 hours.
Valium has been my only source of peace some times--occasionally emotional upset due to life issues--and I do not want to lose it as a tool, or use it up too quickly and as a result lose access to it. I am very careful with it, but the nights are becoming more and more miserably and often torturous.
Does anyone else on here have this kind of vicious nerve attacks and have any information about what causes it or what relieves it? What meds might affect--make it worse, like Omeprazole and antihistamines that make you sleepy--for awhile I was using 1/4 of a 25gm Benadryl when I could not sleep until I figured out that one of its side effects is RLS.
22 Aug 2017
I Shake my legs while I am sitting and while I try to go to sleep.But i did notice at nite my feet itch also. I believe it's anxiety and nerves I've been under a lot of stress lately. More stress more shaking
19 May 2011
This may be a little too personal, but I heard on the NEWS the other day that RLS may be cured by having orgasms. I am NOT kidding. Me and my husband laughed about it, because I also have RLS and was diagnosed, but never took anything for it. Since I also have Graves Disease which causes sever anxiety, I was given Klonopin. Since I started taking that, the RLS has not bothered me ever again. So you can take your pick. Sorry if that was a little personal, but it REALLY WAS on the news, probably one of the cable news shows, like MSNBS. Good luck to you, and I hope you find something that works. I think it could also be a vitamin deficiency.
13 May 2011
i have rls and ras, its like this feeling thats deep in ur bones and in order for you to get some kind of relief, you got to stretch your arm or legs till they hurt, its a sensation and tingling like worms in you legs and arm, i get it in both, i find now that im tapering off of my pain medication, part of the withdwawl is the resltless leg and arm, i talked to my dr who said it can be treated with Sinemet, wich if for parkinsons, wich also makes u hallucinate.
5 March 2011
OMG! I'll have to get that for my hubby! Guess we were all wrong! Good luck kiddo! Mary
5 March 2011
Hi Cathleen:) It just sounds like something you do. It could have to do with anxiety or just something you're used to doing. I did not have rls when detoxing from suboxone but I had a roommate who had it and she said it was the worst feeling ever. The doctor referred to it as the heebie jeebies. I think the clonidine relieved her from this or the neurontin. I think a lot of people shake a leg while sitting, just something to do like twirl your hair but if it's bothersome to you then I think that's rls. Are you all done with your pain meds and if so how is the suboxone working out if you're taking it. Hugs to you!
2 March 2011
I believe it may be part of your anxiety disorder, but I'm not a doctor. A lot of people have little habits . I knew someone once who would always blink his eyes a lot when anxious. He did it as a child, and still does it A's an adult when nervous about something. Talk to your doctor about it. I used to shake my right leg a lot when I was in bed, it would drive my husband crazy. And the more he would ask me to stop, the more I would need to move my leg. Ha!Ha! It was almost like subconsciously I knew it was bothering him, but I couldn't be still. I don't do it very often anymore, so I think in my case, it had something to do with all the meds I was taking, and also when I wasn't taking them because I ran out. I hope that person wasn't someone you have to deal with often, the one who got upset at your table.
I hate to say this because I would really rather have a few friends than not have any, but I just don't like most people. It just seems that people are so rude and uncaring of others in this day and time. What is up with that? I avoid people most of the time because they make me uncomfortable. I don't like being that way, it's just how I feel. Guess I've just had some bad experiences. Hope you have better luck!! NIK
2 March 2011
Cathleen you dont sound silly. Im not sure what it is... I think we attribute things we do often with our anxiety but talking to a dr or T might add some insight. I was diagnosed with RLS years ago and I cant remember the drug that magically helped me at the moment (I remember Requip). If I forgot my legs hurt so badly and I could hardly be still until it worked. I thought it was a rx to a med combo bc it finally went away and then returned. I started the Requip again and I had some mj side effects. My legs could not be still and I would have to get up and walk until the misery passed so Im thinking this is not RLS for you. I grind my teeth when Im anxious and so maybe this is your body's way of comforting you. Im sorry, it must be so frustrating!
2 March 2011
I have suffered from RLS for many years now and I find it is a lot worse at night time, I take Ropinirole 3 times a day with bed time taking the most amount. The legs feel like that you have to keep moving them and to keep stretching them to get relief, but the tablets do work fairly fast. But the best thing I don't have any side affects from this drug, and you can't say that to many drugs. Take care of yourself, Liz.
1 March 2011
Hi Cathleen! I'm sorry to hear of your problem. My husband, my step-son and my sister-in-law all have restless leg syndrome. I had never heard of it before 9 years ago. Decades ago it wasn't diagnosed or even discussed much and there weren't any prescribed medications at that time. My husband had mentioned this condition to his doctor for years before finally getting a prescription. He's on his third type of med which seems to be helping him at the moment. He can't remember the name of the first one but he just switched two weeks ago from pramipexole to lyrica. One night he only slept for about an hour because his legs and arms kept jumping so severely.
It's common to notice this syndrome as a child (usually female). Sometimes you're told it's "growing pains". There are different degrees of discomfort or even pain. Not all symptoms are exactly the same either. Generally you'll have an uncontrollable urge to thrash or jerk your legs and/or arms; it's involuntary and very uncomfortable. Cathleen, please read about it on the internet or go to the library to research it if you wish. If I had to give an opinion, I'd say you didn't have RLS. It sounds like more of a comfort thing or habit with you & this doesn't seem to interfere with your sleep. Good luck with your research! All the best to you. from Wendy :)
1 March 2011
My hubby has done this all of his life! I thought he was the only one. So you're not alone! He has depression,(bipoplar) diabetes with leg neuropathy,Fibromyalgia, heart disease, on,&on & on... But he was shaking his leg even as a kid before all the medical showed up. He gets teased by his brothers & sisters about it all the time. He doesn't have an explanation for it either. He now says it's the one the hurts the most, but why before I couldn't tell you. This probably doesn't help you, but lets you know you're not alone! Mary
1 March 2011
I am the same way Cathleen. So is my mother! I have always shaken my legs-in my case it is both and I dont get itchy or crawly feelings either. My legs just get the "wigglies" as I used to say when I was little. In fact my husband now says he cant sleep unless the bed is shaking from me wiggling my legs. When I sit, I kick one leg back and forth or I will jiggle both! I have had people complain about me shaking whole tables, the car- while sitting at a stop light my whole car jiggles from me moving my legs. I have to be very careful at a movie or something because I will jiggle the whole row!! I never realized it was a syndrome until I came across RLS! I figured it was just my nervous habit. Funny isnt it? I wonder if it has some bearing on us having chronic pain too? Hmmmm.
1 March 2011
My hunch is you just have a nervous twitch, but you can read about RLS at this site:
It's usually associated with discomfort of some degree and the movement alleviates the discomfort such as pain.
My girl friend may have RLS, like what you describe, and she takes Requip extended release at night so she doesn't keep herself awake and so her legs don't "jump" during the day.
Does it ever keep you awake? Is it associated with any discomfort?
Well, hope you are doing ok, ttyl
1 March 2011
Hi Cathleen, I agree with JK on this, it just sounds like a little nervous sort of thing you do. That is wild, some woman yelled at you in a restaurant!!! Hope you told her just where she could go girl... lol sweetlemon
1 March 2011
Same thing with me.. never thought twice about though, also figured that it was just part of the anxiety... interesting