Any side effects? My med is not working, (carbidopa/levadopa).I need a change, but my Insurance only covers about 4 generics. Need help, have severe RLS day and night
Restless Legs Syndrome - Has anyone ever taken bentztropine for Restless Legs? Did it help?
Question posted by Pat621 on 9 Aug 2011
Last updated on 13 April 2019 by Mpope44
5 Answers
Mpope44
14 April 2019
Have you ever had your iron levels checked? I see a specialist and Downy for restless leg syndrome.his name is Dr. Mark Buchfuhrer He is a professor at Stanford and is on head 6 book that is basically a tell-all for doctors letting them know how to treat patients with restless leg syndrome. He is my hero!!! There are so many medications that we cannot take we cannot be in restraints there are a list of things that you should know if you are not already agitated. I used to have severe RLS and now I am RLS free I did not just have it in my legs and feet I had it in my waist and in my neck and my right arm. The longest I've stayed up is almost two days I was delirious and I ended up in a mental hospital. They tried to treat me with something that I told them would affect my RLS extremely bad but no one would listen to me and the I was released the next day.
It was a horrible time in my life but like I said I am RLS free today because I got my iron levels checked and I am chronically anemic because of my menstration but there are two reasons why you will get RLS and one is low iron and the other is dopamine and mine was iron and my doctor totally cured it. I had two sessions of injectafer it's iron injections basically and you sit there for about 30 minutes one day and then you come back and 30 minutes the next week after the second dose and about two weeks I was sleeping through the night going to bed around 9 pm-10pm like a normal person and I have my life back thanks to him. Please please I beg you get your iron levels checked he knows what he's talking about he knows his s*** he is legit.
ellehopkins
10 April 2018
I know this was posted a really long time ago, but just in case someone comes across it in a search...
Benztropine is the generic of Cogentin. I was suffering from restless legs as a side effect of one of my mental health medications (Latuda). When I reported this to my provider, she put me on Cogentin. I found it very effective for my use and it was covered very well by insurance at the time (Blue Cross Blue Shield).
At perhaps the same time or a short while later, I was also prescribed Gabapentin – for anxiety, not nerve pain or RLS. Supposedly Gabapentin can also help, though I found Cogentin to be highly effective in my case.
Hope this might help someone!
hurdles
16 Oct 2017
i read that bannanas were tge best for rls so i ate 2 on day 2 and 2 today on day 3 and no more rls
LiverLips
9 Aug 2011
Hi Pat621! Nice to meet you!
Dave, my hubby, has severe RLS (Restless Legs Syndrome). He's used several drugs in the past such as Mirapex & Carbidopa/Levadopa but they always had to be switched after being maxxed out & not working well enough any longer.
In June, his dosage was increased again. He now takes 300 mg Lyrica & either 2 or 3 Pramipexole tablets 0.25 mg at bedtime every day. Presently, this dosage is beneficial & is working well for Dave. He doesn't seem to be experiencing any side effects. I'm hoping that he'll be able to use this combo for a long time.
I might be able to help you further, Pat, if you can tell me the other drugs' names.
Dave's used so many different meds over the years, that I'm unable to easily recall their names.
I'm so sorry about your condition! Even though I personally don't suffer from RLS, I've seen firsthand how it can affect 3 different people. It also can bother people sitting beside or sleeping beside you.
Pat, Dave used to take extra showers too, sometimes in the middle of the night for much needed relief. I'm so glad now that he's able to sleep through most nights due to the fact that he'd swallowed some tiny, little pills. Amazing!
All the best to your health Pat! Good luck!
from Wendy :) "LiverLIps"
P.S. Try not to drink caffeine or alcohol in the evening before bedtime.
princess0529
9 Aug 2011
I have had restless leg for many years... before they were talking about it openly on TV. I thought I was going crazy. Anyway, I was taking cold showers in middle of night to "wake" my whole body, then I slept ok. I'm not sure what that is your asking about, but, my mother-in-law recently had my try mirapex 1mg, that she was told to take for it and I am amazed!! If I have an episode, I take that and Im out and not groggy in the am. Its great and going to ask my dr for it.
Related topics
restless legs syndrome, carbidopa, side effect, generic, insurance
Further information
- Carbidopa uses and safety info
- Carbidopa prescribing info & package insert (for Health Professionals)
- Side effects of Carbidopa (detailed)
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