and my side effects are terrible still... hot flashes, can't sleep, depression, the worse problem & scariest is the muscle/joint pain that won't go away and has worsened since my second & last shot. I was active and never any joint pain before the shot... this has caused me to fall into a deeper depression. I wish I never took the injection and knew more before i did it. I have talked to my doctor many times concerning this and she is puzzled by this and unaware of other side effects except hot flashes. I feel lost and don't know who to turn too concerning these serious side effects. Please, give me hope that I will feel good again and what can I do to relieve this pain. I am only 46 and feel 106 since this shot and is ruining my life.
19 Apr 2010
I know you are looking for a direct answer, but after reading your story, I just had to reply. What I CAN help you with is letting you know you came to the right place for support. Although I am not familiar with Lupron (I will look it up soon) I am very familiar with chronic pain and depression. As far as joint pain and depression, have you tried soaking in a warm bubble bath, with a cool wash cloth over your face, soothing music, candles? It may sound stupid but it does help some people. Also request to see a specialist. If your doctor is puzzled, she should refer you to someone who could help you. I know that chronic pain leads to depression. I am there too. The only reason I function (fairly normal) is because my surgeon has me on good pain control medication. Don't give up, get up and get that help you need.
Be proactive in your healing, investigate, go to a specialist armed with info and your medical records. Take pictures of the things and people you love. Frame them and surround yourself with all the good in your life. Take comfort in knowing you have a place to go where people truly care and support people just like us. Just when you think you have it so bad, a story comes along and makes you think, "Wow, I thought I had problems, that person really has it bad!" Hang in there. Someone that has similar conditions as you, will come across this question and have some answers that will help you. All I can offer is a word of encouragement. It's too late to look back and feel bad about getting that injection. Please look forward to getting the help you need. It will come. Cheer up! You have found a good place for that support you desperately need!
Wishing you a pain free day very soon!
19 Apr 2010
I feel your pain and yes the joint pain is a side effect of lupron i had to be on lupron for endometriosis and after my last dose it took a month before i started feeling normal again so it might be the same for you,it is really hard to deal with the depression and all the bad thoughts that run through your mind but i promise the side effects will go away and you will feel better it might take a month or so but there is hope so dont give up it will be better soon,hope this helps
3 Sep 2012
Givehope~ I am hoping this will reach you , I am now 21 I was on the shot at 20 for Endo, At 17 I was told I had Endo from two different doctors the 2nd doctor did to surgeries called a Laparoscopy, I had both Surgeries with in 6 months. After about 9 months I started seeing a new doctor. Who started me on the Lupron Depot 3.75mg Shot monthly . I started in Feb of 2012 I only ended up getting 4 shots I went for my 5th shot and the doctor refused to give it to me. Saying I was faking the whole thing. Which in turn upset me deeply. I have been suffering since I was 15 from the Endo the horrible pain. My last shot was in June 2012. I have since then returned with pains and still have some hot flashes but not as many and not as bad but on and off. I still can't sleep really good and some times not at all. I know how you feel about being lost and not knowing who to turn too. I also feel the same way.
I come to find out that the doctor I was seeing had not read any of the booklet that came with the shot. I have the serious bone pain ,legs arms etc. As I write this , I am having really bad pain in my left ovary and lower back pain. Me and My fiance trusted this doctor by his word and have been disappointed in his actions . My whole life was pretty much with in his hands and for my future of being able to have another child. I have now been off the shot since July and here it is Sept. 3 months later I have still yet to become pregnant but as I have read it take about 4 weeks before the shot is all the way out of your system, and 8 weeks to a year before you can become pregnant. I am not sure how true this can be but I have also read on some pages and different sites that some side effects can last a life time, now again I am not sure and I really hope not. I would like to know myself because I do not want to have to go though this for the rest of my life. I hope you are able to read this and I hope that it helps. ~ Giving hope from Chattanooga !
8 Jan 2015
I have just read about your Lupron shot experiences. Like yourself, I' am having the exact same problems. Not as much depression as you are experiencing. However, I should have gotten more information from my doctor. As like your physician I was only told of the hot flashes. Basically not much more. I'm 69 yrs. old and have never been in such pain. I have had 2 heart surgeries and a suborachnoid hemorrhage in the past. My biggest problem is I cannot sleep. When I lie down the pain gets very intense. My doctor has given me pain medication which does not help. I also have had two injections. The last Oct.2014. The effects are still a very intense. I wish you well with your problems. Hopefully they will go away.
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