and my side effects are terrible still... hot flashes, can't sleep, depression, the worse problem & scariest is the muscle/joint pain that won't go away and has worsened since my second & last shot. I was active and never any joint pain before the shot... this has caused me to fall into a deeper depression. I wish I never took the injection and knew more before i did it. I have talked to my doctor many times concerning this and she is puzzled by this and unaware of other side effects except hot flashes. I feel lost and don't know who to turn too concerning these serious side effects. Please, give me hope that I will feel good again and what can I do to relieve this pain. I am only 46 and feel 106 since this shot and is ruining my life.
I know you are looking for a direct answer, but after reading your story, I just had to reply. What I CAN help you with is letting you know you came to the right place for support. Although I am not familiar with Lupron (I will look it up soon) I am very familiar with chronic pain and depression. As far as joint pain and depression, have you tried soaking in a warm bubble bath, with a cool wash cloth over your face, soothing music, candles? It may sound stupid but it does help some people. Also request to see a specialist. If your doctor is puzzled, she should refer you to someone who could help you. I know that chronic pain leads to depression. I am there too. The only reason I function (fairly normal) is because my surgeon has me on good pain control medication. Don't give up, get up and get that help you need. Be proactive in your healing, investigate, go to a specialist armed with info and your medical records.
Take pictures of the things and people you love. Frame them and surround yourself with all the good in your life. Take comfort in knowing you have a place to go where people truly care and support people just like us. Just when you think you have it so bad, a story comes along and makes you think, "Wow, I thought I had problems, that person really has it bad!" Hang in there. Someone that has similar conditions as you, will come across this question and have some answers that will help you. All I can offer is a word of encouragement. It's too late to look back and feel bad about getting that injection. Please look forward to getting the help you need. It will come. Cheer up! You have found a good place for that support you desperately need!
Wishing you a pain free day very soon!
I feel your pain and yes the joint pain is a side effect of lupron i had to be on lupron for endometriosis and after my last dose it took a month before i started feeling normal again so it might be the same for you,it is really hard to deal with the depression and all the bad thoughts that run through your mind but i promise the side effects will go away and you will feel better it might take a month or so but there is hope so dont give up it will be better soon,hope this helps
Givehope~ I am hoping this will reach you , I am now 21 I was on the shot at 20 for Endo, At 17 I was told I had Endo from two different doctors the 2nd doctor did to surgeries called a Laparoscopy, I had both Surgeries with in 6 months. After about 9 months I started seeing a new doctor. Who started me on the Lupron Depot 3.75mg Shot monthly . I started in Feb of 2012 I only ended up getting 4 shots I went for my 5th shot and the doctor refused to give it to me. Saying I was faking the whole thing. Which in turn upset me deeply. I have been suffering since I was 15 from the Endo the horrible pain. My last shot was in June 2012. I have since then returned with pains and still have some hot flashes but not as many and not as bad but on and off. I still can't sleep really good and some times not at all. I know how you feel about being lost and not knowing who to turn too. I also feel the same way.
I come to find out that the doctor I was seeing had not read any of the booklet that came with the shot. I have the serious bone pain ,legs arms etc. As I write this , I am having really bad pain in my left ovary and lower back pain. Me and My fiance trusted this doctor by his word and have been disappointed in his actions . My whole life was pretty much with in his hands and for my future of being able to have another child. I have now been off the shot since July and here it is Sept. 3 months later I have still yet to become pregnant but as I have read it take about 4 weeks before the shot is all the way out of your system, and 8 weeks to a year before you can become pregnant. I am not sure how true this can be but I have also read on some pages and different sites that some side effects can last a life time, now again I am not sure and I really hope not. I would like to know myself because I do not want to have to go though this for the rest of my life. I hope you are able to read this and I hope that it helps. ~ Giving hope from Chattanooga !
I have just read about your Lupron shot experiences. Like yourself, I' am having the exact same problems. Not as much depression as you are experiencing. However, I should have gotten more information from my doctor. As like your physician I was only told of the hot flashes. Basically not much more. I'm 69 yrs. old and have never been in such pain. I have had 2 heart surgeries and a suborachnoid hemorrhage in the past. My biggest problem is I cannot sleep. When I lie down the pain gets very intense. My doctor has given me pain medication which does not help. I also have had two injections. The last Oct.2014. The effects are still a very intense. I wish you well with your problems. Hopefully they will go away.
I have had similar problems with Lupron to those posted here. The muscle upper leg thigh pain is so severe I can't do anything. Very difficult to walk. I have also never felt more holistically sick. Every day the same for the last three months. This stuff is poison. Don't take it.
I took lupron prior to partial hysterectomy 20 years ago. I had many of the symptoms you describe, i felt like i was going crazy. No memory, aphasia, mood swings like a roller coaster. Took almost 3 years to feel like myself again. Be patient with yourself. Ask loved ones to do same. Know it will end soon. Each body adapts differently, bur it will end and you will be back in your own skin. If you need to take something..antidepressant..do it.I wish i had. I had this a long time ago. The drs had different attitudes about these effects of taking hormones. One dr just said "forgive yourself for being human. Slow down your life". At the time, it was helpful, but i still had all of those awful symptoms. Find a dr that will give you relief in AT LEAST SOME SYMPTOMS. One day at a time. Good luck. Its going to be ok.
I am wonder the same thing. Being that this post was so long ago I was hoping maybe you could answer that question for me. I am 32, mother to 1 beautiful boy. I have multiple grand fibroids, endometriosis, and sever adenomyosis. I have been on Luperon (the 3 month shot) for the past 9 months. Before this I was very depressed and had horrific pain. When I got pregnant, I could barley move due to the pain, and after it was even worse. So I started Luperon and while my pain has been controlled after 3 months of treatment... the side effects were taking a toll on me. I'm 32 and had hotflashes, I couldn't even stand myself with my mood swings, crying, forgetful, weight gain.. this was more because my joints hurt and I could not be very active. I mean I'm 32 and am in pain going up the stairs... seriously?! Oh and of course... insomnia and so much hair loss. BUT the silver lining, no pain.
Insurance stop covering my shots and I just couldn't handle this anymore so I decided to go off luperon... now I'm 2 weeks past when my shot would've been, but I still have the side effects... except now the pain is coming back, just not as severe. ... anyone know when this will just all go away? When will I stop feeling like I'm 15 years older then I really am?
I’m a breast cancer survivor and my doctor put me on the shot to take the place of the pill since I cant take that ( I have endo too). I took all 6 shots and by the 6 th shot I had all those symptoms that you say you had but the worst is the 30 pound weight gain and I’m a personal trainer and never weighed more than 150. Now I’m 178, dieting like crazy and some days don’t eat and not lost 1 pound!! Night sweats are horrific as well as hot flashes. I’m going to an alternative medicine clinic next week. Screw this!!!
I was on the Lupron shot for 6 months (two 3 month shots) for a fibroid. I found I was fine while on the shot. A few hot flashes and a few bouts of night sweats I was mildly moody (according to my husband) but nothing I couldn’t handle. My doctor also prescribed an estrogen supplement to take if the side effects were bad but I didn’t end up taking it. It has been 4 months since my last injection and I don’t have pain, but I feel stiff. I find light exercise like a walk or I recently started Aquafit make me feel great mentally and physically. I should also say that coming off the lupron I have had noticed more frequent side effects then when I started for about a week. They have stopped for me now.
I got a 3-month Lupron injection one time (for endo), in October, 2016. Almost a year and a half later, the effects remain. I’ve lost half of my hair, my muscles and joints hurt badly and I can barely walk when I get out of bed and the insomnia is horrendous. I haven’t slept more than 3-4 hours a night since. The hair loss is especially awful because I had thick coarse hair before and now it is thin and whispy with bald spots all over. My hairstylist was horrified, as he used to have to thin out my hair every time I got a trim. I haven’t heat styled my hair in that entire year and a half, for fear more would fall out. I can’t do anything with it. I saw a dermatologist and she was convinced it would grow back but it hasn’t. I only say this is the worst part because my scalp always feels on fire now and I’ve just accepted the other pains as normal at this point. I feel like poison is running through my body.
Please run far away from this injection if it is ever recommended. I had terrible hot flashes and depression when I first got it, as well as suicidal thoughts. I communicated this to my surgeon and absolutely refused the other round he suggested after my stage IV endo laparoscopy. There was no way I was going to risk intensifying those side effects. The endo did return a year later so I had a second laparoscopy and one tube and ovary removed. I don’t think another round of lupron would have prevented it and I haven’t had kids yet so I couldn’t be in a pre-menopausal state longterm with that injection. I now have a chance to conceive with one ovary but I’m 37 now. I hope anyone researching reads about everyone's experiences here and takes charge of their health by refusing this awful injection. I haven’t been the same person since.
I got the Lupron shot in feb due for the 2nd shot here in may and im having serious depression.I can't sleep at nights,hot and cold sweats.Short fuses. The depression is the worse
I was wondering how long the symptoms lasts. I had one shot (for three months) of lupron back in March of 2016 because of urinary fibroids I had one that was very big and the doctor was trying to shrink it before I had surgery but the lupron didn't work, to this day I feel like I'm still having side effects from it.
I'm so thankful for all your responses. I know this sounds crazy but I'm glad there are others I can relate too. I thought it was just me. I've had two endo surgeries and I'm like the one lady said I wish I had never got it and only prayed I wouldn't need another surgery. They were 5 years apart. I have all these symptoms especially feeling like I'm 100. It's been about 4 months. I'm so over it
Thank you all for your responses. I am 43 and took one 30 day shot. During that time I had crazy mood swings and hot flashes. Around day 35 I thought I should be feeling better but I woke up and felt like someone beat me with a bat. My leg feels numb, my hips hurt, my entire body aches, and my mood swings and anxiety are out of control. I am a single mom of a child with a severe disability. He needs me for everything. He is unable to walk and weighs 120lbs. I am struggling to take care of him. My doctor knew this and knew I already suffered from severe anxiety. He lied to me about the side effects and no doctor seems to believe that Lupron caused all of my issues. I am so scared that this is my life now. There has to be help.
I just happened upon the fact that everyone is experiencing problems with Lupron drug.
I have been experiencing severe bone pain in my legs, excessive sweating, 30+ lbs of weight gain, when I started the Lupron injections in 2001 (every 30 days for 1 year) for endometriosis, I couldn’t deal with the Lupron shots or the pain any longer and decided on a hysterectomy in 2002 for my 40th birthday. Fast forward to 2019, I am still having horrible bone pain in my legs, excessive sweating and I now have several added health issues like fatigue, depression, anxiety, chronic anemia and hypertensive lungs. Until now no doctor believes me regarding my pain and symptoms. I have been accused of having psychosis by the local hospital because they could not identify any reason for my symptoms.
Has anyone else been experiencing my same symptoms 17 years later after stopping the Lupron drug?
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