Gabapentin/Neurontin - Are any of you, taking Gab, experiencing little or lNO pain control?
Question posted by MacIntosh12 on 2 Feb 2013
Last updated on 7 September 2017
I'm currently on a relatively high dose (perhaps one of our nurses could let me know if my dose is actually high?) of Gabapentin, 600mgs 4 x's a day and I am having very little relief, my pain has been very high since the beginning of January. (also, anyone craving sugar like mad on this med?) I also take an opioid pain med as well, and I do believe I've built up a tolerance so I'm going to put myself thru withdrawal to make them work again. That kind of sucks, as w/d is pretty hellish. I've done it before... about six months ago and my opioid meds began to work again.
But the Gabapentin isn't doing anything either, do we build a tolerance to it as well as opioids? Is that possible? If so, should I taper off of Gabapentin and see if it works? Any advise/opinions/and laughter will be greatly appreciated! Thank you in advance, Lara
I just started taking Gabapentin with cymbalta Ive been on an opioid for 3 years Im trying to get off of Im down to 1/2 pill twice daily.But Im having allergic reaction to one of the pills The Gab has helped alot with nerve pain.Im afraid its the one doing it.I have blurred twitchy eyes and tingling lips ,I also feel like my tongue is thick.So they are backing me off the Gab to one a night.Does anyone know if the two meds together can cause these side effects.
29 Aug 2013
I never had any direct pain relief from this med, but it does help decrease my shooting pain that I experience down both of my legs (which I am extremely happy about). It does help my mother with some leg pain that is due to her diabetes, but she doesn't take near the levels we do. I also don't take as much as you do I only take two doses compared to your four.
29 March 2013
Wow!I'm amazed at what is going on here!lovely!yes I'm on the same medication!at first I had this icecold leg!and the little spiders running and creeping all over my body!I was tottaly freaked out!than my lower back startd t pain like 11 out of 10 lol!severe!off to the dr!100mg/d at that time!I was craving for choc cake ice cream and every thing that was sugary!could eat a hole bag of candy in one sitting !still cold leg and numb toes!dr up my Neuronton 200mgx2 /day!the creapy crawlies was still having a great time under my skin!it was real weired!leftside of my brain started t pain heavly!sharp knifelike pain!dr up medic to 300mg 3x/day still no reliev inthe meantime I still had a jolli good time in the sweat and sweater!lol!eventualy th up it to1500mg/day..guess what?my body could not take it!gone was th coldness,numbness,crawliesBUT:I developsd a severe Right kneepain problem!felt like sombody was steeking a knife thru my knee!
So yes my friends!this whole episode happen in 2 mounths!but I must say I'm Happi because I now no what's going on in my body!and I'm priviledge to do research on this issue at hand.and I have an Ever Loving Husband and broader family ,friends who understand me and just let me B!yes I do believe that th right doze can do the impossible!do not stop investigating!iv never thought that I would write my story on th Net!my doze now 300mg 3x /day + 50mg Tremedol 3x/day!and I'm good with aching knea and all! Love Gerritwer
15 March 2013
I took it for several months and never got any relief just urinary retention.
5 Feb 2013
I take 1200mg twice a day, so equal to what you're taking (don't ask about the dosing schedule, I'm just a weird one), I've been on gabapentin for quite a long time now. I switched to it from Lyrica. I'd been on Lyrica for a year and bumped up to the max dose and no help at all so I tried gabapentin and that actually worked much better. When I was on the Lyrica, I was actually prescribed it off label for fibromyalgia, and still was when I went off it, so that should tell you how long ago I switched lol! I still have to take pain medications, the opioids, as well as prednisone since I'm allergic to NSAIDs, but the gabapentin calms my nerve endings. Basically,for me, what it does is kind of turn the switch off, or at least down, on the overactive nerve endings. It might not directly affect the pain, but does indirectly by calming those overactive nerves down that make me tense up.
Of course, my pain is not just neurological, so something like that's not going to be totally effective for my pain anyway. Sometimes I'll start wondering if it's really still working, and then I miss a dose, or a few hours late taking it, and then it reminds me why I keep taking it like clockwork everyday! Of course, I can always tell when I need an increase, because I start getting "twitchy" (multiplie myclonus? I've had it since my teens, in my limbs and my face. I even have that breathing "tic"). It calms down after bumping my dose up.
4 Feb 2013
Dear Mac, Well, one of my bestie friend's, sorry I'm answering so late. There's a lot of things it's prescribed for, other than banging your head on a wall. Lol. We need to stop that. Lol. Now seriously, there have been a lot of answers, some different, which I like. I enjoy reading everybody's opinion. Which is exactly what you want when you ask a question. As you know, I got a response to a question once implying I was a pharmaceutical experiment. Lol. Having so many health issues makes it difficult to tell sometimes what's working, and what's not. And for me, and I'm sure many others, have had to try several things unfortunately, to find the right thing to help. The Dr. Put me on 400mg,s three times a day of Nuerontin, for Fibro? It's been really hard for me to tell if its really working or not, due to other issues I have that causes me chronic pain. But with Fibro.
Pain, its all over, which is different than the chronic back and knee pains. I take pain medication too, and I still feel my Fibro flare ups. I really don't want to up my dosage. My pain Dr. Gave me some samples, and a script if it works of Lyrica. I took it three yrs back, and it affected my vision, but worked great for Fibro pain. He told me to give it another chance, and he really thought the vision problems would go away. So here we go on another pesty yet exciting interesting journey. I know you've really been struggling lately with pain. Of course I'm going to tell you, Sweets, to tell you're Dr. What's up, but if it might be that it's not working... I must tell you to go another route. I hate to know you are hurting so much. Just know I love ya, and hope you get relief, and start feeling better, so I can bug you again. Lol. Take care, my sista, and we shall chat soon. In my prayers everyday, You're fondest friend, Ruthie
4 Feb 2013
Hi Lara, I got no relief on Neurontin, although I was only on 900 mg/day, I couldn't tolerate more due to severe drowsiness and depression it gave me. When my neuro switched me to Lyrica after 1.5 month I finally experienced improvement in my pain level, which further improved when antidepressants were added. Sometimes it's a matter of experimenting and finding the right combo of meds - this may take time and a lot of patience on your part (and your doctors'). Take care, Oldriska
4 Feb 2013
I have been on and off gabapentin for the past several months for a herniated disk in my lower back. At first several drugs were being used to curb the nerve root pain. After my first really scary experience w a boil in my lower abdomen I quit using it. This after previously several months earlier quitting all other drugs prescribed to me. Several wks. had passed and decided to start using it again only to find that my body rejected it again this time w more and numerous boils two located on my abdomen and one on the back of my leg. Needless to say all drugs went down the drain again as my strong belief is that my body does not accept it. Comments are very welcome!!
3 Feb 2013
I have been on Gab about 6 years with one increase in dosage maybe 3 years ago. Just before I started taking Gab I had some hellish fibro symptoms and from my cervical issues herniation bulging and degenerative disc disease, I had this burning in my right hand and those shooting pains that started on the right side of my neck and went down through my arm to my hand. About 5 days after I started taking Gabs my symptoms started to decrease and the burning went away. It has stayed away all that time except the time I ran out and forgot to refill and the burning came right back. So I know it works for some nerve issues but maybe not so much for others. It is not like the opioids which I also take. More subtle. The dosage you are taking is a little above median so you cab go a bit more but ask your DR first... Hope this helps B
3 Feb 2013
Dear Lara, I'll have to wait to answer your question as my pm Dr just started me on it last week. He also started me on an extended release morphine along with my breakthrough meds. So I'm hoping the new combo will work some wonders on me. Of course, wintering in BoraBora wouldn't hurt either, but he wouldn't give me a script for that... I think it was just because he couldn't come too!! I know you've done the cold turkey thing before, but you know how super hard that is on you and I wish you'd reconsider. Personally, I think cold turkey is best on sandwiches!! :) Hugs, Lisa
3 Feb 2013
Lara, First off I am concerned about you saying that you are going to just Stop taking your Opioid medication cold turkey !! What Opioid medication do you take?? And how long have you been on that pain med that you would have to Stop taking it 6 months ago to make it start working again. Do you go to a Pain Management Dr. & if so have you spoken to the Dr. about your Opioid medication not working? I have been on Opioid's for about 15yrs& yes you build a Tolerance up with them. But a Pain Management Dr. should be able to replace the medication you are on with another Opioid.
Also as far as the Gabapentin goes I take 900mg 3x day. I was wondering if the same Dr. have you the Gabapentin as the Opioid medication. Also it does take approx. 4-6 weeks to get the full therapeutic effect from Gabapentin.
Please be careful & be cautious starting & stopping Opioid medications. Kathy
3 Feb 2013
I'm on 600mg 3 times a day and have been one it for about 2 years it doesn't help with the pain at all for me it really works good for my legs helps with the tingling and numbness but no real bad cravings for sweets I'm really not into to much sweets lol I guess I'm weird like that
2 Feb 2013
Hi there, I have Fibromyalgia and lupus. And just thought I would tell you I use to take 1200 mg Gab a day and yes i graved sweet foods like mad. It can cause weight gain and i found it doesn't help a lot with pain although I now take a small dose of gab each night, but my main pain MEDs are Daypro which i find it is helpful. But I also take Ultram twice a day.. Anyway hope this is a little helpful, i definitely recommend trying Daypro. Hope your pain eases soon. take care. ~Renee
2 Feb 2013
You could increase the gabapentin a bit. Max dose is 3600 mg a day. That would be 900 mg 4 times a day. I'd not try adjusting both at once. It could just be the tolerance to your pain med effecting you.
2 Feb 2013
Hello Mac, Meyati and Mully!
Dear Lara, I no longer take neurontin, but when I did I took 600x4 daily and my Dr. at the time said I could go up to 3600 mg daily. I stopped taking it, bcuz it did nothing for my pain. As far as craving sweets with it I don't know since I crave sweets all the time, like give me a big piece of cake or pie right now!! lol ... you gurl are one brave tuff cookie to want to cold turkey off your pain meds. I wish you strength and positive thoughts with prayer during your c/t.. best to you my dear friend... pamee