I suffer from daily chronic head pain. Maybe transformed migraine but most likely chronic tension headache. Has anyone had this and has been helped by anything.
Does anyone have chronic daily headaches?
Question posted by Tinyone on 10 Jan 2010
Last updated on 19 February 2022 by Mimi-of-3
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47 Answers
I suffer from chronic migraines. I was on Imitrex injections, they worked amazingly! Had to go off them due to losing insurance. Then I tried everything mentioned below when I got my insurance back, hoping to not have to stick myself anymore, including the Imitrex pill and nasal spray ( worst idea EVER, imo). Imitrex injection is the best, hands down. However, I lost insurance again, due to my husband’s passing and have been taking 200 mg topamax as a preventative. I had a minor stroke in August of last year and my Dr. doubled my dose. Turns out, topamax doubled, turns into a weight loss pill. I only weighed 110ish pounds, and lost all my weight, down to 82 lbs….not good. I’m now working on gaining weight back and dealing, as we speak, with a killer migraine, wishing I had an Imitrex injection I could get my hands on. Best of luck to you in finding some help!
A little bit of history... Back in 2001, I had shoulder surgery and they gave me too much anesthesia and sent me home that way. My wife called the squad because my face was ashen gray and my lips were blue. I was hard to arouse. The squad arrived and my oxygen saturation was about 80% (pulse-ox), so they immediately used supplemental oxygen. I arrived at the ER and they decided to give me Narcan to reverse the effects of the anesthesia that was left in my system. Wham... it worked. I pinked up, but had the worst ice cream headache you could ever have and that is where my migraine history started. After that, I had frequent trips to the ER for abortives and I had tried everything under the sun for a preventive that you could imagine. I finally tried DHE-45, which ended up working. After about ten years of having those headaches, they stopped all of the sudden. Around 2015-16, they came back, just as if they hadn't left.
This time around, I wasn't able to use DHE-45 or triptans due to cardiac issues. I have been using Ubrelvy 50mg, but the insurance will only pay for 10 pills a month. I also use Aimovig. This combination has cut my headache days down to about 15-20 per month. Then, my headache specialist suggested Co Q 10. I take 100mg of that in the evening and that about cut my headaches out, except when I hit a trigger pretty hard, which would be stress, strong perfumes (lavender is a big one) and the weather. I can handle the weather, because my knees tell me about that, but the stress and the strong perfumes are another story. When I run out of Ubrelvy, I go to 800 of Ibuprofen, 50 of promethazine (Phenergan) and 50 of Benadryl. Nausea is a big component of my headaches. Zofran doesn't work for me, so all I have is the Phenergan. I have been going to Urgent Care about once every few months to get Toradol with my cocktail, but I don't like to do that too much, due to the stigma. I would like to have someone write for injectables to use at home, but can't find the right way to ask. I am looking to order stuff from outside the country, but I am not sure I want to do that just yet. That's my story.
I've had migraines for most of my life and there's no escaping them. What I did to try to make them go away was change my diet, and place peppermint oil on my temples and the back of my neck. Sometimes it doesn't help but if you are or not against marijuana. That may help as well.
If you think it’s related to migraine, try the butterbur extract. It’s OTC, and considered to be “herbal”. Be sure to get a trustworthy brand certified to be free of Alkaloids. An American specialist in treating headaches referred me to it. It’s been very effective, with no side effect to me, except occasional burps with the peculiar smell, but not offensive, and I have been on it for well over 10 years. It’s the best remedy to prevent migraine, but not commonly known to a lot of the migraine sufferers to be effective until you experience it. Take it regularly as directed, and note that it will take sometime to kick in, so be patient! I still have mild daily headache, but the migraine flares are either gone, or occur much less frequently.
As a precaution, you might want to consult with your family doctor before using it.
Good luck with this wonderful remedy!
I have suffered from chronic daily migraines since I was 12 years old, I am now 65 years old. So my headache is 53 years old. Been to many kinds of doctors, have taken many kinds of medications, and so far have found very little help. My Grandmother suffered from these daily migraines and then her son, my Dad suffered from them and now I have them. I truly believe they are passed on in families. My Dad was crabby on count of his daily migraine, he would not take anything for it, so he suffered through it. I choose to cry out and ask for help that I do not get. One of my biggest triggers is the weather & nothing can be done about that. So I have slept most of my life away! I sleep to get away from my migraines! However if I have a truly bad migraine sleep can be hard to do & then I lay awake & cry! Till the darn headache eases up & sleep can come. I have no stress, I live alone with my Shih Tzu and the two of us are very happy other than my migraines.
No stress, no worries, no reason for these darn migraines! Especially when they started when I was 12 years old. I had an enchanted childhood nothing but great things! No worries or stress in my childhood. So why these migraines? No one can say...
I sorry to hear about your case! Yes, the definite causes for migraine is unknown, but it can be stress related. From my experience, and from my research and medical consultations, it is a factor!
You are lucky to “have no stress”, but you don’t have to suffer by sleeping away “most of your life”! I am in my fifties, and coincidentally, also have a Shih Tzu, and have lived with infrequent migraine for countless years thanks to the butterbur extract. I truly don’t remember when it started, but ever since I started taking butterbur extract, I can leave all other FDA approved medications behind! I have tried numerous well known meds for migraine, you name them, unsuccessfully.
My effective remedy for acute migraine is “Clear Migraine” by Clear Products, Inc. It might be a good remedy to you,too! As a precaution, consult with your doctor before starting anything new, and be prepared to answer a few questions from your doctor about the new remedies! ;)
For more details, refer to my other replies on this topic.
I am very hopeful that my experience can help relieve your lifelong suffering soon! Good luck! Life can be better if we can find the right things it misses.
Hi Tinyone,
I had a headache that started over a few weeks in 2002. I thought I needed an increase in BP Meds because I was working long hours. It was all one pain like I had to much spinal fluid in my head, neck and stabbing to the right of my spine. Plus my eyes were bright red.
It never went away even on pain Meds UNTIL...
2 months ago when a nurse told me her luck with Imitrex ! My headache was gone! It would start up in 24 hours so I'd take another dose.
Too good to be true ! Right?
Insurance only pays for # 9 pills a month and they are quite expensive.
I heard the reason for 9 is to curb daily long term usage. :(
Breaking the cycle was exactly what I needed!
FYI ... Ok you will say this is all in my "head"... Lol but it's happened 4 times.
MRI's! It will take it totally away for 3 days!
I also have severe insomnia but put me in that machine with the loud magnets and I cannot stay awake !
Try Imitrex and stay in a quiet peaceful environment for the first pill to see if it works for you.
Btw... NOT to be taken to AVOID headaches.
Did you have your vision checked ?
Any dental issues ?
Neck and upper back trouble can have referred pain to the headache mimicking a migraine.
Feel better soon.
My oldest daughter was diagnosed with chronic daily pain but I didn't give up and after 42 doctor visit we found out that her headaches are cause by celiac. Now gluten free she is headache free. Gluten free to the point that we had to change most of kitchen items and eliminate gf completely from the house. Gluten hides in many places so you may be thinking you are gf but you may have a spice or cosmetic or medicine with gluten. Now her sister has chronic headache but gf diet didn't help her so far. Nothing really does. So we were able to find a cause for her sister but so far not able to find a cause or a treatment - even with help of Mayo clinic.
I think elimination diet is best - vegetables, fruits, and meats all organic. We may try it next.
I have suffered from migraines since I was 14. I am now 47 and have suffered s stroke in 2008 and since then my anxiety, depression, migraines and seizures are much worse now. I have tried many drugs, blood patches, spinal's, Botox injections and the list goes on and on. Nothing works long term on me. The best for me has been Demerol shots and in Nevada they say they don't use that so I am screwed.
I have had migrains since I was 14 years old and was hit by a tow truck. In 2008 I suffered a stroke and now my migrains are almost daily. Tried many meds, blood patches, spinals, botox injections, nerve block injections. Totally at my wits end, just truly sick of it all. Any suggestions would be applicated.
Skepsel
ive had migraines daily and it's been almost 8 years.. they've gotten progressively worse over the years, I've had every med mentioned on this thread so far, including botox, the only thing tht eases the pain is medical marijuana or stronger ttypes of pain pills, tramadol eased the constant pain slightly but it made me incredibly itchy, I've talked to my neurologist about different options besides botox but so far she's been reluctant to even allow me to take Tylenol (etc), I don't have insurance so botox bills are piling. up and at this point I'm beginning to think I'm jus getting screwed over by them.. ive changed my diet, almost completely quit smoking,, quit drinking at all.. and assiduously no caffeine... going to the hospital- all they do is give me a shot of DEMEROL which knocks me out for a few hrs then I wake up with the same headache..
I do appreciate being able to see what others have went through woth their headaches even tho I've already had the majority of meds listed..I also struggle with really high blood pressure (165/110- or higher daily with blood pressure meds 2xs A day) I figured tht would kinda prove I'm in pain Alot of the time but apparently doctors aren't seeing it tht way... its been way to long suffering to not have anything tht helps, well.. marijuana..and strong pain pills but marijuana is illegal in missouri and doctors dont seem to wana even refill my tramadol since I go through 30+ in a month... I was
takin 2-4 a day and barely gettin by... doctor said tht was too much... then took the script away... I dont understand y this is so complicated..but I'm starting to feel ill never get the helo I need... :-\
I had the worst migraine I've had since my stroke that caused them. Going to the ER didn't help me. The only thing that did help was sleeping for 56 hours straight (except for my ER trip which I slept most of that time). Then my migraine got better enough so that I could eat for the first time without vomiting for those 56 hours. The ER doctor said that sometimes that's the only way to interrupt the cycle. The only thing that I don't hear from you is whether you have tried nerve block and trigger point injections. Have you?
I have up to 6 headaches daily my doctor gave me a prescription for Oxycodone 30mg I take about 2 a day but I never take a whole one I take a half then I lay down in my bed but the main thing that u have to do is have it as dark as u can get it wet a cold cold rag lay it over your hole face not just your head and in about 45minutes I'm feeling better
Yes I do an Topamax/Topirimate 50 MG twice a day works well at stopping these headaches from happening. But, when i do get them, they are worse than the fractured vertebrae I had to have operated on during high school. The only thing that helps is 2 100 MG Imitrex, total darkness/silence and a desk fan bloeing directly on my face. The worst migraine I ever had lasted 8 days and I finally went to the neurologist who works at my local hospital and he gave something in an IV ( I believe it was a Much more potent dose of Replax that can only be stored in a hospital and administered by an anesthesiologist. 5 minutes later, thst headavhe thst had me contemplating suicide was completely gone. I hope you find the relief we chronic headache sufferers need.
I'm not sure if this would b an answer but I've had topomax, flexeril, inderal, maxalt, sumatriptan, and amitriptylin and nothing worked for my daily migraines. I know they're migraines becuz of the constant pounding with heartbeat and severe sensitivity to light, ect. Now I'm on atenolol 100mg2x's a day, depakote 500mg, nortriptyline 50mg and tramadol 50mg for "immediate" relief which would help if it wasn't so easy to build a tolerance.. I've suffered with these daily pains for 6 years and still no answers, I'm 21 and I have constant high blood pressure(115/150) was normal for me everyday... Doctors thought that was the cause of the pains, but now it's (90-105/75-87) daily which is significantly better but the pains have not eased, I would like suggestions on meds or anything u think may help thanks.
If you've tried a number of daily preventative migraine medications such as the Topomax and Amitriptlyene (sp?) which have not helped after taking them for at least a month, then you would have a very good chance of being helped by Botox injections. Good luck.
I've tried acupuncture, and acupressure therapy, not Botox yet, kind of a wimp when it comes to needles, the only thing that helped my migraines in the past was if I smoked a little pot but I'm tryin to find a legal-less expensive solution, plus the last time I smoked my blood pressure spiked and I almost had a stroke(surprised I didn't-183/145 and I felt numb all over-still don't knw if it was a reaction with my meds or not) I've heard over trimex or trezix? A friend of mine takes it for migraines but doctors don't like it when u suggest a medication especially when u research as much as I do, any info Is appreciated.
are you still having headaches? I have had ONE constant headache for 30 years and have a very long medical history--- 120 doctors and as many medications. Currently one of the meds that has really helped is Lyrica. Taken at bedtime it REALLY hepls my headache in the morning. Good luck!
Not sure what is going on, but it is very important that you have an MRI or CAT Scan done. Now I say this only because my mother suffered from bad migraine headaches for several years, and she would have to go to the ER a few times a month. They would just give her a shot of some Narcotic, and send her on her way. They never did any testing to see what was causing the headaches. They just said, "it's a migraine, and this medication should help." Unfortunately, at the age of 37, my mother died due to an Aneurism in the brain. If the doctor, or the stupid ER doctor would have done either one of these tests, my mother would probably still be here today. So if you have not had one of these tests, or had one recently, please get one done-- Your life may very well depend on it.
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