I suffer from daily chronic head pain. Maybe transformed migraine but most likely chronic tension headache. Has anyone had this and has been helped by anything.
Does anyone have chronic daily headaches?
Question posted by Tinyone on 10 Jan 2010
Last updated on 19 February 2022
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47 Answers Page 2
To CUSH and TINKTINK40 and others,
I'm thinking that maybe you missed my responses in the smaller print that gets hidden. You both say that you have tried everything, but I'm wondering if you have tried any of the following.
Have you both tried Botox which has helped me tremendously?
Have you worn the newer Butrans patch which gives you a low dose of opiates 24/7? That has mostly kept me out of the ER.
Have you tried herbal Petadolex proven to reduce migraines by an average of 62%.?
Have you tried a prescription skin gel that I use almost daily which settles down a developing migraine?
Do you have neck or shoulder tightness? If so, P.T. exercises have helped me to relieve the tightness which exacerbates the migraines.
Cush, I'm so sorry to hear that you have such limited relief from your nerve block injections. Mine last me almost 4 weeks. Does you doctor give you about 15 or more injections across your forehead, temples, at jaw point, back of the head, back of the neck, side of the neck, shoulders and even on the back? Some doctors don't know all the points to give them, so that's why I'm asking. You certainly deserve more relief.
ANYONE ELSE complaining who has not tried any of the above? These treatments have stopped my 24/7 severe migraines to instead MOST days with only mild ones. Yes, I still have days at a time when I'm bedridden, mostly when my Botox injections have worn off and I'm waiting for the new ones to take effect.
I'm assuming that you want help.
Please email me back to let me know.
I forgot to mention in my previous post that in order to treat my chronic migraine I not only use Effexor, but I receive Botox injections a couple times a year which really seem to help. I wish you freedom from these daily trials, don't lose hope, you will find something that helps you. Peace.
Yes, I've been hospitalized for chronic migraine. I suffered my first one when I was 13, then they became chronic after my hysterectomy at 45. I found relief finally in a high dose of Effexor (300mg). It's been a year since I've had a migraine. My headaches were not the tension-type, they were full blown migraines that lasted 4 days, full of vomiting... the whole works. I'd usually get a break between migraines for a day or two, then another would strike.
I suffered from this chronic headache for almost 12 years and I have tried many drugs,but no one really works. Sometimes I felt there is little water flow on my head. It is tension headache because of big pressure in the past. Now i am much better than before because I exercise more. Every weekend I climb one hill near my home to relax myself. It is better than drugs. You can try too.
I also suffer from daily chronic head pain a situation in which I've been probed CT'd and MRI'd so much the equipment says hello. Unfortunately in all of medical science specifically recent break throughs none offer any relief from the stress created by the constant throbe. If the pharmaceutical firms responsible for the likes of Viagara and others are looking for that cash pay-out cure headaches and migraine first. I smell BILLION$ hello.
Two of my neurologists have told me that daily migraines are the most difficult to treat. Also migraines caused by strokes are also very difficult to treat, which is my cause. But now after having severe to moderate migraines every day, now I am much better with severe migraines only once or twice a week.
Have you tried nerve block injections or Botox injections which have both helped me a lot? (BTW, I just found out 2 months ago that the P.T. exercises which I was doing every day had to wait for some time after these injections. Then the treatments worked much better.) But the P.T. exercises also help my migraines.
Have you have tried a skin gel that takes care of almost all of my mild migraines to keep them from getting a lot worse? Let me know if you want more information about the gel. Sometimes I wake up with a severe migraine when the skin gel can only help a little bit. Once they get severe, it's difficult to treat them period.
Have you tried a new Butrans patch that delivers opiates 24/7? It has kept me out of the ER since I started wearing in 2 months and 3 weeks ago. An absolute RECORD for me.
Have you tried herbal Petadolex which studies showed reduced migraines by 62%? THis medication really helped me.
Also I take an anti-depresssant which they have pain relief effects as well.
I don't don't know why you have had so many MRIs and CTs? Most migraines do not show causes.
I am honestly trying to help you. Please let me know if you tried the many treatments that have helped me with a very difficult migraine situation.
I should have included in my response that I am limited to an 8-hour day or my migraines tend to get severe the next day. But I am still grateful at the reduction of them.
Still having headaches here everyday is SSDD.I go to pain management to get percocet/ultram/lorazapam. On my own I found that when I take hydrocodone with xanax, it makes me feel human again. My doc won't give me these. The other meds simply don't work, they did at first (ultram did). Going on 17 years now and test after test. CT's, MRI's, the works.
They say I have DGD in my c5 and c6 vertabrae. I've got to get away from the Dr I see now. I've tried every pill, and shot possible and he does nothing but hurt me, first visit he had me on methadone, morphine, and flexeril. Talk about being a ding dong. I couldn't function at all.
I am seeing a new PCP and he is sending me to see a neurosurgeon.
Yay! Wish me luck too!
Best to wishes to you all. Jenny
To jennybhurtin,
So sorry to hear about all your pain. I hope that your neurosurgeon will offer you some relief. Take care.
Sara
Hi Cush,
You have not responded to any of my postings asking if you have tried a number of other treatments. Could you let me know? I'm trying to offer you some help. Don't you want some help?
I also suffer from really bad headaches. My pain dr. said it's from the three discs in my neck that are messed up. Before I found him, I was waking up at 4:00 a.m. just about to throw up with my head pounding!!! If I was lucky I could make it till 7:00-8:00 a.m. He put me on Fiorinal, but I wasn't crazy about taking a barbituate everyday and getting the "rebound headache". I, personally, take Topamax 300mg, and it has helped allot, but I still get them on occasion, and when I do... they are bad. I just hate these crazy horrible headaches. I hope your'es gets better hon. Ruth
I have been living with a daily migraine everyday since February of 2004. They have gotten so bad that I have threatened to cut my own head off. The nausea and vomiting make it so much worse. I have even passed out from the pain. No one has discovered a cause and none of the medications work for longer than a week or two (29 different medications and cortisone injections). Fioracet has helped the most.
Tinktink40,
You only mention medications.
Have you tried nerve block injections or Botox injections which have both helped me a lot?
Have you have tried a skin gel that takes care of almost all of my mild migraines to keep them from getting a lot worse? Let me know if you want more information about the gel. Sometimes I wake up with a severe migraine when the skin gel can only help a little bit. Once they get severe, it's difficult to treat them period.
Have you tried a new Butrans patch that delivers opiates 24/7? It has kept me out of the ER since I started wearing in 2 months and 3 weeks ago. An absolute RECORD for me.
Have you tried Petadolex which studies showed reduced migraines by 62%?
I am honestly trying to help you. I know you are very disgusted with the doctors trying to help you without any success. I used to have severe to moderate migraines every day. Now I am much better with severe migraines only once or twice a week.
Please let me know.
I should have included in my response that I am limited to an 8-hour day or my migraines tend to get severe the next day. But I am still grateful at the reduction of them.
In a word NO. Migraines began at age 8 add 52 years to that and I've still got them. I've been prescribed a pharmacy over this time meds (some) I was given while in my 30's had a short term benefit only. Whatever is at work here morphed into daily headaches that nothing short of a razor blade would cure. The daily headache has been further compounded by the migraine which I endure every 2 days. Since 1998 I've been undergoing nerve blocks which is a series of injections delivered to key points about the head. If I've a migraine on this particular day there is short term relief approximately 8 hours. By the time I reached 39 years old I was then looking for my 29th job. If not for leaving early or vomiting on the board room desk or not being able to to make it in at all or trying to close the blinds only to have them come crashing down I might still be employed. I have absolutely no appreciation for its or whatever its supposed to be sense of humor. Tinyone you have my sincerest wish that you have much better luck than I.
I'm so sorry to hear that you have such limited relief from your nerve block injections. Mine last me almost 4 weeks. Does you doctor give you over 20 injections across your forehead, temples, at jaw point, back of the head, back of the neck, side of the neck, shoulders and even on the back?
My migraines are thought to be occipital nerve ones which the neck stiffness aggravates them. Also I do P.T. exercises to relief the neck stiffness, but I recently learned NOT to do them until the next day after my nerve block injections.
Some doctors don't know all the points to give them, so that's why I'm asking. You certainly deserve more relief.
Have you tried Botox which also has helped me tremendously?
Please email me back to let me know
I had migrains for a long time went to the hospital 2 to 3 times a week, an old country doctor told me migrains are caused by tention and gave me Toradol injections to use at home it is an anti inflamitory so it shrinks the swelling and the migraine goes away its wonderful I seldom have to use it now no more migrains. also there is a medicine over the counter called Excedrin Tension I take if I start to get a headache, It is wonderful works very well. Dont make the mistake of buying Excedrin migraine it does not work.
yes i suffer from bad headaches .I have been for two and a half years .
Beacause i have a history of drug addiction and an alcohol problem no dr would take me seriously. I have been clean and sober for ten years though and four months ago i had had enough ! The new dr i have now listen to me and helped Thank God . But I am still in the prosses of tring to get them under control.
Hi Tinyone:
You have much advice from this forum. Hopefully you have found relief by now, but if not I will share my treatment.
I have suffered from tension headaches/migraines for more than 20 years. I began treatment with Fiorinal. This medicine worked miracles for me while working and attending graduate school. When I moved and switched doctors, I was given many different medications from muscle relaxers to antidepressants (a bit suspicious of why so many drugs were being prescribed) and none of these worked. I came back to Esgic (which is similar to Fiorinal). I still have severe headaches that I suspect are tension headaches and take Esgic as needed. I am able to work in a high-pressure environment and function normally headache-free with this one medication.
My headaches now occur maybe once every week as opposed to everyday in the afternoon (when I was prescribed the wrong medications.)
Good luck and good health to you.
I have suffered from migraines for the past 5 years. Since Midrin was withdraw from the market nothing really helped my migraines anymore. But now I have been taken Magnesium as a daily preventative and it has worked wonders. Now I just get migraines every once in a while. Hope this helps.
I have had chronic daily tension migraines for 2 years. I've tried all the preventatives & nothing works. I'm stuck addicted to Norco &Oxy. I wish I had better news, but I'm out of options. If you find a solution please post.
I can tell you what happened to me from the time I was 11 till I was 16 I had them everyday, they got so bad I saw every neurologist we had in town and then was referred to the larger city to 3 of them there, I would get so sick with the pain I would have to go to the ER, usually I was given Demerol 50-100mg only to have them return worse than they were to start, it turned out later those were the start of symptoms of a disease (which would involve Chronic headaches to start for the years I had them) then the Chronic pain moved to the place where they were able to identify what the problem was, anyway I was talking about the numerous visits to the ER, so many until they knew me by name, and at times I would get a look that let you know what they might have been thinking, I finally went one week end and the Dr.
on call was going to have them give me Demerol, I refused then heads turned, I told him I had figured out that the Demerol caused the headache to return so if I was going to hurt worse after the shot I would prefer not to and would no longer take it soon after we had a new neurologist come to town, he got my records from when I was a child, he was able to see that I had experienced Polio this was a sign of things to come of course your's is from a different source I would imagine but headaches like that can and are horrible, I can say one thing you have my very sincerest sorrow that you have this, I hope you are able to find a doctor who helps you. please let us know because we care,
Thank you so much. I'm actually doing about the same. No changes from the pain, just more meds. My mom passed from lung cancer in June. I miss her terribly and have been fighting depression now too. I'm going to stop smoking, I promised her that I would. Now after taking Zoloft 200mg a day I am starting to take Chantix. Hoping this will help some but so far, I have really bad nausea and the dreams are vivid. I have night sweats that I hadn't had before. I'm soaked in the mornings, even my legs sweat. Hope this will pass soon.
Thank you all so much for sharing your stories with me. I appreciate all of the support from the great people here. Wishing feel goods to all. <3
I know this is a old post, and hopefully I'm not duplicating, but I had chronic daily headaches for years. My neurologist put me on everything under the sun. What finally worked is a preventative called vivactil. some side effects, but better than daily headaches. hope this is helpful, cathleen
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