I was diagnosed with TJ N about seven years ago. I tried the usual, tegretol, neurontin, and Gabapentin before finally having GammaKnife Surgery (actually radiation) performed. Now, six years later and I am experiencing intense pain once more. Today, my Dr. Started me on Baclofen - 5mg three times a day for three days and then increase to 10 mg three times a day. I have taken two doses so far and have had ZERO relief. Can anyone tell me when I may be able to expect relief? I know you have to gradually increase but wow! I really need some relief.
I too have a family member who has been diagnosed with TN. As you know the disorder is very painful. My sister has tried many muscle relaxants over the years.
To make a long story short it wasn't until she took a combination of Baclofen and a low dose of oral prednisone until she got the pain under control.
Not completely sure on the doses of medication. I do know the pain got better once she took the combination of the two medications. It might be worth a call to your physician.
Also while her condition was at it's worse she only ate soft foods. I believe this too helped minimize the pain. Greek yogurt and protein shakes were her easiest foods to eat.
Sorry I couldn't be more precise on the prednisone and baclofen dose.
Sandif; don't know if I am going to be a lot of help because it depends on the dose of Baclofen and the person some can fell relief with the first dose but Normally being you have to go up slowly on this medication most start to get some relief in 2 to 3 days sadly because you have to start on the low dose and work your self up so I would hope that you should start to notice relief by the end of the weekend if not before. Try and keep the times you take it at about the same time does help to keep the blood level up. Keep at it don't give up once this starts to work most with the type of condition you have got pretty good results with this medication. Please feel free to write back anytime sometime it also helps to talk to someone that understands what you're going through and we have lots of people here. God bless and hope you start getting some relief anytime now.
Hi SandiF, I have suffered/struggled with Trigeminal Neuralgia and Vagoglossopharyngeal Neuralgia for the last 32 years. In 1997 I underwent Microvascular Decompression Surgery via Craniectomy on cranial nerves 5, 9 and 10. Was pain free and medication free for 11 years. But as predicted, it did return. Baclofen works best if used daily and taken at the same time each day. I found it took about 7 days to notice it was doing something. However, I am concerned that you are using Baclofen alone as that usually does not help with the pain. Baclofen is normally used in combination with anti-seizure medication used to treat Trigeminal Neuralgia for the best results in managing the excruciating, horrific pain. I truly hope this information helps you. If you have any further questions, please do not hesitate to contact me. In an attempt to help myself, I have acquired much knowledge and a wealth of references for living with and managing this disorder, which I would be more than happy to share with you. Have a great holiday. Hope you feel better.
I suffered terribly with TN or a variation of it since my pain was a little more constant vs intermittent. I had the Gamma Knife procedure which was effective. Prior to the Gamma Knife I was prescribed many different pain medications, OxyContin, Fentanyl patches, Hydrocodone, and I don’t even remember what else. Once the Gamma Knife was performed and successfull I was told that I no longer needed the pain meds and come back in three months. I ended up in detox and spent 14 full days pretty damn sick detoxing and about 4 months, maybe longer, dragging my ass through life trying to feel strong physically and emotionally again. I had no energy or motivation. I also suffered from severe depression for a long time. My pain was gone though. Pain meds are no joke.
I got relief from first day but I was also taking meloxicam, an anti inflammatory to help calm everything down as neurologist couldn’t believe how jumpy my legs were when she did some tests. I was born with spinabifida, thankfully I’m ok except for chronic and neuropathic pain so I’m also on Lyrica, Cymbalta and palexia.
For me Baclofen is like the best thing ever, so keep at it. I know not every drug suits everybody so I’m always on the search for other medication to try in case this stops working. I’m thinking of going down the path of medicinal cannabis. Also I have found out you can get Baclofen in a cream, I’m asking my GP about this on Friday and hope to get a script for it. Maybe this is something you can try. Hope you get relief soon, it’s an awful condition.
- Neurontin Drug Information
- Tegretol Drug Information
- Baclofen Drug Information
- Gabapentin Drug Information
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