It's sounds too good to be true!
It's for the treatment of chronic pain especially fibromyalgia.
It's an opioid antagonist.
It sure would solve the problems of dealing with these pain centers!
Has anyone tried LDN (Low Dose Naltrexone)?
- 15 Nov 2016 by Windchimes123
- 1 December 2019
- pain, fibromyalgia, naltrexone, chronic pain, dosage, chronic, opioid, treatment
It's sounds too good to be true!
I have been taking 4.5mg (LDN) Naltrexone for close to one year. It definitely helped with my pain at the start and I would recommend trying it but watch for side effects. you can not take any prescription pain relievers, not even tramadol. It is supposed to work best when taken at night. I found it was disrupting my sleep by waking me with vivid dreams so I started taking it in the am. I have some other side effects I want to see if they are from the naltrexone. I was glad to see you done need to wean off it slowly you can just stop.
Like everything else I try for Fibro pain relief I think the pain relief begins to lessen the longer you take it.
My doctor just prescribed LDN 1.5 mg taken at night before bed. There are a few YouTube videos on this but here is what she explained to me... LDN (Naltrexone) taken in low doses (up to 4.5mg) suppresses your endorphins while you sleep, so that your body can heal itself better. Its proven that the more rest you get the faster your body heals itself. When you wake up the endorphins go into (overdrive) and you have more energy the next day. While it does cause sleep interruptions at first, it is supposed to work miracles for any auto immune diseases and disorders, including some Cancer's. Visit the LDN website for more info and they have an app on google play store called "my LDN" so they can research further.
I have taken 3 mg LDN for about ten years in the hope of slowing down MS symptoms.
All I can say is that the first night was exciting, and I wondered if I made a good decision. I felt things in my arms and legs that I have never felt before. The next night was fine. And since taking it, I have not had any major setbacks. The last was ten years ago.
Side effects can be wild dreams. And a lot of dreams, but not necessarily wild. I had one suggestion to take it in the morning to avoid that, but found out that was wrong. It should be taken at bedtime.
I've been prescribed low-dose Naltrexone for a very serious rare, incurable chronic pain condition that's extremely difficult to treat. It's taken a couple of months to get to the therapeutic dose prescribed, and side effects have been challenging. However, the severity of side effects, e.g., fatigue, weird dreams (but not disturbing), etc., are decreasing and best of all, it appears to be making a significant difference in pain levels... something that's VERY rare in my experience. I have implanted devices to help manage pain and the Naltrexone seems to be a great complement to my pain management arsenel.
I have not been able to do much of anything due to side effects for two months, and only a few days that I've felt competent enough to drive, but everyone is an individual and may have different responses. I'm sure additional therapies I use are influencing and likely exaggerating my response to the Naltrexone. It's taken three prescribed stages for me to arrive at the correct dose and it's taken me about 10-14 days to get used to the side effects at each stage. Remember, everyone is an individual and my experience may not match that of others. Also, it depends on the dose you're prescribed. If you are troubled by side effects, check with your pharmacist about how to offset them. That's been enormously helpful to me.
The original question indicates hope of not having to deal with pain centers. Personally, I wouldn't care to have anyone but a pain specialist administer this therapy. I'm very fortunate to have found the best clinic I have ever worked with. If you're not satisfied with your current care, talk to your insurance company. I found my present provider from my insurance company. Use them as an information resource and allies. Get your money's worth! Talk to experienced pharmacists. They are often great resources about doctors as well as meds. Shop around. Advocate for yourself. Become an expert on your condition. Find organizations that help patients with your condition and find out how they can help and support you. Research things out for yourself. There's so much available on line that there's really no excuse not to do it. Get doctors/providers who will explain things to you and answer your questions. If they don't/won't, junk them if possible. If you don't already, make a list of questions and topics to discuss and take notes, then save them in a file to refer to later. Doctors tend to take patients who prepare more seriously. Take a trusted friend or family member along to appointments to help clarify and ask/remember things. Empower yourself as much as possible. Be open to reasonable alternative therapies as well as what doctors suggest... after appropriate research and inquiry for any suggested treatment of course!! Doctors are highly trained but are still human beings who may not think outside the box of "usual" treatments unless they're prompted by your questions. Ask what other things are available to treat your condition. Pay attention to your nutrition and avoid unintended self-sabotage by poor eating habits. For instance, I've found that sugar aggravates my pain levels terrifically. I may enjoy ice cream for 15 minutes, but it's not worth the price of even more agonizing pain I experience over the next 36-48 hours. One upside of avoiding sugar is that I enjoy the natural sweetness of fruits and vegetables without having to add artificial sweeteners or sugar.
Again, we are each responsible for our own health. Doctors and others help, but ultimately the responsibility belongs to each of us. In nearly 40 years of seeking help for pain, etc., no MD has EVER asked me what I eat. It astonishes me that it's not considered important enough to talk about or to teach MDs who do not choose to be specifically trained in food and nutrition!
As for the Naltrexone, I've only been at my therapeutic dose for about 2-1/2 weeks, but I'm encouraged. I have yet to try much activity so I'm curious to see how the Naltrexone stands up to activities of daily life and how much functional improvement I'll receive. This is a preliminary evaluation but I hope it's helpful to you and others. Good luck!
- Naltrexone Information for Consumers
- Naltrexone Information for Healthcare Professionals (includes dosage details)
- Side Effects of Naltrexone (detailed)
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