Tafamidis User Reviews & Ratings

• ken...
• Taken for 2 to 5 years
• April 24, 2025

Tafamidis for Cardiomyopathy of Transthyretin-Mediated Amyloidosis "I am 77 years of age. I have been taking Vyndamax, 61 mg daily, for over 2 1/2 years. I haven't had any noticeable adverse side effects from the drug. I have not suffered any hospitalizations since beginning the drug. I had two ablation procedures to correct atrial fibrillation prior to the amyloidosis diagnosis confirmation and beginning to take Vyndamax. I am able to continue to exercise regularly and continue normal activities. Annual echocardiograms show mild heart failure but have not progressed abnormally. I am pleased with the impact of the Vyndamax on my general health and prognosis. Unfortunately, it does not slow the aging process."

• Ton...
• Taken for 1 to 6 months
• August 2, 2024

Tafamidis for Transthyretin-Related Amyloidosis "I started taking Vyndamax in January 2024. Since then I have been experiencing a blood blister on my tongue about once a month. Then about three weeks ago, along with the blood blister my tongue went black with a fungus, which my cardiologist noted and reported to my GP. I presume Vyndamax has been reasonably effective in stopping the progress of my amyloidosis."

• Son...
• Taken for 1 to 6 months
• October 23, 2019

For Cardiomyopathy of Transthyretin-Mediated Amyloidosis "I totally understand all of your side effects from tafamidis. I have the exact same problems. The wheezing at night, the brown phlegm has since changed to clear phlegm. Very dry mouth that I have to get up to rinse with water, then I use Biotene rinse for dry mouth. But 2 hours later, I need to rinse again. Lack of sleep (insomnia). I went to a sleep monitor doctor for lack of sleep, and he gave me a medication that only lasts for 2 hours. Then back to rinsing and up for the day. There are side effects that are never mentioned because the doctors that prescribed tafamidis are not aware of them."

• Son...
• Taken for less than 1 month
• September 2, 2019

For Cardiomyopathy of Transthyretin-Mediated Amyloidosis "I started taking this medication (tafamidis) as suggested. Four 20 mg pills all at once. One day later, I started to experience severe shortness of breath, wheezing (most at night), cough and choking with a large brown phlegm-like substance, severe dry mouth at night, and insomnia. The doctor cut the medication down. But my system can't get accustomed to this medication."

• Bob...
• April 28, 2020

For Cardiomyopathy of Transthyretin-Mediated Amyloidosis "I have been taking Tafamidis since January of 2019 - switched to Vyndamax in March of this year, 2020. I must say that I have not experienced any significant issues with either medicine. How effective it is I am not sure of."

• hoo...
• Taken for 1 to 2 years
• April 17, 2025

Tafamidis for Transthyretin-Related Amyloidosis "15 months taking Vyndamax. I have never had side effects. My doctor and I have no way of knowing if Vyndamax is doing anything. No way to measure or compare against other patients. I feel good and I hope that I am 'buying' some time."

• Ano...
• May 7, 2025

Tafamidis for Cardiomyopathy of Transthyretin-Mediated Amyloidosis "After 2 years of Vyndamax, my heart failure is advancing, probably at a slower pace than without it. I developed a nasty skin rash only over my legs and a few days later over my forearms, worse over the back of my knees and antecubital areas, maybe not related to this medication. It’s very hard to open the blister-packed capsules."

• Ano...
• Taken for 1 to 2 years
• April 23, 2025

Tafamidis for Cardiomyopathy of Transthyretin-Mediated Amyloidosis "Taking Vyndamax on the recommendation of my cardiologist, however I have no idea if the medication is working as described and if so to what extent. I was not aware of an alternative medication until I saw an advertisement."

• Ath...
• Taken for 6 months to 1 year
• April 28, 2025

Tafamidis for Cardiomyopathy of Transthyretin-Mediated Amyloidosis "I have an uncontrollable condition of coughing, coughing, can’t stop sometimes. I also have tingling in my feet near my toes and my hands, my fingers… I prefer Vyndamax. It’s one pill a day, taking four pills a day, it’s too much. I’ve also had some wheezing since I’m taking Vyndaqel tablets."

• Ran...
• Taken for 1 to 6 months
• July 26, 2024

Tafamidis for Cardiomyopathy of Transthyretin-Mediated Amyloidosis "I had lost a lot of weight. I am in my third month using the medication, seem to have a bigger, better appetite and have put on about 5 needed pounds in the last 3 weeks. Wondering if that is a positive effect of the medication?"

• Mik...
• Taken for 6 months to 1 year
• December 25, 2024

Tafamidis for Transthyretin-Related Amyloidosis "I have developed itching on buttocks and down the IT band. I also have cataracts in both eyes caused by some medication. The eye doctors said they were on retina caused by medication, but could not determine which medication."

• Sam...
• Taken for 1 to 2 years
• December 16, 2023

Tafamidis for Transthyretin-Related Amyloidosis "My husband has been taking this drug for 1 year. It is working very well for him. His heart is stable right now. We saw improvements within 2 months. It has been a lifesaver."

• Mar...
• Taken for less than 1 month
• June 26, 2024

For Transthyretin-Related Amyloidosis "So far, good. I've had no problems to speak of. Doctors have been great informing me about everything."

• Ron...
• Taken for 2 to 5 years
• April 3, 2025

For Cardiomyopathy of Transthyretin-Mediated Amyloidosis "Easy to take. No side effects. Since taking, I have not experienced any increase in my condition."