Tafamidis User Reviews & Ratings
Brand names: Vyndamax, Vyndaqel
Tafamidis has an average rating of 7.6 out of 10 from a total of 13 reviews on Drugs.com. 46% of reviewers reported a positive experience, while 0% reported a negative experience.
Condition | Avg. Rating | Reviews | Compare |
---|---|---|---|
Cardiomyopathy of Transthyretin-Mediated Amyloidosis | 8 reviews for Cardiomyopathy of Transthyretin-Mediated Amyloidosis | 4 medications | |
Transthyretin-Related Amyloidosis | 5 reviews for Transthyretin-Related Amyloidosis | 6 medications |
Reviews for Tafamidis
- Ton...
- Taken for 1 to 6 months
- August 2, 2024
Tafamidis for Transthyretin-Related Amyloidosis "I started taking Vyndamax in January 2024. Since then I have been experiencing a blood blister on my tongue about once a month. Then about three weeks ago, along with the blood blister my tongue went black with a fungus, which my cardiologist noted and reported to my GP. I presume Vyndamax has been reasonably effective in stopping the progress of my amyloidosis."
- Son...
- Taken for 1 to 6 months
- October 23, 2019
For Cardiomyopathy of Transthyretin-Mediated Amyloidosis "I totally understand all of your side effects from tafamidis. I have the exact same problems. The wheezing at night, the brown phlegm has since changed to clear phlegm. Very dry mouth that I have to get up to rinse with water, then I use Biotene rinse for dry mouth. But 2 hours later, I need to rinse again. Lack of sleep (insomnia). I went to a sleep monitor doctor for lack of sleep, and he gave me a medication that only lasts for 2 hours. Then back to rinsing and up for the day. There are side effects that are never mentioned because the doctors that prescribed tafamidis are not aware of them."
Frequently asked questions
- Son...
- Taken for less than 1 month
- September 2, 2019
For Cardiomyopathy of Transthyretin-Mediated Amyloidosis "I started taking this medication (tafamidis) as suggested. Four 20 mg pills all at once. One day later, I started to experience severe shortness of breath, wheezing (most at night), cough and choking with a large brown phlegm-like substance, severe dry mouth at night, and insomnia. The doctor cut the medication down. But my system can't get accustomed to this medication."
- Bob...
- April 28, 2020
For Cardiomyopathy of Transthyretin-Mediated Amyloidosis "I have been taking Tafamidis since January of 2019 - switched to Vyndamax in March of this year, 2020. I must say that I have not experienced any significant issues with either medicine. How effective it is I am not sure of."
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Your review helps others make informed decisions.- hoo...
- Taken for 1 to 2 years
- April 17, 2025
Tafamidis for Transthyretin-Related Amyloidosis "15 months taking Vyndamax. I have never had side effects. My doctor and I have no way of knowing if Vyndamax is doing anything. No way to measure or compare against other patients. I feel good and I hope that I am 'buying' some time."
- Ano...
- Taken for 1 to 2 years
- April 23, 2025
Tafamidis for Cardiomyopathy of Transthyretin-Mediated Amyloidosis "Taking Vyndamax on the recommendation of my cardiologist, however I have no idea if the medication is working as described and if so to what extent. I was not aware of an alternative medication until I saw an advertisement."
- Ath...
- Taken for 6 months to 1 year
- April 28, 2025
Tafamidis for Cardiomyopathy of Transthyretin-Mediated Amyloidosis "I have an uncontrollable condition of coughing, coughing, can’t stop sometimes. I also have tingling in my feet near my toes and my hands, my fingers… I prefer Vyndamax. It’s one pill a day, taking four pills a day, it’s too much. I’ve also had some wheezing since I’m taking Vyndaqel tablets."
- Ran...
- Taken for 1 to 6 months
- July 26, 2024
Tafamidis for Cardiomyopathy of Transthyretin-Mediated Amyloidosis "I had lost a lot of weight. I am in my third month using the medication, seem to have a bigger, better appetite and have put on about 5 needed pounds in the last 3 weeks. Wondering if that is a positive effect of the medication?"
- Mik...
- Taken for 6 months to 1 year
- December 25, 2024
Tafamidis for Transthyretin-Related Amyloidosis "I have developed itching on buttocks and down the IT band. I also have cataracts in both eyes caused by some medication. The eye doctors said they were on retina caused by medication, but could not determine which medication."
- Sam...
- Taken for 1 to 2 years
- December 16, 2023
Tafamidis for Transthyretin-Related Amyloidosis "My husband has been taking this drug for 1 year. It is working very well for him. His heart is stable right now. We saw improvements within 2 months. It has been a lifesaver."
- Mar...
- Taken for less than 1 month
- June 26, 2024
For Transthyretin-Related Amyloidosis "So far, good. I've had no problems to speak of. Doctors have been great informing me about everything."
- Ron...
- Taken for 2 to 5 years
- April 3, 2025
For Cardiomyopathy of Transthyretin-Mediated Amyloidosis "Easy to take. No side effects. Since taking, I have not experienced any increase in my condition."
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- Drug class: transthyretin stabilizers
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Tafamidis for Cardiomyopathy of Transthyretin-Mediated Amyloidosis "I am 77 years of age. I have been taking Vyndamax, 61 mg daily, for over 2 1/2 years. I haven't had any noticeable adverse side effects from the drug. I have not suffered any hospitalizations since beginning the drug. I had two ablation procedures to correct atrial fibrillation prior to the amyloidosis diagnosis confirmation and beginning to take Vyndamax. I am able to continue to exercise regularly and continue normal activities. Annual echocardiograms show mild heart failure but have not progressed abnormally. I am pleased with the impact of the Vyndamax on my general health and prognosis. Unfortunately, it does not slow the aging process."