Vyndamax User Reviews & Ratings

• ken...
• Taken for 2 to 5 years
• April 24, 2025

For Cardiomyopathy of Transthyretin-Mediated Amyloidosis "I am 77 years of age. I have been taking Vyndamax, 61 mg daily, for over 2 1/2 years. I haven't had any noticeable adverse side effects from the drug. I have not suffered any hospitalizations since beginning the drug. I had two ablation procedures to correct atrial fibrillation prior to the amyloidosis diagnosis confirmation and beginning to take Vyndamax. I am able to continue to exercise regularly and continue normal activities. Annual echocardiograms show mild heart failure but have not progressed abnormally. I am pleased with the impact of the Vyndamax on my general health and prognosis. Unfortunately, it does not slow the aging process."

• Ton...
• Taken for 1 to 6 months
• August 2, 2024

For Transthyretin-Related Amyloidosis "I started taking Vyndamax in January 2024. Since then I have been experiencing a blood blister on my tongue about once a month. Then about three weeks ago, along with the blood blister my tongue went black with a fungus, which my cardiologist noted and reported to my GP. I presume Vyndamax has been reasonably effective in stopping the progress of my amyloidosis."

• hoo...
• Taken for 1 to 2 years
• April 17, 2025

For Transthyretin-Related Amyloidosis "15 months taking Vyndamax. I have never had side effects. My doctor and I have no way of knowing if Vyndamax is doing anything. No way to measure or compare against other patients. I feel good and I hope that I am 'buying' some time."

• Ano...
• May 7, 2025

For Cardiomyopathy of Transthyretin-Mediated Amyloidosis "After 2 years of Vyndamax, my heart failure is advancing, probably at a slower pace than without it. I developed a nasty skin rash only over my legs and a few days later over my forearms, worse over the back of my knees and antecubital areas, maybe not related to this medication. It’s very hard to open the blister-packed capsules."

• Ano...
• Taken for 1 to 2 years
• April 23, 2025

For Cardiomyopathy of Transthyretin-Mediated Amyloidosis "Taking Vyndamax on the recommendation of my cardiologist, however I have no idea if the medication is working as described and if so to what extent. I was not aware of an alternative medication until I saw an advertisement."

• Ran...
• Taken for 1 to 6 months
• July 26, 2024

For Cardiomyopathy of Transthyretin-Mediated Amyloidosis "I had lost a lot of weight. I am in my third month using the medication, seem to have a bigger, better appetite and have put on about 5 needed pounds in the last 3 weeks. Wondering if that is a positive effect of the medication?"

• Sam...
• Taken for 1 to 2 years
• December 16, 2023

For Transthyretin-Related Amyloidosis "My husband has been taking this drug for 1 year. It is working very well for him. His heart is stable right now. We saw improvements within 2 months. It has been a lifesaver."