Vyndamax User Reviews & Ratings
Vyndamax has an average rating of 8.2 out of 10 from a total of 6 reviews on Drugs.com. 50% of reviewers reported a positive experience, while 0% reported a negative experience.
Condition | Avg. Rating | Reviews | Compare |
---|---|---|---|
Cardiomyopathy of Transthyretin-Mediated Amyloidosis | 3 reviews for Cardiomyopathy of Transthyretin-Mediated Amyloidosis | 4 medications | |
Transthyretin-Related Amyloidosis | 3 reviews for Transthyretin-Related Amyloidosis | 6 medications |
- Ton...
- Taken for 1 to 6 months
- August 2, 2024
For Transthyretin-Related Amyloidosis "I started taking Vyndamax in January 2024. Since then I have been experiencing a blood blister on my tongue about once a month. Then about three weeks ago, along with the blood blister my tongue went black with a fungus, which my cardiologist noted and reported to my GP. I presume Vyndamax has been reasonably effective in stopping the progress of my amyloidosis."
- hoo...
- Taken for 1 to 2 years
- April 17, 2025
For Transthyretin-Related Amyloidosis "15 months taking Vyndamax. I have never had side effects. My doctor and I have no way of knowing if Vyndamax is doing anything. No way to measure or compare against other patients. I feel good and I hope that I am 'buying' some time."
Frequently asked questions
- What’s the difference between Vyndaqel and Vyndamax?
- How long does it take Vyndamax to work?
- How long does it take for Vyndaqel to start working?
- Ano...
- Taken for 1 to 2 years
- April 23, 2025
For Cardiomyopathy of Transthyretin-Mediated Amyloidosis "Taking Vyndamax on the recommendation of my cardiologist, however I have no idea if the medication is working as described and if so to what extent. I was not aware of an alternative medication until I saw an advertisement."
- Ran...
- Taken for 1 to 6 months
- July 26, 2024
For Cardiomyopathy of Transthyretin-Mediated Amyloidosis "I had lost a lot of weight. I am in my third month using the medication, seem to have a bigger, better appetite and have put on about 5 needed pounds in the last 3 weeks. Wondering if that is a positive effect of the medication?"
- Sam...
- Taken for 1 to 2 years
- December 16, 2023
For Transthyretin-Related Amyloidosis "My husband has been taking this drug for 1 year. It is working very well for him. His heart is stable right now. We saw improvements within 2 months. It has been a lifesaver."
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- Drug class: transthyretin stabilizers
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For Cardiomyopathy of Transthyretin-Mediated Amyloidosis "I am 77 years of age. I have been taking Vyndamax, 61 mg daily, for over 2 1/2 years. I haven't had any noticeable adverse side effects from the drug. I have not suffered any hospitalizations since beginning the drug. I had two ablation procedures to correct atrial fibrillation prior to the amyloidosis diagnosis confirmation and beginning to take Vyndamax. I am able to continue to exercise regularly and continue normal activities. Annual echocardiograms show mild heart failure but have not progressed abnormally. I am pleased with the impact of the Vyndamax on my general health and prognosis. Unfortunately, it does not slow the aging process."