Vyndamax for Transthyretin-Related Amyloidosis User Reviews
- hoo...
- Taken for 1 to 2 years
- April 17, 2025
"15 months taking Vyndamax. I have never had side effects. My doctor and I have no way of knowing if Vyndamax is doing anything. No way to measure or compare against other patients. I feel good and I hope that I am 'buying' some time."
- Sam...
- Taken for 1 to 2 years
- December 16, 2023
"My husband has been taking this drug for 1 year. It is working very well for him. His heart is stable right now. We saw improvements within 2 months. It has been a lifesaver."
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- Drug class: transthyretin stabilizers
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"I started taking Vyndamax in January 2024. Since then I have been experiencing a blood blister on my tongue about once a month. Then about three weeks ago, along with the blood blister my tongue went black with a fungus, which my cardiologist noted and reported to my GP. I presume Vyndamax has been reasonably effective in stopping the progress of my amyloidosis."