Tafamidis for Transthyretin-Related Amyloidosis User Reviews
Brand names: Vyndamax, Vyndaqel
- hoo...
- Taken for 1 to 2 years
- April 17, 2025
Tafamidis "15 months taking Vyndamax. I have never had side effects. My doctor and I have no way of knowing if Vyndamax is doing anything. No way to measure or compare against other patients. I feel good and I hope that I am 'buying' some time."
- Mik...
- Taken for 6 months to 1 year
- December 25, 2024
Tafamidis "I have developed itching on buttocks and down the IT band. I also have cataracts in both eyes caused by some medication. The eye doctors said they were on retina caused by medication, but could not determine which medication."
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Vyndaqel
Vyndaqel (tafamidis meglumine) is a transthyretin stabilizer that may be given to reduce death or ...
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Wainua
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Amvuttra
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Frequently asked questions
- Sam...
- Taken for 1 to 2 years
- December 16, 2023
Tafamidis "My husband has been taking this drug for 1 year. It is working very well for him. His heart is stable right now. We saw improvements within 2 months. It has been a lifesaver."
- Mar...
- Taken for less than 1 month
- June 26, 2024
"So far, good. I've had no problems to speak of. Doctors have been great informing me about everything."
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- Reviews (14)
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- Drug class: transthyretin stabilizers
- En español
Tafamidis "I started taking Vyndamax in January 2024. Since then I have been experiencing a blood blister on my tongue about once a month. Then about three weeks ago, along with the blood blister my tongue went black with a fungus, which my cardiologist noted and reported to my GP. I presume Vyndamax has been reasonably effective in stopping the progress of my amyloidosis."