Tafamidis for Transthyretin-Related Amyloidosis User Reviews

Brand names: Vyndamax, Vyndaqel

Rating: 9.0

Tafamidis has an average rating of 9.0 out of 10 from a total of 5 reviews for the treatment of transthyretin-related amyloidosis. 80% of reviewers reported a positive experience, while 0% reported a negative experience.

10		40%
9		40%
8		0%
7		20%
6		0%
5		0%
4		0%
3		0%
2		0%
1		0%

Ton...
Taken for 1 to 6 months
August 2, 2024

Tafamidis "I started taking Vyndamax in January 2024. Since then I have been experiencing a blood blister on my tongue about once a month. Then about three weeks ago, along with the blood blister my tongue went black with a fungus, which my cardiologist noted and reported to my GP. I presume Vyndamax has been reasonably effective in stopping the progress of my amyloidosis."

7 / 10

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3 Report

hoo...
Taken for 1 to 2 years
April 17, 2025

Tafamidis "15 months taking Vyndamax. I have never had side effects. My doctor and I have no way of knowing if Vyndamax is doing anything. No way to measure or compare against other patients. I feel good and I hope that I am 'buying' some time."

9 / 10

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0 Report

Mik...
Taken for 6 months to 1 year
December 25, 2024

Tafamidis "I have developed itching on buttocks and down the IT band. I also have cataracts in both eyes caused by some medication. The eye doctors said they were on retina caused by medication, but could not determine which medication."

9 / 10

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1 Report

Frequently asked questions

Sam...
Taken for 1 to 2 years
December 16, 2023

Tafamidis "My husband has been taking this drug for 1 year. It is working very well for him. His heart is stable right now. We saw improvements within 2 months. It has been a lifesaver."

10 / 10

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7 Report

Mar...
Taken for less than 1 month
June 26, 2024

"So far, good. I've had no problems to speak of. Doctors have been great informing me about everything."

10 / 10

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2 Report

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