Sodium oxybate User Reviews & Ratings (Page 5)

Brand names: Xyrem, Lumryz

Sodium oxybate has an average rating of 7.8 out of 10 from a total of 129 reviews on Drugs.com. 71% of reviewers reported a positive experience, while 13% reported a negative experience.

Reviews for Sodium oxybate

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sol...
Taken for 1 to 2 years
February 19, 2019

For Narcolepsy "I love this medication, but I'm having the absolute worst time with getting it renewed. It took two months to get the prescription filled last year, and it's taken weeks just to hear I've been denied again. It's heartbreaking, because having it gave me the ability to get my first job and start college, and I don't know what to do without it."

10 / 10

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sec...
Taken for 10 years or more
February 3, 2025

Sodium oxybate for Cataplexy "Used for almost 20 years now. Love it, but on occasion, I have a night where I don't think it even worked. I like it and wish I knew why it costs so dang much. We feel guilty for using it. Bet it would be awesome in slow-release form. (Feel free to use the idea. I don't need credit, I need sleep.) I do really wish I could have a sit-down with someone about it. There are so many questions we have about usage."

8 / 10

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Jen...
Taken for less than 1 month
July 15, 2018

For Narcolepsy "Started Xyrem (6/15), and I didn't sleep for 36 hours. I was a walking zombie. Then I started to get severely chapped lips, it got worse. I had a bunch of sores in my mouth & outside my mouth. My face was burned from the inside out, and I had blisters all over my face. Then what really got my attention was on Thur, 6/28, my BP was high, my Dr. sent me to the ER, my pressure was 181/123, pulse 143. I was a nervous wreck on this med, and I had a rare reaction called Stevens-Johnson Syndrome (SJS). For the first weeks while I was titrating my dose, I honestly didn’t need a nap while taking Xyrem. For the first time in my life, I wasn’t sleepy. When I take 2-3 doses, I wouldn’t want to sleep, I wanted to go somewhere & do something other than take a nap. With my side effects & complaints, I just wish the company would be more compassionate. I just wish the SDS pharm would seem concerned, other than saying we have never heard of anyone having side effects or reactions similar to mine."

1 / 10

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Frequently asked questions

Fib...
October 29, 2009

Sodium oxybate for Fibromyalgia "Xyrem got rid of my pain significantly, as well as the feeling of being drained. I felt as if I no longer had fibromyalgia. The side effects were difficult. Still trying to work with those."

7 / 10

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60 Report

bjs...
Taken for 1 to 2 years
May 15, 2012

Sodium oxybate for Fibromyalgia "Better sleep, less pain."

9 / 10

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44 Report

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sus...
Taken for 5 to 10 years
January 6, 2016

Sodium oxybate for Narcolepsy "It saved my life. No more sleeping at my desk. I have had very little trouble with side effects. I learned to make sure 2 hours lapses after I eat before I take it so it will work."

10 / 10

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26 Report

Ell...
January 7, 2018

Sodium oxybate for Narcolepsy "Diagnosed at 27 and changed my whole life using this drug... never knew what life was."

9 / 10

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21 Report

More FAQ

Phu...
Taken for 1 to 6 months
July 5, 2015

Sodium oxybate for Narcolepsy "I suffered from narcolepsy due to spending too much time in the REM sleep stage. Xyrem regulates my sleep architecture, and now I no longer suffer from excessive daytime sleepiness."

10 / 10

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27 Report

Joj...
Taken for less than 1 month
March 13, 2019

Sodium oxybate for Narcolepsy "I had a bad reaction to Xyrem. Nausea, panic attacks, delusional thoughts, feeling like a bad hangover every day, depressed. I ended up in the emergency room, and I stopped taking this medication."

1 / 10

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17 Report

Anonymous
July 15, 2011

Sodium oxybate for Narcolepsy "I have been taking Xyrem for my narcolepsy for 6 months. It is wonderful to feel like a productive, normal person again."

9 / 10

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32 Report

Sle...
June 23, 2009

Sodium oxybate for Narcolepsy "Xyrem gave me the ability to return to work with the use of stimulants during the day. Stimulants alone did not work."

9 / 10

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31 Report

Anonymous
August 31, 2009

Sodium oxybate for Narcolepsy "Without Xyrem, I am a complete mess."

10 / 10

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31 Report

Sou...
Taken for 5 to 10 years
August 15, 2019

Sodium oxybate for Narcolepsy "2 of 7 days in a week, this medicine works for me. Other 5 days, whole day I felt so annoyed and so angry that I cannot explain. 1 dose can sleep 2-3 hours and 2 doses like 1-2 hours."

7 / 10

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16 Report

mis...
January 10, 2013

Sodium oxybate for Narcolepsy "2.75 g x 2 every night for five years. Deeper sleep with dreaming not infrequent. No side effects whatsoever. I've not gotten used to the salt added during manufacture."

10 / 10

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23 Report

Sie...
Taken for less than 1 month
August 25, 2024

Sodium oxybate for Cataplexy "Keeps me from having cataplexy, but causes severe, painful restless leg syndrome."

6 / 10

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3 Report

Eda...
July 3, 2018

Sodium oxybate for Narcolepsy "Xyrem helps me get restorative sleep."

9 / 10

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12 Report

Mar...
Taken for 2 to 5 years
April 21, 2020

For Fibromyalgia "Sodium oxybate has been the only thing to stop the pain from my fibromyalgia."

10 / 10

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9 Report

Cac...
June 13, 2016

Sodium oxybate for Narcolepsy "I think the good of this medicine outweighs the negative."

8 / 10

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14 Report

Anonymous
November 13, 2008

Sodium oxybate for Narcolepsy "Truly life-changing for those with narcolepsy/cataplexy."

10 / 10

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18 Report

oka...
Taken for 2 to 5 years
January 25, 2015

Sodium oxybate for Narcolepsy "When taken as prescribed, medication works well for restful sleep."

9 / 10

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12 Report

Des...
February 22, 2025

For Cataplexy "I really like this medicine for cataplexy. It's very useful. My symptoms are finally under control. I recommend it, provided that it is under the control of a doctor :)"

10 / 10

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1 Report

Arm...
Taken for 2 to 5 years
June 18, 2014

Sodium oxybate for Narcolepsy "It has helped my sleep immensely. I don't leave home without it ever."

9 / 10

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12 Report

Anonymous
February 21, 2011

Sodium oxybate for Narcolepsy "My 2nd night with Xyrem was last night. I was not expecting an overnight miracle, but I was thinking it would have been different. No side effects. Tired, but hopeful for these next couple of weeks."

5 / 10

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14 Report

Sle...
Taken for 1 to 2 years
January 14, 2020

Sodium oxybate for Narcolepsy "Been on this medication for about a year now. I still have excessive daytime sleepiness, but not as bad. I was hoping it would be better."

5 / 10

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4 Report

mke...
Taken for 1 to 6 months
August 4, 2019

Sodium oxybate for Narcolepsy "First go-around with Xyrem was not good. Second time I played doctor and took Xyrem, the 6 mg total dose. This works for me so far. Works better and fewer side effects. To be continued!"

7 / 10

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7 Report