Keytruda and Fatigue: What Users Say (Page 2)

• Chr...
• Taken for 6 months to 1 year
• April 4, 2025

For Breast Cancer "Side effects: unrelenting itching, increased nerve pain such as carpal and cubital tunnel pain, fasciculations, paresthesias, random sharp nerve pain strikes like I am being stabbed with an ice pick, joint pain, worsening of back and hip pain, arms feel heavy, leg and ankle swelling, abdominal pain, headaches, nausea, mouth sores, loss of appetite, shortness of breath, extreme fatigue, hair loss, increase in tinnitus. I have CRPS, and it has definitely caused an exacerbation of pain in that area! I don’t know if it’s working. I’ve been on it every 3 weeks for 1 year. I only have 1/2 to 1 day of feeling semi-OK within the 3-week cycle, and that is the day before the next infusion! I hope it’s working, but don’t know if it is. I think it’s worth a try if you can stand the side effects, but regardless, if you have an aggressive cancer diagnosis, you’ll do anything necessary or recommended in an effort to keep it from coming back!"

• Agg...
• November 11, 2024

"I’ve now had 4 infusion treatments with Keytruda. The last CT showed that the bone lesions were stable. I’m hoping that the next bone scan will show that there has been healing in the impacted areas. I’m not having any unexpected adverse reactions to the drug. My CMP results are all within normal range, and my CBC continues to improve. One of my lesions was on the top of my skull (I was headed to a bit of a point), but now I can barely feel any difference in that area. While I did have several rounds of radiation therapy to all of the other lesions, I had no treatments in that area. My team chose Keytruda because genetic testing showed that I have a very high MSI, and other mutations, as does my HR+ cancer. My level of pain is tolerable, my appetite has somewhat decreased, and for a few days after infusion I do feel a bit more fatigued."

• Joh...
• Taken for 6 months to 1 year
• August 25, 2024

For Non Small Cell Lung Cancer "Very good so far. Almost a year, and only now a loose stool. Not had too bad a time, some sleepiness, dizziness, fatigue."

• Sta...
• August 22, 2024

For Breast Cancer "It is working... in combination with chemo. My tumors are shrinking. Lots of side effects. Colitis, nausea, blurred vision, muscle pain, headache, back pain, loss of energy... could be the chemo."

• DJD...
• Taken for 1 to 6 months
• May 14, 2024

For Melanoma, Metastatic "I have had 5 treatments so far. Side effects are minimal, mostly fatigue some days. I don't know how it is working yet to reduce the cancer but will be having a scan in a few weeks to determine that."

• Doc...
• Taken for 6 months to 1 year
• July 23, 2024

For Bladder Cancer "Weakness, colitis, neuropathy, dizziness, lack of energy. Cancer seems to be going away."